Jump to content
Search In
  • More options...
Find results that contain...
Find results in...

zerohours000

Members
  • Content Count

    169
  • Joined

  • Last visited

Community Reputation

0 Neutral

About zerohours000

  • Rank
    Advanced Member

Profile Information

  • Gender
    Male
  • Location
    Boston, MA

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. zerohours000

    Jerks and involuntary movement

    @valizThanks for sharing. I have a constant twitching in my pinky and finger finger where they both twitch inward. I’m just hoping it’s not early onset Parkinson’s disease. Hope you’re doing better.
  2. zerohours000

    Doctor’s Update

    Thanks. I had an EMG in June — normal. I guess I’m just worried about Parkinson’s. But I’ve alsi heard adult Celiacs can present neurologically. Money neuro already said it was BFS and I basically believe them. So it’s just the other one I’m concerned about.
  3. zerohours000

    Doctor’s Update

    I don’t fall asleep until like 3:30 am. Thx. Im trying buy it’s so hard.
  4. zerohours000

    Doctor’s Update

    My recent doctor told me he is leaning either rheumatological or neuromuscular. Neither sound particularly good. I have never been diagnosed with Dysautonomia so this is not a shock I suppose. My most recent symptoms are these weird muscular jerks before going to sleep, and only when going to sleep. But I do have a twitch now in my left hand hand, in my ring and pinky finger. A twitch in the sense that it bends inward to the palm, so twitches towards the palm. Could be nothing, overuse of my phone, or like the doctor said—neuromuscular. All very depressing. I’m only 33 and I feel just so sad like I already died. Sorry to be a bummer. Just feeling alone and bummed.
  5. zerohours000

    Jerks and involuntary movement

    Yes. It’s hard to know what’s causing what.
  6. zerohours000

    Jerks and involuntary movement

    Sorry to hear that. I don’t get tremors per se. I do feel like there’s an internal trembling or something. But I get a lot of jerks and twitches as well.
  7. zerohours000

    ☺️Finally got a good doctor

    @EchoPernicious Anemia
  8. zerohours000

    ☺️Finally got a good doctor

    @EchoYes---because my mother doesn't have PA but is deficient. Similarly, many with autoimmune are deficient. It's an easy fix but not so easy to catch. For example, I have HIGH b12 which could indicate my active b12 isn't being used whatsoever. But we'll see...
  9. zerohours000

    Jerks and involuntary movement

    My suspicion is that it's from some vitamin deficiency or possibly the dysautonomia itself --- even though everyone says it's not dysautonomia. So I'm very confused.
  10. zerohours000

    ☺️Finally got a good doctor

    How do you figure out if you cant absorb it?
  11. Does anyone else get like limb and body jerks? Especially while trying to fall asleep? I get them in my fingers a lot and then almost everywhere when trying to rest. Very weird.
  12. zerohours000

    New neuroscience

    Just wanted to add this because it specifically mentions the autonomic system: https://www.livescience.com/56121-brainwave-balancing-hirrem-migraines.html
  13. zerohours000

    I made cake. In my pressure cooker!!!

    That’s a smart adjustment strategy!
  14. zerohours000

    I made cake. In my pressure cooker!!!

    Awesome. Looks great!
  15. zerohours000

    New neuroscience

    @EchoYes. It really is up in the air right now. Some things for me have gotten better (like sleep recently) but some have gotten slightly worse (like decreased stomach motility). So it’s difficult to tell. I’ll definitely let you know about HIRREM if I find a provider or purchase it outright. I just know it’s available in November.
×