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zerohours000

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About zerohours000

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    Boston, MA

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  1. @valizThanks for sharing. I have a constant twitching in my pinky and finger finger where they both twitch inward. I’m just hoping it’s not early onset Parkinson’s disease. Hope you’re doing better.
  2. Thanks. I had an EMG in June — normal. I guess I’m just worried about Parkinson’s. But I’ve alsi heard adult Celiacs can present neurologically. Money neuro already said it was BFS and I basically believe them. So it’s just the other one I’m concerned about.
  3. I don’t fall asleep until like 3:30 am. Thx. Im trying buy it’s so hard.
  4. My recent doctor told me he is leaning either rheumatological or neuromuscular. Neither sound particularly good. I have never been diagnosed with Dysautonomia so this is not a shock I suppose. My most recent symptoms are these weird muscular jerks before going to sleep, and only when going to sleep. But I do have a twitch now in my left hand hand, in my ring and pinky finger. A twitch in the sense that it bends inward to the palm, so twitches towards the palm. Could be nothing, overuse of my phone, or like the doctor said—neuromuscular. All very depressing. I’m only 33 and I feel just so sad like I already died. Sorry to be a bummer. Just feeling alone and bummed.
  5. Yes. It’s hard to know what’s causing what.
  6. Sorry to hear that. I don’t get tremors per se. I do feel like there’s an internal trembling or something. But I get a lot of jerks and twitches as well.
  7. @EchoYes---because my mother doesn't have PA but is deficient. Similarly, many with autoimmune are deficient. It's an easy fix but not so easy to catch. For example, I have HIGH b12 which could indicate my active b12 isn't being used whatsoever. But we'll see...
  8. My suspicion is that it's from some vitamin deficiency or possibly the dysautonomia itself --- even though everyone says it's not dysautonomia. So I'm very confused.
  9. How do you figure out if you cant absorb it?
  10. Does anyone else get like limb and body jerks? Especially while trying to fall asleep? I get them in my fingers a lot and then almost everywhere when trying to rest. Very weird.
  11. Just wanted to add this because it specifically mentions the autonomic system: https://www.livescience.com/56121-brainwave-balancing-hirrem-migraines.html
  12. @EchoYes. It really is up in the air right now. Some things for me have gotten better (like sleep recently) but some have gotten slightly worse (like decreased stomach motility). So it’s difficult to tell. I’ll definitely let you know about HIRREM if I find a provider or purchase it outright. I just know it’s available in November.
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