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AB+72

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About AB+72

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  1. So sorry to hear this clicky77. I hope you come out of that soon.
  2. Thank you for this. I've been pushing myself to drive around and do a few little exercises each day. Walking around. It is hard but I do believe it is helping. I'm still making my own food too. The kids are helping a lot with laundry and dishes though lately. Well, my daughter pretty much always did the laundry. I do fold sometimes and I used to bring the load up from downstairs. I need to get back to the stairs again. I did a half flight at church on Sunday. I like to be reminded about how are bodies are resilient and always trying to heal. I think it's good to keep that in mind. I think I used to tell myself that after 35 the body starts to deteriorate. And that's probably true. But it is still working on healing. Otherwise people would last as long as they do. It's not like you lose resiliency right at 35..... Or so. It doesn't just vanish.
  3. Where will you be starting from? You're braver than I am. I think I'd have to do a test run of a shorter flight before I decided to go over the ocean...... I don't know how to help you. You seem way more prepared than I would be. I just have decided to not fly..... I'm not sure that I'll ever have to. But my plan is to just avoid it. Unless I get to the point that my symptoms have went into remission. Which may not even be possible.
  4. I just get to where my heart rate doesn't want to calm down. And yeah, fatigue. I've gotten to the point that I just don't push myself much any more. I don't like being laid up. Lately I've been more laid up from not even over exertion. Just stuff.... I'm sure I'm starting to sound like a broken record about that. SORRY!! But it is why I'm on here now. Trying to peal back the layers of yuck and gain back some vitality. If possible.
  5. My ears always ring. And when I think about it, it gets worse. So thank you. LOL. I typically can just not focus on it, I've had it for so long. It's one of the least annoying symptoms for me. I hope it stays that way.
  6. Yeah Astridmj, that supermoon was a doozy for me too. KS42, thank you for the extra info. My BP doesn't go up when I stand up. But my heart rate does. It hasn't dropped much at the doctors office, but it still doesn't feel right. I feel abnormal. Like I can't breathe right. At times it's better than others. I think I might be in the category of having adrenaline affect it. Because I was getting a lot of stress lately and anxiety and my symtpoms overall seemed to greaten. And like I said, I know that one time I reacted very very badly to lidocaine with epinepherin in it. And then we switched to marcaine for the rest of my dental needs after getting a test done. But in the end I don't think it was the lidocaine but just the epinepherin that was in it. My BP went really low that time and I ended up in the ER. I probably scared anyone else having dental work done that day. "Oh my goodness, they sent someone to the hospital"........ I"m pretty sure I tested positive for having mono at some point or another, but I can't remember if the Eppstein Barr was positive...... I read somewhere that people with strep might have induced POTS. I had it several times as a teenager. But I didn't have symptoms of POTS until I was in my 30's. I was a very active, very active up until that point.
  7. Thank you for the replies. KS42, sounds like we may have a lot in common. That makes me feel good. I don't know what hyper POTS is and how you would know if you have it. And I don't know what half the stuff is on the bottom of your page. All I know is I'm struggling more lately. I personally think it's the changes of life, stress, humidity and other environmental factors (sinuses are swollen) etc etc.... Meaning, a whole bunch of stuff. And I'm not quite sure how I'm gonna unbury myself at this point. Right now I feel best when I'm just sitting, not doing much. I'm just praying I can peel the onion and get back to what I was sometime.... I miss feeling human. Thank you for the tips on disability. It also makes me feel better. I'm going to keep plugging away at it. I'll entertain hiring a lawyer. I stopped working in like 2010, so.... if they awarded me back pay, there probably would be a chunk.... I'm not really concerned about backpay though.
  8. Can't you cut the allegra in half or 1/4 or something? My doctor is recommending zyrtec or allegra. I'm thinking I'm going to try one. I'm not sure I care if it makes me drowsy, if I take it before bed.... Although non drowsy would be better as long as it's not ramping me up...... I personally would rather take only a part of a pill right off the bat, to see if I can tolerate it.
  9. I just remembered, we have a dehumidifier in our basement I should try out. Lately humidity in our house has been around 50. And even though it's in the normal range, I think I do better when it's lower.
  10. I used the steroid inhalor today and I think it made it worse.... I'm thinking about trying clariton or some over the counter drug. Or, I may try some quercitin..... Have you learned to just breathe through your mouth more?
