Sheila1366

I have been doing this for some time now and have posted the same question. I also have gastroparesis and think it has something to do with the blood rushing to my stomach and trying to get it to empty. I have noticed since I am on mostly a liquid diet ( sometimes I will have a baked potato or peanut butter crackers ) that feeling doesn't happen as often. But if my stomach gets very full, and it doesn't take much for it to feel that way, I will get very , very tired and have actually had to go to bed cause of the extreme fatigue.

I get that kind of sensation too but along with it I will have hearing loss in both ears for a short while. It will come and go all the time.

Was wondering if any others have had this problem. When I am usually very sick from dysatuonomia and gastroparesis I get very tired, near fainting. When I got to bed and try to rest I will get this rush of like adrenaline that will hit me right as I am about to drift off to sleep. Does it all the time. Even if I am just resting in a chair, closes my eyes cause I am so tired, I will get this rush. Does this happen to anyone here and do you know what it is?

I feel this way all the time, all day. I feel faint all the time. Sitting, standing...doesn't matter. Get pressure in my ears and then can't hear very well. Losing weight thanks to gastroparesis. I feel so vary , very bad. I can barely function.

I have been waking up on my right side or left and the other side I will be numb in my hands and fingers. Today I woke up and both my pinkies were numb and I was on my right side. has anyone ever woke up with numbness in your hands and it not be on the side you woke up on?

I was seeing a specialist in NC but she is on medical leave and doesn't look like she is coming back. So I was sent to Vanderbilt in Nashville Tenn.

I have checked my blood sugar today and it is not low but I feel so faint all the time. I feel pressure in my ears and hearing gets worse. I am getting much worse. Losing weight fast. Can't see my motility dr. til Sept. and Vanderbilt is end of July. I am very scared. I never thought I would get to this point. I feel like I am not going to make it much longer.

Haven't been on the board in a long time. Things have been very stressful at home. My health has gotten so bad. Gastroparesis is getting worse and I ma having the worst time now with extreme fatigue and near fainting all the time. Today has to take my daughter to the dr. ( she goes to Duke all the time ), husband drove us. And I just knew I was going to end up in the ER. I could barely keep my head up, was so very , very weak. I have been dehydrated and just finished another round of antibiotics from a bladder infection. I am set to go to Vanderbilt in July to the autonomic center. Had to change my appt. from Jan. of this year due to my youngest daughter being very sick. Can anyone tell me about the fatigue you have and the fainting spells? I feel faint all the time. I am barely able to get in fluids now. I have hypoglycemia also and it has been running very low. My GI dr. and pain dr. are sending me back to my motility dr. for help. They are at a loss. With the pain and nausea getting worse, I am losing weight fast and feeling so very, very bad. Scared of how bad I feel and how little the dr.'s know what to do with me. If I even went to the ER , what would they do. I went to the ER a few months ago feeling this bad and they did nothing but give me fluids and send me home. I did have an abnormal EKG in the ER and had to have an very exspensive test to see if I had some blockages. Hope I have made some sense. Sorry, I am very weak and not able to do focus very well.

I have gastroparesis and I fell for you. The bloating and nausea...pain is so bad. The bloating could be due to your colon slowing down. I have to drink miralax everyday...3 to 4 doses or else I will develop a blockage that is very painful. I stay away from any raw fruits or veggies, nuts, pickles,popcorn, wheat, meats. I live off of chicken noodle soup broth, boost cause it is lactose free, water with MIO mixed in cause I stay very thirsty and saltine crackers. I use liquid phengran for nausea. The bloating for me happens sometimes as soon as anything is in my stomach, looks like I am carrying twins sometimes. Heating pad helps with the pain. I stay away from caffine just due to my bladder issues. Do you have GP? Some people I know have a stimulator put on their stomach to help it empty and helps some with their nausea. Have you got a motility dr. to help you? I am down 80 pounds so far. Good thing I was heavy or else I would be on a tube by now. I am losing weight again, on my 5th day of 1 boost a day and very small amount of jello...oh I do eat jello. I do have a great nutritionist too. If I need help she is there. Love that! Bless you honey, pray that things get better for you today.

