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Everything posted by AB+72

  1. So sorry to hear this clicky77. I hope you come out of that soon.
  2. Thank you for this. I've been pushing myself to drive around and do a few little exercises each day. Walking around. It is hard but I do believe it is helping. I'm still making my own food too. The kids are helping a lot with laundry and dishes though lately. Well, my daughter pretty much always did the laundry. I do fold sometimes and I used to bring the load up from downstairs. I need to get back to the stairs again. I did a half flight at church on Sunday. I like to be reminded about how are bodies are resilient and always trying to heal. I think it's good to keep that i
  3. Where will you be starting from? You're braver than I am. I think I'd have to do a test run of a shorter flight before I decided to go over the ocean...... I don't know how to help you. You seem way more prepared than I would be. I just have decided to not fly..... I'm not sure that I'll ever have to. But my plan is to just avoid it. Unless I get to the point that my symptoms have went into remission. Which may not even be possible.
  4. I just get to where my heart rate doesn't want to calm down. And yeah, fatigue. I've gotten to the point that I just don't push myself much any more. I don't like being laid up. Lately I've been more laid up from not even over exertion. Just stuff.... I'm sure I'm starting to sound like a broken record about that. SORRY!! But it is why I'm on here now. Trying to peal back the layers of yuck and gain back some vitality. If possible.
  5. My ears always ring. And when I think about it, it gets worse. So thank you. LOL. I typically can just not focus on it, I've had it for so long. It's one of the least annoying symptoms for me. I hope it stays that way.
  6. Yeah Astridmj, that supermoon was a doozy for me too. KS42, thank you for the extra info. My BP doesn't go up when I stand up. But my heart rate does. It hasn't dropped much at the doctors office, but it still doesn't feel right. I feel abnormal. Like I can't breathe right. At times it's better than others. I think I might be in the category of having adrenaline affect it. Because I was getting a lot of stress lately and anxiety and my symtpoms overall seemed to greaten. And like I said, I know that one time I reacted very very badly to lidocaine with epinepherin in it. And then
  7. Thank you for the replies. KS42, sounds like we may have a lot in common. That makes me feel good. I don't know what hyper POTS is and how you would know if you have it. And I don't know what half the stuff is on the bottom of your page. All I know is I'm struggling more lately. I personally think it's the changes of life, stress, humidity and other environmental factors (sinuses are swollen) etc etc.... Meaning, a whole bunch of stuff. And I'm not quite sure how I'm gonna unbury myself at this point. Right now I feel best when I'm just sitting, not doing much. I'm just p
  8. Can't you cut the allegra in half or 1/4 or something? My doctor is recommending zyrtec or allegra. I'm thinking I'm going to try one. I'm not sure I care if it makes me drowsy, if I take it before bed.... Although non drowsy would be better as long as it's not ramping me up...... I personally would rather take only a part of a pill right off the bat, to see if I can tolerate it.
  9. I just remembered, we have a dehumidifier in our basement I should try out. Lately humidity in our house has been around 50. And even though it's in the normal range, I think I do better when it's lower.
  10. I used the steroid inhalor today and I think it made it worse.... I'm thinking about trying clariton or some over the counter drug. Or, I may try some quercitin..... Have you learned to just breathe through your mouth more?
  11. I'm not exactly sure what you are saying. Are you saying I don't have it, or I have a different type other than POTS? I'm pretty sure I have a lot of the symptoms of some kind of dysautonomia. One time when they used lidocaine with epinepherin my BP crashed big time. And I've read in some places that epinepherin will do that to some people with dysautonomia. Among other issues like needing to keep water volume up and no sweating and low bp. Palpatations and swings in heart rate for several reasons that aren't normal. Gut issues. Problem with the pressurized cabin on a flight. Etc etc.
  12. I saw my Doctor last friday and she said my nasal passages are swollen and inflamed. And prescribed a steroid inhaler. I have a feeling this has had an impact on my health lately because I'm not breathing good through my nose. I think that is why I haven't been sleeping as well lately and it may be a key problem. But I'm not sure how to solve it. I'm hoping the inhalor helps, but I have a feeling there is a larger, underlying cause....... Just curious if anyone else has been down this road....
