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  1. well, that sucks, gosh! hope you feel better soon i cannot tolerate many antibiotics. for some reason they make my brain turn to "mush." i feel incredibly disoriented and dizzy. it scares me the thought of taking any at all. i'm glad u can tolerate them.
  2. if you can get the shots without epinephrine, i would highly recommend that. not sure if you need to be sedated for this procedure, but the less meds i'm given, the better. i've had reactions to crowns, i can see why you'd be worried. keep us posted.
  3. ^ good point. And all the docs were like, strep is so easy to kill!
  4. I agree with Rich. I also question the symptoms this improves. Seems logical that if heart rate is your biggest problem, exercise may be a better option than for someone else whose symptoms aren't all heart-rate related. For example, neuropathies, cerebral hypoperfusion, low blood volume, Etc. (I didn't read all of the report). I got a copy of Levine's protocol from a well-meaning doctor. I can't even get into the target HR zone for the workout! I do work out, though, in a lower HR zone. The last thing I need is a doctor telling me I'm not getting better becs I'm not working out hard enough. One of my doctors now says go swimming. Apparently the recumbent bike isn't good enough. No matter what I do, it's not good enough. What Rich said about being in the best shape of his life resonates. What do hear doctors want from us? Exercise as a cure just gives them excuses to tell us it's our fault we aren't getting better. At least, where I live. EVERY doctor I have seen in my state thinks this is the be-all end-all solution to my problems. I have had three renewals of a 3-month physical therapy contract, plus exercising on my own on and off for the past 5 years. Yes, exercise helps me to feel better sometimes, but it hasn't cured me by any means. My biggest problem is sensations in my brain. I suspect I have some sort of problem with the blood vessels over-tightening, or some other problem up there. It's definitely a brain thing. Idk how exercise will change what's going on in my brain. That would be nice, though. Is there any research that shows exercise changes the brain's ability to regulate blood vessels or volume? I don't discourage anyone from exercising. It's a great thing if you can tolerate it.
  5. For anyone curious, I ended up not taking any more antibiotics. I just could not tolerate them. My glands and throat eventually got better, but it took almost 2 months. None of he doctors I've seen acknowledged the effects of the antibiotics. They wanted to blame it on the steroid, although I know that wasn't it. I am now having chest pain that doctor suspects is inflammation due to the previous strep. He says it's not serious and to take Aleve.
  6. Can I ask how much this costs for so much testing, even with insurance? I have insurance, but this sounds like it could go into the thousands. PM me if you'd like. Thanks!
  7. Woah. We need to catch up. I actually had just sent you a PM.
  8. What do you do if you can't tolerate the antibiotics though ? I am having what feels like nervous system issues with every one I take. I have had 6 prescriptions. Also, the last one had made me so dizzy I feel like I'm in a full-blown relapse now.
  9. Btw, my throat is not sore anymore, but my glands and sinuses are swollen.
  10. I could not tolerate the clindamycin. Felt like I was dying. I saw another doc who said to get off all antibiotics for now. Rapid strep was negative, but he did a culture. I'm not sure what's going to come back, but I'm very concerned about not being able to tolerate any of these antibiotics. I could not even white-knuckle it, even with sedatives.
  11. Yeah, of course when I went back today, the rapid test was negative. What kind of doc would I go to for the proper tests? An ENT? I have 2 scripts. One for Amoxycillin and one for Clindamyacin. I'm debating which one to take. The doc told me to just white knuckle it with the side effects and gave me some Xanax.
  12. So here I am on the third week of strep throat. The problem is, it won't go away, and, of course, every antibiotic I take severely messes me up dysautonomia-wise. The first course got rid of most of the infection, but then it came back. The second antibiotic, after taking 2 pills, made me feel "crazy," like a zombie, and like I wanted to jump off a bridge. The third antibiotic made me also feel like a zombie, but then I got burning/prickly/tingling sensations in my legs, burning feeling in my chest and profuse sweating and agitation. The side effects have been worse than having strep. I am afraid to take anything. Would you keep trying drugs and push through the side effects? Even if it feels like it's going to break your brain? I don't know what to do at this point. I've had 2 shots of Rocephin, and it's barely touching the strep, and with each shot, I get dizzier. It's to the point now that it's hard to walk without symptoms. I've been working from home and taking some sick time, but at some point, this may end up in an FMLA situation. I'm worried that I'm going to end up out of work or in the hospital. Any insight? I'm in a bad way.
  13. Anyone know of this is safe to take from a heart perspective ? I've been reading if you have heart problems it's not good. I've always had normal EKGs but I do take a beta and get tachy so I didn't know if this would be considered a true heart problem.
  14. What does it mean when you have OI with high norepi levels but not the classic tachycardia ?
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