I just got a tank a few weeks ago. I have to use mine during severe pain episodes and when my nausea gets real bad. I have trouble breathing often these days, so the oxygen is very helpful.

My gastroparesis is getting so bad. I go Friday for a celiac nerve block in hopes to help with the pain. On my 5th day of barely any kind of nutrition other than 1 boost and a little jello. Fatigue is unreal. Last night I drank my usual 4 doses of miralax and due to the fluids in my stomach, blood rushed to my belly and I went out. The near fainting spells are getting down right scary at this point. My husband is fireman and works 24 hour shifts and then off 48. I so fear fainting while I am here alone with my special needs daughter. In my city the police and fire dept. gave out emergency labels you can post on your doors to let emergency responders know there is someone in the home with a serious illness or has special needs. They give you this form to fill out about all your medical problems, meds. and emergency contacts. They said to put it on the fridge, so I did that yesterday. Can others that have gotten worse please share with me how you cope physically. I am very spiritual and have a close relationship with God. Emotionally I am doing better cause I just trust in God in all things, but it is the physical attacks on my body is the true challenge for me. The heart rate that drops, the blood pressure that goes up and down, hypoglycemia getting worse....just everything. I go to Vanderbilt in July. Had to postpone that appt. from Jan til July cause my daughter was too sick to travel. She has been very sick for 5 months now. The stress of that has had a serious impact on my declining health I fear. Sorry to do nothing but complain. I am blessed in many ways and thank God for all that I have. I am just so tired physically and the pain, dizziness, near fainting all the time....is just so scary.

had a terrible spell Sat. night. Felt the urge to take a deep breath, then over and over then my breathing slow down to nearly stopping. This went on for 30 minutes or more. Finally I was able to get it under some kind of control that I was able to get in bed. I was out of it for awhile. And very afraid to sleep. My breathing was so shallow. I have had trouble breathing before when I am real sick with my gastroparesis. Have often felt I would stop breathing.The next day I slept alot. And even now I will get that feeling to take a deep breath but I try and relax when it happens. Is this what is called "air hunger"?I go to Vandy jan. 24th. My dr.'s think I either have PAF or MSA. I know with both of those breathing is a real issue.I pray it doesn't happen again. I didn't go to the ER cause my daughter is still very sick and we can't have me in the hospital ontop of her being so sick. I prayed it would stop and it finally did. Just pray it doesn't happen again.

Lately I have become so very tired, more than usual. I will be on the couch...close my eyes for a second and be asleep but I will wake up cause of the intense feeling I am gonna throw up. Also when real bad, i am afraid i will stop breathing.

My pain not only in my stomach but it is getting worse all over. back,shoulders,neck. My sking even hurts to touch it, rub a wash cloth across it, shave my legs. Today the fatigue was so bad. I had to take my daughter to the eye dr. cause she coudln't drive after they dilated her eyes. While waiting on her I went to the bathroom and almost had to lay on the floor cause i could barely keep my eyes open. Afterward I went and got some sweet tea to drink for the caffine. Not suppose to have caffine and tea make me sick to my stomach but I need to wake up. Pain in my hands is much worse. What do others do for their pain. My pain dr. just increased my BuTran pain patch. She gave me that for my gastropareis pain. It has not help at all. Thanks for the help.

My near fainting spells are getting much worse. My head feels like it is under pressure, feel disconnected, sick to my stomach and very tired. Face goes numb. Yesterday while lying in bed, if I had my eyes open it felt like my face was being pushed into the pillow.SO weird. On a good note, my daughter who has been very sick since early Sept. is doing better. I fear the stress I have been under since she has been so sick could have made things for me much worse. But I would trade anything I have for her to get better. Been alot of work. We have repsite coming in to help me now, but she is getting better and won't need the help for long.

