DizzyPopcorn

Bupropion is an antidepressant that stimulates. Ine of its primary side effect is anxiety and increased alertness, from what I understand. Both those can increase your blood pressure. What was your bp before starting the med?

Wow im so sorry to hear that. Glad you're still around. How the h*** did they nick your lungs???

Nicely said

Did your symptoms come back @MomtoGiuliana? I thought the b12 did the trick for your last flare

Wish i was wrong

And they wonder why people turn to alternative medecine and lose faith in doctors. Not all of them are like that of course. Many really try to seek their patient's wellness, but im telling you, they're just a bunch of money maker in suits.

Seriously, what the h*** is wrong with life on earth. It shouldn't be so fricking hard being alive.

What is the physiological reason for those to happen? I know its due to the dysfunctional autonomic system, but like, physically speaking : What makes the body release adrenaline versus X stimulus?

Were you perhaps a programmer or big data analyst before this happened? Your way of thinking is the same as mine. Im a software developer and worked on heavy databases in the past - data was something i loved, be ause you could predict trends with it.

Unfortunately, ive been doing this for the past 2 years. I had to convince my doctors that something was wrong with me. But at least before it was manageable. Right now im not feeling too well. My poor mans tilts are close to those of pots. It depends on the day. Sometimes its 20, sometimes its 40.

This is true. Weirdly enough, sometimes my heart is 105 (which is high for me) and i feel great. Other times its 90 and i feel awful.

Unfortunately im not from the us, so thats not an option for me. Im not rich enough to see anything on the us side. Im supposed to have a specialist see me in Montreal that knows about pots within the next tree months. Ive been waiting 2 already. It should be free as well. If this doesnt work or the doctor decide he doesnt like my face im pretty much dead. There will be no one else on my side to check my symptoms out. We dont have many autonomic specialists here. Ive already been to 3 different ER for my problems that got worse and all i got from them was : Its anxiety, it will pass with x pills Its viral, it will pass soon Go back to your primary care giver I even had one guy straight tell me "stop wasting my time and come back only if you feel you are anout to die. Before then, stop wasting our ressources" Wow thanks a lot doc. **** them all.

Some people just dont deserve their jobs. Your story is a prine example of it.

Title says it all... So tired of having symptoms and waiting for a specialist. Im still not sure if i have pots or something else and im feeling like crap. Waiting feels like an eternity. How long did you guys have to wait for a specialist?

What a ******* rude person. I'm sorry you had to experience that. Had i been there, i would've given her h*** even if my next 3 days would've been flared. Do NOT make this your fault. You didn't choose your illness or this situation, and nobody should discard you for what you are and what you feel. Some people just hate their jobs, and some people are downright evil. Usually i give them my thoughts, because they deserve it. You might want to consider adding security cameras in your home. Next time she wants to start an argument on your condition, you can report her for misconduct. No way this is the way you're meant to be treated. I'm again sorry that you had to go through this. Hope you have a good evening regardless

I also understand where you're coming from, but to me it's still a great discovery that they can replicate dysautonomia and revert it. Thats impressive.

While its true that the forum is 16 years old (and pots has only really been around since 1993 officially) i don't understand your last point. Are you suggesting that this study isn't new at all and they knew about it years ago? Treatments options are the same because the knowledge about the disease was still the same. Thats why treatment has stagnated. I still remain positive about it.

Why 50 years? It is possible to have a new drug release under 10.

Hi all. Following the study from dr. Grubb that i posted a week ago (pots has an autoimmun in 89% of the cases), another one on the same subject was published. This time though, it is much, much more interesting. They successfully caused dysautonomia (pots) in 8 rabbits (confirmed by TTT) AND reverted the process entirely (blood pressure and heart rate). Please read more here : https://www.ahajournals.org/doi/10.1161/JAHA.119.013006

Side story here, but about thinking of something wonderful, i had a bad night and for some reason thought of past summers where i was working on my car with the stereo blasting some good music and a sunny temperature. Those were the good times. It cheered me up because i think i can get back to that once i receive appropriate care

Thats totally ok lieze. I do that as well sometimes when im trying to find a pattern. What's important is to not get carried too much by the number.

Im not diagnosed for pots either atm, but i suspect it. I do not have a headache standing, but bending accentuate head pressure

Np lieze, in fact im sorry if i came a bit cold in my response. Its just, i know where you're coming from. I've done exactly what you did (up to calling an ambulance!) and nothing ever happened to me. I know its hard. Really hard. Try to ask for a xanax or ativan prescription from your doctor. That always help me in a pinch if i have a panic attack

Ok but i mean, i dont have EDS. Not that i know of. A csf leak doesnt just "happens" like that i guess?

Pardon me but, what does "biofeedback" means? Is it kind of like meditating?