DizzyPopcorn

I can comment on this point. As someone who has severe anxiety, I react to almost anything for no reason. Even the smallest noise. I know you say you aren't hypocondriac but in my case it does it even though I don't have any health issue (that I know of)

I'm pretty sure if you had closed a door on your arm you would remember the feeling. I closed a door on a finger and it hurts a lot. So if you think you're imagining this maybe it was a dream or you have a problem with your pain management system (whatever the name is), in my opinion.

500?! I'm no doctor but I think that's a false positive.

Yup I had an online appointment with him.

Will do. He's my cardiologist though because I take private appointments with him. My GPA here in Quebec says it's anxiety. So I had to go see someone privately

Funny you talk about York cardiology, because my cardiologist is him lol I do take walks but it doesn't really get worse after it.

You are right, I shouldn't sentence myself so soon. But I want to be normal, not "better". It's frustrating

I searched because I was suggested pots by a cardiologist. As for the heart rate I'm someone extremely anxious and I monitor my heart rate daily. I also had symptoms like cold legs etc

I searched for months to find *** was going on with me. I saw a cardiologist online in England named sanjay guppa. After explaining my symptoms, he told me that there was a possibility of pots and that I should pass a ttt to rule it out Honestly I don't want to be diagnosed pots, especially at 25 years old. I don't know if it's anxiety that is doing this to me or if it's something else. I just want my life back

Laying to standing : Sitting to standing : Im going to be honest, I've watched videos of people with pots and I don't think I have that. People with pots feel excessively unwell when upright, me I'm feeling most of the time a bit annoyed with the tachycardia and slight dizziness. Yesterday despite my heart rate in the 100 range, I stranded for an hour and half without issue other than my heart beating fast. However, my heart behave like someone with pots. But my blood pressure does not decrease, it actually increase when I stand. What's your opinion on this? Does your heart rate do the same? Is it possible to get a positive ttt and not have pots?

Mine does this too on the oxymeter, however please keep in mind that oxymeters aren't instant. They need 5 seconds or so to recalibrate to big changes. Movements can also falsify the data so you got to stay still when you do it. If you stand still and take your measurements, is it fluctuating a lot?

Oh I see. Apparently I ordered the CMS 50dl that does not have computer recording but worst case I'll record with my cellphone. Unfortunately other models were just not available on Amazon.ca Well I wish that they find the reason behind your low O2 then and that a CPAP will be enough to correct it if it's sleep apnea

How do you get a report like that with your O2 meter? I just ordered the CMS DL50 and i don't see an option to connect it through usb and get the stats.

I have trouble understanding. How can you not worry about your heart? Did you come terms with it? When I compare myself to others, I feel weak. Deprived of what I could do. Death scares me a lot. Pain even more. Do you not think that sometimes your heart could stop with all those palpitations? I'm sorry if I'm being too personal. Let me know if you don't want to talk about it. Gabriel

You are such a good person, thank you very much. I can stand for a while too and my legs don't turn purpleish. But some of my other symptoms are so bad that I can't stop myself from trying to find a problem to those symptoms. Once I was in the Er, and i saw an old person, maybe 80 years old. He was feeling atrocious. While waiting, I talked to him a little bit. He had so many conditions. Yet when I asked him if he worried about it, he said no. This puzzled me so much. How can people not worry about this stuff??? Even more so if it means death. You are right about what you say for my mother. She would hate seeing me like this just as I hate seeing me like that. But I can't bring myself to stop it. The reason being... I graduated in computer science. I'm an extremely logical person and enjoy finding solutions. I see my symptoms as a perpetual problem that no matter what I do, I can't find solutions. And until I either find the problem and solve it, my mind goes into circle of "what if". I waste countless hours of my day searching the web about medical problems, drugs and whatnot. I should not be doing that at 25 years old. I should be out there enjoying life. Instead, each time I come out of my car I feel dizzy. Each time I climb stairs it feels like ****. Each time someone invite me somewhere I exclude myself by fear of being a burden on others in case I faint. It is just not fun. Nothing is fun anymore. The only thing I do is sleep, eat, work, worry. Oh and be dizzy and tachycardia lol. I'm sorry for the rant. I haven't been myself for a while. Thank you very much for taking the time to reassure me. It means a lot. Oh and funny you mention Dr sa Jay. I know him from YouTube. I actually had an appointment with him last Sunday through webcam. It was him who actually talked about the possibility of pots and that i should get a ttt and a stress test. Have a good one Peter

Thank you very much for sharing graphs and all! Where do one would go to get such devices? Can i get them from amazon and the sort? My health anxiety has already took a severe toll on me, i take my pulse over 100 times a day (no joke, i can show you my history on my note 8). I also take my blood pressure fairly often. My 02 seems to be fine, always between 97-100, either laying down or upright. In fact, when my heart race, it seems to always go back to a 100. And thank you for my mom :). Sometimes i tell myself that at the very least she's not suffering anymore. Prior to her cancer, she had dealt with 15 years of algodistrophy. The pain she got was tremendous. She never complained about anything and was a very strong character, so for her to admit she had pain... It was probably intense. In any case, thank you for sharing with me, I'll take a look at those devices and see if they're not too expensive. Gabriel EDIT : May i ask why you dont consider yourself to have pots if your heart rate had a big jump like that from standing?