Right now my biggest problem is the motiltiy disorders...gasrtoparesis and colonic inertia.

My pain dr. is awesome. She really understands my gastroparesis and colonic inertia pain. I was using tramadol that use to help. Now she has me trying the BuTran pain patch. I am on the lowest dose. I am still in lots of pain. Calling tomorrow to let her know. Last time I saw her my BP and HR was real high cause of the pain. Wonder if this has helped anyone else?

That may explain what happened with me this week. Had to take my youngest daughter to Duke hospital for a dr.' visit. I was already feeling awful thanks to dysautonomia and gastroparesis. But after being in the hospital for over 3 hours, these wonderful flouresent lights everywhere. The next day I am still so tired I can barely do anything, arms were super weak.That was Tuesday and not til today did i actually get to where I can function a bit better.

Things have been worked out. She is having a tough time with her depression I find out, so that explains her emotional email. I still find it a bit hurtful cause I have often given her space when she was struggling and never made her feel guilty for not emailing for a few days. But it's all good. She is a good friend and I do care alot about her. She does understand how sick I am, I just think she is feeling really depressed right now. So, trying to give her a bit more attention when I can. That's what a true friend does, it's a give and take. Thanks for the support everyone and advice.

I got an upsetting email today from my closetest friend. All my friends are on line. I have been a stay at home mom many hyears and the primary caregiver of my special needs daughter, so I am very much out of the loop with friends at home. I became close freinds with this woman through a support group for depression. have known each other for many years. She lives very far away, Wales and I am in NC. We talk by the phone often and send lots of emails. But since I have gotten much worse and things at home have gottne more stressful, my youngest daughter is very,very sick....I have not be online as much..emails,facebook etc. SO she thinks I don't care about her anymore, wants to know what she has done to make me stop talking to her.I sent her an email a few weeks ago telling her I was very sick, but would love to read how things are going. Just too sick to do alot of typing. Anyway, she thinks I am mad. I hate to think of losing her as a friend, but I can't keep up like I use too. I can barely read right now cause my vision has gotten so bad recently not too mention just everything getting worse...gastroparesis,colonic inertia,pain and nausea,dizzy,vasovagel all the time....and now drama. How do you handle stuff like this. Hate to lose a friend over this illness, but I Am burning the candle at both ends with myself being so sick and my daughter.

I was wondering if I need to see my gyn about this, maybe ,menopuase. But I do remember reading that dysautonomia can cause problems with regulating temp. I don't normally sweat, not like I use too but I am having these awful spells of being hot then less than a minute later( after kicking off the covers) I am cold. Not fun for my husband to sleep that way. Poor guy. Kept him up alot last night, again. I have noticed that I am getting worse in all areas...gastroparesis,coloninc inerita,dysatuonomia...it is all getting worse.

Mine goes from low to high all the time, ever since diagnosed with dysautonomia. Was 158/88 Friday when I was at my pain dr. and heaartrate was 104. pain was pretty bad that day too thanks to gastroparesis. Pain tend to send my BP up. Trying a new pain patch BuTran. Got a whole new set of symptoms now, maybe med. related. Feel awful.

I use to be so cold all the time, now I go from hot to cold all the time. it makes sleeping very difficult. Not sure what this new symptom means. Anyone else have this problem?

thanks for the help. I haven't had the dr. recommend it, yet. My gastroparesis is getting much worse and that may be the topic of my next appt. I did get a new pain med. , BuTran patch. I hope it helps. The pain is so bad.

I have gastroparesis. Sounds like something many are having here. Stomach does not empty very well. Lots of nausea, full after a few bites or no appetitie at all. Lots of pain. I am down 70 pounds. Good thing I was overweight or I would be on a feeding tube by now. It is horrible and I have found it to be something others that have dysauotnomia to have. My dr.'s think that my dysauotnomia, gastropareis and other problems are all related to one another due to the autonomic system failing.