LisaColumbus

I never had to have a c section but I did have to be induced multiple times with all three of my kids. My shortest time laboring at the hospital was 16 hours, the longest was 26 hours.

If you can't stomach the products that were mentioned previously (I couldn't), you might want to try Carnation Instant Breakfast. My doctor recommended that since I didn't like the other products.

I started Celexa a month ago. My dosage is 10mg. I started with that dosage and am remaining at that dosage. I am very med sensitive and also very petite. This is one of the first meds that have caused no side effects for me.

I started taking Ramelteon about 3 weeks ago. I have found that it works really well on an empty stomach. If I have eaten a meal a couple of hours before going to bed, it won't work for me.

That is the dose I started with and have remained with. Is your doc also having you take potassium supplements?

Wow Jacquie, your fatigue issues sound exactly like what I have been dealing with for the last couple of years. I recently started a medicine that seems to be helping me get to sleep at night. It is a form of Melatonin and is not addictive like many sleep meds. It is called Rozerem. It works pretty well as long as you haven't eaten for a couple of hours before taking it. You can Google "Rozerem" for additional info on it. I was also on Adderall a couple of years ago and that seemed to help give me energy throughout the day. I hope you find something that works for you.

I sent every last bit of it, however I did put the tests with results that proved the symptoms and/or diagnosis on the top of the pile.

Hi Daniel, good luck with your journey into SSDI. I was just approved this week. I agree completely about getting copies of all of your medical records together. Also, be sure to keep copies of everything that you send to both SSDI and your LTD. Before you have your phone interview, I would make a detailed list of your symptoms with specific examples of why those symptoms make you unable to work and lead a normal life. I tend to be very forgetful and having a list in front of me helps out, it will also come in handy when you are filling out some of the other forms they will send you. Good luck to you, I'm available via email and will try to help as much as I can.

Good luck to you Amy. I hope you hear positive news soon.

I think what helped me most was the fact that I had extensive and detailed medical reports from Dr Grubb, Cleveland Clinic, a local EP doc and my family doc. I think I had most every test run known to man lol. I got copies of all of my medical records prior to filing, so I didn't have the additional wait time while SS tried to collect med reports. I was also very detailed on the fuctional abilities report when telling about my limitations. That was very hard for me. I have always been a very stoic, hard working, no complaining type of person so it was very difficult for me to tell what I can't do, I felt like a whiner while I was filling it out....but it was necessary. I also made the main focus be the arrhythmias and the hypovolemia and the symptoms caused by those. If you have any questions when you start filing, email me and I can give you some examples of how certain things were answered.

It certainly would be nice to get dysautonomia's on their conditions list. So many don't have the appropriate medical documentation and it makes getting help, nearly impossible

I'm glad you found a great doctor to help you with this. As far as the meds, I recently started taking Celexa and it has helped. It is the only anti depressant I have ever been able to take without severe side effects. I was on Midodrine for a few weeks. I had to stop taking that because it gave me severe, constant headaches. I hope it does the trick for you.

Hi all, I just wanted to let everyone know I was approved by Social Security! On the first try. Maybe things are finally looking up for those with our conditions. Good luck to all still going through the process!

I probably walked right past you Patti. We left about 2:50pm. I was the 5'4, light brown haired person carrying an armload of MRI reports

I'm not scheduled to go back until September. That will probably change though. I am going to try and coordinate with my sister and her appointment, so we can both go up at the same time. How bad was the EMG?

Awwww I'm sorry you are stuck in Cleveland. I hope your med. issues get cleared up enough for you to travel soon. I would have loved to have met you while I was in Toledo.

Thanks for the well wishes Ernie. I agree that Bev is fabulous. We went through my list of issues one at a time, she addressed each issue as it was brought up. Nothing was overlooked. I was asked if I wanted my next appointment to be with her or with Dr Grubb, I requested Bev.

Congrats to you! What an accomplishment!

Bev wrote prescriptions for all of the tests that she wants run. Hopefully that will be all I need. If not, I will take the prescriptions to my local family doc and let him call and order the tests. Luckily, I don't need prauthorization with my health insurance company. As Bev was prescribing the meds she was looking at the details of each at some medical website. I had a severe reaction in the past to Wellbutrin so she was being very careful to avoid similar meds. Before I start taking any new meds I always check for interactions and also ask the pharmacist about it.

Well I am back from MCO, oops I guess it is now called the Medical University of Ohio. I had my appt. with Bev. This is my second time seeing her and I must say, she really impresses me and is very thorough. Anyway, I am home and have a whole stack of prescriptions and orders. My new drug regimen will be: Cerefolin-for cognitive impairment Ramelteon-for sleep issues Mestinon-continue Florinef-continue Celexa-depression Baby Aspirin-continue Actonel-continue for ostopenia Calcium-continue Potassium-continue Protonix-continue Multi vitamin-continue I also have to have the following tests run Chest Xray-for breathing difficulties Repeat Head MRI-arteriosclerosis and follow up for earlier possible aneurysm Bloodwork-lipid levels/liver enzymes/TSH/CRP Cranio Cervical Massage-for the pulsing feeling I have been having in neck and head Stress Test and it looks like it says "Myoview? underneath it Bilateral Knee Xrays-to check for osteoarthritis Rheumatology workup dependent upon the knee xrays Now to see how much of this I can get done before the end of the year since I have met all of my out of pocket already.

Hi Morgan, I just wanted to let you know that I had an ablation done in June. It didn't help, but it hasn't made it worse either.

Thanks for the tips. We don't have a real destination in mind yet. I have been doing my travel searches based on the generic "Caribbean" descriptor. I just want it to be someplace warm and sunny

Hi all, we are trying to plan a vacation get away and with my mobility and activity level being seriously reduced we thought that a cruise might be the route to go. I am concerned that sea sickness might be an issue. I have never been sea sick before but I have never been on the water for longer than 8 hours either. Has anyone done a cruise? Was it a good experience or did it exacerbate the symptoms? Thanks for any advice you may have.

I hope your ablation continues to be successful. Unfortunately mine didn't help

I agree that the acronym sounds pretty goofy. However, I don't think the name should be changed. We struggle enough trying to find doctors familiar with this disorder. Thankfully, it IS becoming more well known, changing the name would make our struggles that much more difficult.