DizzyPopcorn

Hey everyone! Does anyone have on here have any kind of reptiles? I do! 8, to be precise. I have : 1 Bearded dragon : Aurore. 2 Painted Agamas : Devil and Bandit. 4 leopard geckos : Kiwi, Rainbow, Sunshine and Midnight 1 Urosmatyx Ornata : La petite tortue "Translate to 'The little turtle'" I can share pictures if people are interested!

Thank you for the kind words. Even typing this while thinking about her bring me tears to my eyes. It was literally the worst experience in my life, because it was 1) the first time dealing with mortality, and 2) I accompanied her during her worst symptoms, alongside my father. I was the one to call 911 when she was convulsing on her wheelchair because of her brain tumor. I was holding her with me, crying just praying to whatever exists (im agnostic) frees my mother from her pain and problems. Unfortunately, the prayers were not enough and she had to die a horrible and painful death. 5 months before assisted suicide was legal in my country. Go figures. Sorry, i had to vent a little bit. I still have that one on the heart. In any case, if dysautonomia is familial, it seems that there's a good chance i was unlucky enough to have that gene passed to me :(. Hopefully not, but its difficult to think positively when you feel weird all the time. I thought this kind of stuff (death, medical conditions) only happened in movies. Guess they're real

Thank you from the bottom of my heart. How are you feeling nowadays after being diagnosed? Better? Anyway, yes my main problem is that im panicking / feeling nervous all day. Therefore, my appetite tanks and i feel nauseated all the time. I have not been diagnosed with anything. I'm in the process of changing Anti Depressants (from Lexapro, to paxil). I was on 15mg of lexapro daily and i think both the withdrawals of the lexapro and the new med (paxil) are causing me to have problem with my appetite, on top of having me nerves being pulled (constantly nervous). I'm scared constantly that my heart will stop because of my symptoms (high heart rate, etc) (despite having every heart related tests on the planet telling me otherwise). It has been such a long journey since the death of my mother :(. On top of all that, i'm crying all day. I truly feel like a teen girl atm (i'm not downplaying what it feels to go through these feeling as a young girl, just that its how i feel atm). I will do what you told me and try to not feel panic just because im not eating. I am in the process of pushing for neuro referrals at the chum (montreal research institute). Apparently there is a neuro there experienced with POTS and other form of dysautonomia (maxime lamarre cliché). Hopefully i get better soon, this is killing me 😐 In any case, thank you very much for the support and have a good day

Greetings all, I was just wondering, my mother had Reflex Sympathetic Dystrophy (Complex Regional Pain Syndrome) for 14 years, before dying in 2015 of cancer (terminal, metastasis). She finally rest in piece, pain free, because she was taking upward of 30 pills a day just to function properly. Still, her courage in difficult time and her rigid education shaped me to become who i am today, and i'm grateful for that. A lot. My question is 2 fold. 1) Can her death (which was a huge trauma for me (even to this day), both mentally and physically), cause pots? My symptoms began about 1 year after her death, day for day. 2) Can her form of dysautonomia mean i was genetically predisposed for pots or other form of dysautonomia? Thank you and have a good day, W

Hey all, If you've seen my previous thread, you know i've been feeling unwell for a few weeks. Since last weekend, i had trouble eating anything at all. I still keep up with water, but i know that skipping meals or not eating at all is not good, since i will probably start lacking minerals and go further into a negative feedback loop. My question is : What can i do to eat if i'm currently anxious and depressed about my situation? When i eat i sometimes feel full / nauseated. Thank you for the support and i hope you are all having a good day

Does allergies automatically equals an MCAS diagnosis? Or you need to have severe symptoms following the consumption of a certain item?

The main problem, i feel, is that i'm borderline on the heart rate response. My exercise response is crap too :(. But i will acknowledge with you that it might be something else. I'm seeing my GP this Wednesday and will push for more testing + neuro appointment.

You are far more courageous than i would ever be.

Wouldn't i fit technically in a "mild pots" case?

