Dear MomtoGiuliana,
Thank you so much for your kind reply. I have never mentioned this diagnosis to any of those doctors during my visits, but I finally mentioned it in my message 5 days a go. I have many rare and chronic syndromes and illnesses and have been going to the same health facility with tens of doctors and specialists for more than 20 years. My major problem is I have been labeled with anxiety and hypochondria in my medical records; due to some doctor's ignorance not being able to put their hand on the real health issue.
In the past, it took 44 years until I diagnosed myself with POTS and NMH and then they referred me out of state to Vanderbilt to get an official diagnosis which they did. It took me 15 years to diagnose myself with EDS and then convinced my PCP to refer me to a geneticist, which he did (out of state).
Now, as I mentioned it has been 4 months with this new syndrome, but this time I am so desperate because I have no life. Yes, there is a strong link between EDS and Slipping Rib syndrome.
I have been describing my pain to all those doctors, but none of them had a clue. I have been searching really hard to see if an MRI would show my slipped rib. The answer is No. I have chatted with (Slipping Rib syndrome) patients, they have a FB page.
Did you ever find out what was the cause of your flank pain and hematuria?