  11. I'm not exactly sure what you are saying. Are you saying I don't have it, or I have a different type other than POTS? I'm pretty sure I have a lot of the symptoms of some kind of dysautonomia. One time when they used lidocaine with epinepherin my BP crashed big time. And I've read in some places that epinepherin will do that to some people with dysautonomia. Among other issues like needing to keep water volume up and no sweating and low bp. Palpatations and swings in heart rate for several reasons that aren't normal. Gut issues. Problem with the pressurized cabin on a flight. Etc etc.
  12. I saw my Doctor last friday and she said my nasal passages are swollen and inflamed. And prescribed a steroid inhaler. I have a feeling this has had an impact on my health lately because I'm not breathing good through my nose. I think that is why I haven't been sleeping as well lately and it may be a key problem. But I'm not sure how to solve it. I'm hoping the inhalor helps, but I have a feeling there is a larger, underlying cause....... Just curious if anyone else has been down this road....
  13. I apologize for saying I failed the test. I feel like I failed it. LOL. I remember the gal working with me seemed...... like surprised that they got a person that had issues. It was in Jacksonville and they had just put that wing and equipment in I guess........ At the time. (November 2010) They also tested me for sweating and breathing into a thing to keep up a certain amount of pressure. I got lightheaded doing that and didn't sweat. It was like, what the heck, I'm messed up apparently. And the Doctor had a fancy name for what he thought I had. I thought he called it Reflex depressor syncopy. Or something like that. And then I got diagnosed by POTS by my EP when I got home. I saw him with the recommendation of the Doctor at Mayo and I think they communicated. Well now after looking it up, maybe he was just saying that's what I did in the test..... Vasodepressor Syncope. Which I guess is a way to say fainting...... Anyways... Thank you for the link. It does look like many of my symtpoms are typical. And yeah, mine I believe has been caused by Lyme Disease.
  14. I would like to hear from you guys which symptoms you might have or relate to. I realize some of you have it worse or better than I do, and we're all different. But I'm just curious as to where I might have similarities to others struggling with this syndrome. So here we go: I'm brand new here and would like some input. I'm 46 and was diagnosed with POTS in 2009 after coming back from Mayo Clinic in Jacksonville. Where I pretty much failed the tilt table test. They didn't let me go all the way to fainting, but I was getting pretty light headed and all that. Until now I have managed with keeping my water intake up, and not staying on my feet for more than 1/2 hour at a time. I would like to ask if the symptoms I've dealt with are typical POTS symptoms. 1. Need to drink a good amount of water after getting up from sleeping. Otherwise my heart rate would be high all day long and feel like it doesn't want to relax. 2. A few times before I knew better I tried to move heavy things and afterward I felt like my heart just wanted to race away and never calm down again. This was early on of course and I learned to not be lifting heavy stuff any longer. 3. Can not stand and do jobs for more than a 1/2 hour without having the same symptom of never calming down. And lately it's been even less than that. This spring I've taken a turn for not the better, which is why I'm delving into more research. And my ability to stand for even 1/2 hour has diminished greatly. 4. Can't get a very stiff back rub or massage. Seems to torque me out and ramp up the heart rate. 5. When flying to and from Mayo Clinic, heart rate skyrocketed after the cabin pressurized. I was slamming water and taking metoprolol like crazy on the ride home. 6. Fatigue fatigue fatigue. Some days worse than others (this may be lyme disease too, which I also have. In fact I think that that is what caused the POTS.) 7. OCD / Anxiety / Panic attacks. This could be partly genetic and party mind is tired from all the problems. And just other life stressors like money and change, and family issues. 8. Stress makes symptoms worse. Which is my main issue this year I think. 9. Low pressure systems make me feel super lousy. Storms and such. 10. Full Moon in the winter, new moon in the summer makes me worse. 11. Kidney stones. Not sure that has anything to do with POTS. I started with those before I had POTS. 12. Feel better later at night. 13. A lot of food sensitivities. 14. Lack of feeling relaxed and lack of libido, at times. My Cardiologist that has been treating me for POTS told me that most people don't get disability with just POTS dx. Which is kind of depressing because I have no clue how I could hold a job. Thankfully my wife has a very good job but we don't really have enough money from fighting all my issues over the years. Thank your for listening and your input is much appreciated. J.J.
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