Thank you very much for the support ! While playing i got short of breath quite a bit and had to take a few pauses. Still, you may be right! I will have to consult again and push for more tests

Hi, yes i did today. Im seeing her Wednesday. I will push for a neuro referral. Right now im feeling better. When i crashed after trying to play badminton and being short of breath, i thought i was dying! But lo and behold im still there. Its just that ive never felt like this before, ever. When i was in college, i didnt have to pay attention to what i was doing and my heart rate was recoveting fast. Nowadays, if i push too much, it can take upwards of 30-40mins to recover completely. Just weird. Im standing atm, still. Heart rate is 92 and isnt increasing. No symptoms. But when i stand or bend, i do get symptoms. Earlier this morning, standing was causing dizziness. Upon taking my bp, both standing and sitting, it was normal. 130/80 Im feeling so weird

I just played badminton with my father and i completely crashed. Im fatigued, short of breath, nauseated. You mention getting checked for other things but, ive been checked extensively for heart related issues and nothing came of it. Echocardiogram, holter, you name it. I get symptoms mostly when bending and standing, and upon standing. Right now the shortness of breath has subsided but im not feeling so well. Ive been to the er countless time but they never found anything heart related either. I dont know what to do

Thank you very much yogini. I really appreciate it. Unfortunately this morning its quite rough in terms of symptoms. Im dizzy when standing and i get out of breath when taking walks. Yet, when i took my blood pressure standing (with my arm at the heart level) it was fine (130/79). Same thing sitting. Not sure what to do with this. Im still lightheaded all the time and tired. Anyway, thanks again . It means a lot

I think ill go to my gp again this week and require a neuro appointment. I cant live like this.

So if an echocardiogram show your heart as structurally healthy, does that mean that pots in general (heart rate wise). Does not pose a bigger risk than say, anaerobic exercise?

What other form of dysautonomia for example? OI?

I cried a bunch this morning. Now when im standing im around 90-95 bpm. 75-80 laying or sitting. Fortunately, i dont have symptoms once im standing. My doctor prescribed a new antidepressant so im in the process of switching to that one. Its a bit hard. Im shaking so much at moment Im so thankful this forum exists

I feel you 100%. It doesn't help that where i live, i can't really choose my doctor either unless i pay out of pocket, which costs a lot. I wasn't really that bad until i had this episode. I was more than able to deal with the few symptoms i had when standing from my chair sometimes or bending. But right now im feeling horrible and cant even sleep correctly. I do not feel like a 26 y.o anymore. If it wasnt for my father helping me and being so understandable, i honestly think i wouldve given up on life a long time ago.

I wish I'd get one but apparently its not required because i have anxiety. I swear, i think i could come up with actual stroke symptoms and they would still tell me its all in my head (i wouldnt do that, just saying as an example) . Once you've been labeled with an anxiety diagnosis, it seems you are done for. I should really ask for more tests

You mean 99 is being dismissed as normal?

Thank you for your concerns yogini You're right, but my temp is now fine. I took it this morning and it was also fine for a sleep temperature Right now im having insomnia. When om falling asleep it feels like im losing consciousness and gaaping for air. My anxiety is through the rough. Both my oxygen heart and bp seems fine... I have nausea also. Im so tired but cant get to sleep. Aaaaaaaaa this is so annoying

Hi all, sorry for acting this way. I think i had a panic attack at work. I went home and feel better. Took my temperature and its 98.6! Ugh. My body is aching all over the place and my legs feel hot. I dont know whats going with me anymore. If its even real... Does that make sense? I wish you all have a good day, i think im going to nap for a bit...

I'm starting to feel tired and weak again... With the cold... I don't have access to a thermometer for the next 3 hours in order to check my temperature. Should i go to the ER? God this is awful.

That seems pretty logical actually. Its an Oral thermometer, cheap one from the local pharmacy. I could probably get a new one and check the temp with that one! I really need to push more. The problem is, i often have the urge / feeling to cry when talking about those subjects and they automatically label me has having depression / anxiety. But that is not the frickin case!!! I'm just so tired. I just want my old's life back!

@MomtoGiuliana Does my HR change from sitting to standing => Yes, but not a huge increase compared to other members here. 10-20 beats at most, does not increase indefinitely and i can walk fine. My symptoms are not really worse on standing, i'd say. I do get an increase in adrelanine standing though, but this has changed a lot since i take an SSRI Have you had a tilt table test => No, because i need a neurologist for that or a cardiologue, and for that i need a reference from my GP. And my GP have said that there's no problem, therefore no need for tests. Can you have your general practitioner check your hr and bp sitting and standing, at least? => Well, i did tell them what it does when standing, but both the increase and adrenaline shots seems to fall in the "i am just anxious" or "that's just the way it is for me". Right now, what scares me the most is my temperature. I'm at work atm and i'm just shivering. Feeling unwell... but generally "ok". I can function.