Well thank you for the help :). I have read other encouraging stories about people with POTS that can lead a somewhat normal life after diagnosis. Honestly... For a long time when i had severe anxiety, all i wished for was to be diagnosed with something. As to stop other from saying "it's all in your head, stop worrying". Nothing was worth than hearing this. Maybe i wished too much :|. Quick question, is adrenaline generally frowned upon for people with POTS? I'm an active gamer in competitive games and i would honestly be quite sad to lose the ability to play those. Can people with POTS generally sit for a while or is it different from a patient to another? Gabriel

Hi Momto, Thanks for the tips. I did see a psychiatrist a while ago and she simply "treated" my anxiety. I did it this morning and last evening. Honestly... I don't know what to do about all this. Last evening my readings were completely fine (after eating quite a big meal). Laying, blood pressure was 130 / 70 pulse 67. Sitting was about the same, 127 / 71, pulse 68. Standing, blood pressure was 135 / 80, pulse 81. Did not increase after 2, 5 and 10 mins. Stayed the same. This morning was a whole different story, however. In fact, it's been bad since i woke up. Laying down : 125 / 70, pulse 65. Sitting was same blood pressure, 80 pulse but after a while got down to 71. Upon standing, got to 100, pressure 135 / 82. After that i decided to lay down completely. Heart rate went down to 80 and did not go lower. Decided to take my "chances" and went from laying to standing still. It was horrible. Got chest dull feeling / pressure, light headed. Dizzy. Heart racing. Upon taking it, my blood pressure was 159 / 80, 115 BPM. Then got back down to 100. My blood pressure NEVER drops when i go from laying to standing. I honestly do not know what to believe anymore... Can all of this happens in a matter of weeks? I was fine last summer for sure despite the elevated heart rate. I could run and do everything i want. Right now im at work and i feel completely destroyed, tingles in legs / hands, wobbly head and heart rate is 90 bpm while sitting. I cried on my way to work and this isn't me at all. All i wish is to be normal again, not feel like being crippled by a disease. I'm... scared. I don't know what to do with all this. My next appointment is in 2 weeks and i'm not sure i will hold until then. I'm also not sure if this is anxiety that is really tricking me, or if it's truly POTS and i have anxiety on top of it. Sometimes i can stand for a while and be fine, even if i have a BPM of 100. I don't know. I'll have to get a tilt table test for sure. Hopefully my doctor will be cooperative. I will try to make it seems like i don't know what's going on. Thank you for taking the time to read me, Gabriel

Should I go from laying to sitting then standing? Or laying straight to standing? (or both)

Thank you, I will do that. I have an appointment with the doctor in 2 week. I guess aside of awful symptoms I shouldn't fear anything else? (from what I read)

I'm not sure if it's pertinent, but my mother had algodystrophy following an injury to her foot about 14 years ago. Does anyone here diagnosed w POTS also have a dystrophy syndrome? Just thinking out loud. I'm not feeling the best at moment so i'm brainstorming a lot.. Probably a bad thing.

