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Everything posted by Racer

  1. Went from able to work to housebound over a year. Most of my days are spent in bed now
  2. My original reply was "I drive", but since then my drivers license was forcibly taken from me. I really feel that I can drive, but I would need to provide proof to the state that I am totally cured before they would think about giving me my license back. It is really depressing to me, because I used to travel so much before. I haven't left the house to do anything fun in a year. I just spend all my time siting in my room now.
  3. The last place I would think to find a "pro tanning" thread. I would suggest, http://www.skincancer.org/healthy-lifestyle/go-with-your-own-glow or if you must go old school, http://www.skincancer.org/healthy-lifestyle/tanning/sunless
  4. They would most likely check you with a pulse oximeter, and probably give you a breathing treatment. I get minor cases of asthma caused by pollen allergy. I dont wheeze, but tend to cough and gasp. Between fits of coughing and gasping, you wouldn't know I am having a attack. The few times I have went to the er for this, I told them what was happening, what I needed, got the breathing treatment, symptoms resolved and I went on my way. Never had a problem getting treatment for this.
  5. "RAVENOUS for food!" I haven't really been on midodrine long enough to notice any weight fluctuation, but it does make me very hungry! I cant eat in the morning (I vomit it back up) so I get awfully hungry by lunch time with the midodrine. I take 5mg twice a day
  6. During one of my EP visits, he warned me of the possibility of needing a ablation or pacemaker. I don't think I will need either, I came to the conclusion I would skip having the ablation and only consider it or a pacemaker if it was absolutely needed to save my life. I dont have a answer, just want to say I can relate. I have been trying to get back to exercising, and I have been experiencing a bunch of arrhythmia as a result. I only get tachy when standing (during a bp drop), and normally have a low bp (100/70 with midodrine) and low resting hr. I tend to experience arrhythmia at rest when m
  7. Just a thought, for most people posture is what leads to cramping (including athletes). If you have been siting for long periods (slouching in a chair?) this can lead to that sort of cramping. If you assume the same position to soon after a cramp, it will come back since you haven't stretched the muscle long enough. Not saying posture is the problem, just saying it is something to think about.
  8. Nature, wildlife photography, photoshop, exploring, traveling, bicycling, computers, web design, reading, science.
  9. I get diaphragm cramping while exercising. The pain is extremely intense, and like you explain, it makes it really hard to breath. Believe it or not, this sort of cramping is common among athletes, especially runners. If you look up info about this on sports related websites, you might find techniques to use to stop the cramp. A techniques that helps me... I tilt my head up, arch my chest out (opening up the diaphragm), and grunt as hard as I can grunt! You will look really goofy doing this, but it is well worth the pain relief if it helps!
  10. Are you frequent in the autism community? My experience being active in the autism community, is that these parents are in the minority. Parents want to do the best for there child, and usually spend a endless amount of time doing there own research on the subject. As the debate shifted away from vaccinations some time ago, so did the opinion of most parents. The current trend among parents seems to be one of autism as a symptom of a underlying condition. These parents are finding doctors who are able to diagnose many of these rare conditions, and in many cases with proper medical treatment, t
  11. My opinion, I dont think the revisions are going to change anything. Add the new "social communication disorder" (basically the mildest of aspergers) and even MORE people are going to be diagnosed. A diagnosis could help you with sensory issues, or stuff like social skills issues. You will have a hard time finding any doctor willing to link a autism dx to anything medical though. It actually makes it harder for many people to get any sort of medical treatment. In many cases with autism/aspergers dx, the person better be prepared to PROVE something like pots to doctors, since they will now tre
  12. Do a search on "sensory integration dysfunction" or "sensory processing disorder". Currently it is not officially considered a distinct diagnoses, but is considered a symptom of many different conditions. Most people are sensory sensitive to certain sensory stimulation. Example, most normal people cover there ears to hearing nails on a chalkboard. I guess it all comes down to severity. Many people with autism are head banging and self injuring to distract themselves from the pain the sensory problems are causing. My understanding is that Temple Grandin experienced the more severe end of the se
  13. Found a interesting study done on this (I wont pretend to understand any of this ) http://www.ncbi.nlm.nih.gov/pubmed/19043581 This link says that the Mitochondrial disease is known as "OXPHOS". Of importance might be the references at the end. http://www.mitoaction.org/files/Autism-OXPHOS_1.pdf
  14. How about a "other" for the third question. It hurts my head (bad), but I wouldn't say it feels like it is full of blood. I just always guessed that it has to do with BP fluctuations in response to posture changes.
  15. I was wondering if this topic would ever pop up on this forum. I feel like I am a expert on this topic. I hear people asking this same question all the time, and I always give this simple response! Ask yourself if you consider your autistic traits to be disabling or not? If you dont consider them disabling, then what would you possibly want to get out of a autism label? If you consider it disabling, then you might have something to gain from a diagnoses. A autism spectrum diagnoses is only useful if you want to get treatment for the set of issues that falls under this dx. Outside of treatment
  16. Just found these doctors listed on a dysautonomia website, might be worth a try, Dr. Michael J. GiulianiUniversity of PittsburghDept. of Neurology325 Scaife HallPittsburgh, PA 15261Phone: (412) 687-5424Dr. Susan Baser, M.D. Allegheny Professional Building 490 East North AvenueSuite 500Pittsburgh, PA 15212Telephone: 412-359-8860Fax: 412-359-8809Specialty: Neurology, Movement Disorder, Shy-Drager Syndrome
  17. I am interested in the same thing! I live about a hour outside of Pittsburgh, and am trying to find a doctor in my insurence coverage area. If you dont mind me asking, what insurence do you have? Have you tried UPMC? I am trying to determine if UPMC has any doctors that would be helpful. It might be worth a call. Sorry I dont know any doctors to suggest, but I will sure let you know if I find one!
  18. I drive and I am a fainter ! I got **** from doctors before for driving, but I only have fainting episodes upon standing, bending over, and standing for long periods. I dont see a reason why I shouldn't drive.
  19. I dont have pets I wish I could, so instead I enjoy wildlife, and photographing them. Having numerious wild friends that accept my presence on a routine basis, I find profoundly theraputic.
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