Jump to content


  • Posts

  • Joined

  • Last visited

Recent Profile Visitors

946 profile views

Stephanieann's Achievements


Newbie (1/14)



  1. I can totally relate. I was diagnosed with panic attacks as a teen. As I got older it still bothered me but was better. After the birth of my second son, Well during my pregnancy even, I had full blown POTS and now am questioning if this is what I had all along, or if it was anxiety or both.
  2. Resting/sitting heart rate around 85 Standing 95 to 110. Activity like walking/ housework about 110 to 125 And that's with a beta blocker
  3. Has anyone had any success with a low dose SSRI to help your sleeping patterns? I seem to be on a 36 hr awake binge then sleep a day, then up 36 hours again. I feel like I have too much energy. Only good thing is I'm not freaking out/going all doomsday yet. I am on trazadone but seems to have stopped working. My Dr that handles my pots isn't much help in the sleep dept!
  4. I have been on propranolol for about 6 months. My blood pressure was always on the high side but a small dose doesn't change it too much for me. Its been great to keep my heart rate down and help with some on the anxiety feelings. No side effects, though I handle most meds pretty well. I also went through a bunch of different tests when first diagnosed. Tests on my adrenals, etc, because I was having symptoms that could be related to a problem with them but nope, all OK, just POTS. Hope you feel better soon and the propranolol works for you.
  5. I can function decently on 6 to 7, maybe I'm used to less sleep (finally) with two young kiddos? Lol. Before my second son was born, I used to sleep a lot and it was never enough. I was always tired. Now its like the opposite. I have more energy...except when the insomnia kicks in.
  6. No need to apologize. Many of us have probably been there. I know I have. If you stop checking your pulse, how do you feel? If you feel something that is that concerning, maybe take a trip to the er? If anything let them know you need help. There are ppl out there to help.
  7. I'm surprised they didn't say anything about your blood pressure! Mine wasn't happy when it was 140 over something. Have you seen any specialists? Have they caught any symptoms happening while in the office visit? It's a long hard road for diagnosis, unfortunately. I almost passed out in the hospital lobby before they took me seriously!
  8. On the weak pulse, mine does that from time to time. It's a nervous habit for me to constantly check it and I'll notice right when I stand up that sometimes I can hardly feel it. It's hard to believe the doctors and nurses when you feel like your body is failing you. I know it. And sometimes our mind is our worst enemy. Hang in there, deep breaths. Easier said than done but it does get better. I do know that much.
  9. I get the forceful heart beats Almost every time I lie down. It was actually one of my first Pots symptoms. Yet my heart is 100% a OK they tell me but I would mention and get it checked out to be sure, but more than likely its just a pots thing.
  10. So I always used to picture insomnia as being wide awake staring at the walls all night, yet that's not the way I really experience it. It's more like my body will go back and forth between being drowsy, that first stage of sleep where you are unaware of everything yet aren't in a deep sleep, then being awake over and over until after about 2 am. Then I'll go into a deeper sleep for a few hours. Almost like my body won't let go all the way. It tries but fails. Anyone else experience this?
  11. Why do we all have such a hard time with it?. Its like I'll feel tired and get into a twilight type sleep but wake up in an hour or so and then I'm panicked and wide eyed all night long. Is it part of dysautonomia? Because its horrendous. I was always an awesome sleeper as long as I was at home in my bed. Sleep was like my getaway. To have that taken away has been very hard to handle. I'm taking trazadone and just started a new antidepressant and I have ativan that I take after my long bouts of no sleep. Hopefully I can get it regulated. I've kinda developed a sleep phobia too, lol! Good to know I'm not alone though, even though I wouldn't wish this on anyone.
  12. So I can't sleep again. Not a wink last night, as hard as I tried. Going on more than 24 hrs of no sleep and my mental and physical health is sure suffering. I had this last summer, got better, now creeping back the past month. Does anyone else have insomnia this bad? I can't tell if its from pots, depression, anxiety, all three. I know autonomic dysfunction causes sleep problems, but the thought that it's from pots and that something is wrong with my brain that it won't shut off is causing crazy anxiety. Sigh. Hoping this too shall pass soon.
  13. Yes, I experience weak legs too sometimes. It was worse when I was on gabapentin, so sometimes it could be a med side effect. Sorry you are in the hospital but glad they are helping you. Hope you feel better soon!
  14. I have a lot of sleep issues and naps make me more symptomatic upon wakening so I try to avoid them. Everyone is different, though. I noticed that sometimes you have to experiment and see what works for you.
  15. @negiduck, yes,I have had a sleep study. Nothing abnormal was found. Sometimes I wish they'd find something! Lol. @TCP, yes, exactly. It happens when I'm dreaming too. Like I woke up from a nightmare but they are just normal dreams.
  • Create New...