Hello MomtoGiuliana, Thank you for taking the time to respond :). Do most people have problems while standing only, or they get symptoms while sitting also? I feel the same for the heart rate. On some rare occassion, usually when i wake up or lay down before bed, i have a resting heart rate of 63!!! I know this will sound stupid, but i'm so happy when it happens... Sometimes i wake up with 80, etc. It depends on the day I did read pretty much everything on the website already, but thank you for linking that page. I have bookmarked it for further use. May i ask you a question? I've had a few "experiences" last weekend and i'm unsure what to do about them. Do people diagnosed with POTS experience these symptoms? 1. : I shoveled snow for a good 3 hours last saturday. I do not recall getting ANY symptoms whatsoever, aside of seeing my heart rate increase. After being done and having a small rest, i took my heart rate standing and i was 95. Is a high heart rate standing at all time is indicative of something problematic? By contrast, my father, who's a fit guy for his age (57) had a heart rate of 70 when he finished... I feel like my heart is always working in overdrive, and i'm pretty sure i wasn't stress about shoveling snow... 2. : Went outside and had a jog / walk of 30 mins without any symptoms the day after. However, whenever i was stopping here and then to take my heart rate, it was never below 120bpm standing. After being done and resting for about 30 mins, heart rate was still laying around 90 bpm despite being in bed and not moving 3. : This morning i woke up and heart rate was 80. I quickly stood, took my heart rate (saw a little graph showing that i had a 10 sec of spike of heart rate, probably around 20bpm +) and then after that it returned to baseline of 80. I then took a shower, returned to the same spot and took it again... 80 bpm still. Did not move. I hear that POTS patient have a lot of problems with showering in the general. 4. : After the shower i took this morning, i was watching TV in a standing position. While standing, i felt after a while a "woosh / head rush". I automatically took my bpm and boom, it was sitting at 105 bpm. It did not calm down even after sitting or laying on bed. When i went from a standing position to a laying position, my heart reduced to around 90-95, but did not improve much. 5. : This morning i had severe dizziness at work with breathlessness. BPM was 100 while sitting. Standing did not make BPM raise that much more (105). Taking a klonopin brought it down back to 77. All i know is when i take a klonopin, i usually feel lots better and my heart rate return to baseline of 80. Thank you again for taking the time to read my situation, it is really appreciated. Thank you also for putting in place this kind of resources online for all. Gabriel

Greetings from Canada, First of, i'd like to apologize if this seems like a repeated question. I actually found this forum by typing on google "Anxiety or POTS?". After reading many posts, i am still left with many questions about my own condition. Also, i would like to mention that by NO means whatsoever would i ever downplay symptoms of POTS compared to my anxiety. I apologize if any take offense by comparing them both. A bit of background on my situation (shortened, because i don't want anyone sleeping!) : I'm a male of 25 years old. I have been living like a shell of myself for a good year. I've been diagnosed with GAD (Generalize Anxiety Disorder) following the death of my mother from cancer. My anxiety mainly focus on death / diseases. Especially anything related to my heart. Many tests have been conducted, including 7 ECGs, 2 echo cardiogram, 3 full blood work including cholesterol / blood sugar, Balance test, blood pressure. All were negative (fine), and my heart apparently is in A1 condition. However, despite all those tests, i remain tired, with many symptoms and my quality of life diminishing by the day. I am crippled by my fear of these symptoms. They are : Dizziness (standing / sitting), tachycardia, breathing problems (often comes with dizziness but not always). Shallow breathing, cold legs, fatigue, heart palpitations (especially sharp ones, feels like stabbing). Sometimes my heart palpitations feels like a drum playing in my chest. I do not drink. I do not smoke. I don't do drugs. ****, i don't even drink energy drinks / soft drinks. I only drink water, and for the most part, eat well and enough. Could exercise a bit more (i'm about 20 pounds overweight) but i'm quite tall so fat doesn't really show. My symptoms (especially my heart rate) seems to be worst when i 1) stand 2) kneel 3) bend. Right now, while typing this, my heart rate is 92 BPM. I'm sitting, and upon standing, will probably go to 100-105 easily. Now the reason for my visit is... I've read enough medical information that i probably know more about diseases than my doctor (exaggerating a little bit here). I probably know way too many medical name of symptoms. But i can't shrug the one thing that happens to me : When i go from standing to sitting, often my heart will race heavily for about 10 seconds, often in the 20-30 bpms, and will return to baseline after that. Usually it stays there unless i move or do something else. For example, say my heart rate upon waking up is 70, it would touch 90-100 for a few secs and quickly go down back to maybe 75. My blood pressure upon standing stay the same or elevates a bit more. Otherwise at rest, my blood pressure is 115 / 70 and my heart rate sits (most of the time) at 80. Now, what confuses me with POTS is the "on standing" effect on heart rate. Why is my heart rate bouncing so much and then settling back? Even if it's a few seconds, does it still count if its over 30? Do i have POTS? What if its 28. Not POTS? Most of the time i can stand for a while without any problem, but then again, i can't really be sure if its my anxiety playing tricks on me or if i truly have symptoms of POTS. Laying down on my bed this morning (when i was tachy with a heart rate of 105 while standing) did not improve it at all. It stayed between 90-100 while laying. I still had palpitations. ****, i still have some right now. Most of the time, taking a klonopin (prescribed by my doctor) ease my symptoms a lot, especially the heart rate. But i still get a bounce when i stand. I was suggested by a cardiologist to undertake a tilt table test, but i have to go through my GP. (and she thinks it's all anxiety, so it will take a fair bit of convincing to get the test) Thank you for taking the time to read me, and i hope that all of you can have a good day despite your symptoms. I honestly would trade all the money in the world, ****, even my car, to get my life back. Gabriel