  13. I apologize for saying I failed the test. I feel like I failed it. LOL. I remember the gal working with me seemed...... like surprised that they got a person that had issues. It was in Jacksonville and they had just put that wing and equipment in I guess........ At the time. (November 2010) They also tested me for sweating and breathing into a thing to keep up a certain amount of pressure. I got lightheaded doing that and didn't sweat. It was like, what the heck, I'm messed up apparently. And the Doctor had a fancy name for what he thought I had. I thought he called it Reflex de
  14. I would like to hear from you guys which symptoms you might have or relate to. I realize some of you have it worse or better than I do, and we're all different. But I'm just curious as to where I might have similarities to others struggling with this syndrome. So here we go: I'm brand new here and would like some input. I'm 46 and was diagnosed with POTS in 2009 after coming back from Mayo Clinic in Jacksonville. Where I pretty much failed the tilt table test. They didn't let me go all the way to fainting, but I was getting pretty light headed and all that. Until now I have managed
  15. It is the downside to a capitolist society. People charge as much as they can. It crosses a line of what is acceptable and moral and fair, IMHO. I'm not saying socialism is better. I think it's worse. If everyone in a capitolistic society charged a fair price and thought about their customers abilities, it would be better. But many times, it's just about how much someone can make. Which has it's upsides. They can grow, employ more people, put more money back into the economy and also give generously to charities. But from my estimation it's usually at the detriment of the 80% of p
  16. I'm not good at the not whining stuff.... When people ask me how I'm doing, I tell them the truth, but then I always feel like a bundle of joy (sarcasm) and feel bad to be whining to everyone.
  17. Wow, did you get disability that quickly? I just started filling out the application on Friday. I don't know why I waited so long. I've had it for almost 10 years now..... I was feeling like I was slowly getting better but have had a turn.
  18. I don't want to diagnose you. But despite that they said it's not H.Pylori, your symptoms sound like it could be some kind of "gut bugs". We can get all kinds of things in there. I think my recent flare up of bad health has a connection to my gut. Possibly. It's hard to know because most regular doctors don't test properly for that kind of a thing. If you're not sure you could always eat things that are good for the gut and getting rid of gut bugs. Which is what I've been trying to do. A probiotic is a good idea. A lot of herbs are anti fungul / parasite. Garlic is. Ginger is. Thym
  19. My sinuses have been terrible this year and I think is contributed to worse symptoms. I was not breathing well through my nose at all. I've been wearing the breathe right strips on my nose and I've been wearing them all day and all night now. I don't care how it looks. I breathe much better with them. I think I was getting anxiety just from the fact that I wasn't breathing well. Even with trying to keep my mouth open it's not the same when your nasal passages are stopped up. I'm actually seeing my doctor tomorrow for this, but I don't know if there is anything a regular family MD will
  20. Lately my symptoms are really stiff and just making myself food is all I can take. I have not always been this bad and I'm hoping to climb my way back out. But as I do, I have never really had an exercise routine. But when I'm not at my worst, I usually do the dishes and figure that is some kind of exercise. I only did 1/2 hour stints. Lately I can't even manage that and my daughter has taken over that job. Thankfully. But it sounds like even when you some of you are pretty bad off you try to exercise. What do you do? i mean lately I've just been doing a few arm circles with my
  21. Thank you for the responses.... I'm unsure as to what to do. Lately I've been getting kind of a scary symptom and I'm not sure why. But it seems to coincide with taking it. And that is my chest feels heavy sometimes. I don't know if it's my body trying to adjust or what. But it makes me not want to take it..... Problem is, it's helping with sleep and anxiety...... I might just need to figure out the proper dosage. Because even on 10mg a day I was seeing a lot of affects only after 4 days of taking it. And I may need to take even less a day to strike a good balance. My blood pressu
  22. Hello Everyone, I'm new here. I was diagnosed with POTS after going to Mayo Clinic in 2009 or so... And had the tip table test. In Jacksonville, FL. I have tried to live and manage with it by keeping water intake up, especially before I get up from sleeping. And just keeping my upright stints to 1/2 hour, and then sitting down. I had seemed to get progressively stronger over the years. Which btw, I also have lyme disease. Which I think probably caused the POTS. Anyways... Well this year everything has sort of come crashing down on me. More stress about money, other stressful th
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