Monstrosity

I'm with Potluck I dont want to give you bad advice, but here's what I do. I push and push and when I feel the presyncope hitting hard I sit or lie down for a few. My cardiologist told me exercise and movement is how I will beat this. I've never passed out and never used a wheelchair or walker. As others stated do whatever makes you feel the most comfortable. I'm too stubborn when it comes to help at times and have a very hard time accepting limitations.

It was very bright out today and I had just taken my sunglasses. Anyways this is one of my favorite places to eat!!!

East Sunday we celebrated my uncles kids birthday.

Nice work! I didnt click a treatment but resting/laying down helps. Also Singulair helps some.

Checked mine earlier and standing up not doing anything it was 109. For "us" I dont know what normal is...

Thanks to all that posted and those that PM'd me! I called my Neuro and the nurse called back and said the Doc didnt feel I have it... I'm not flexible, but both elbows "used" to hyper extend slightly. My right one was broken for 3+ years before I got it fixed. (I dont ever remeber breaking it). I was told over and over again that it was Tennis elbow... I can go into more details but you get the point. I'm seeing my other family Doc next week. She's listens great and will either refer me to a doc or if its a specific lab test she will have it ran. I recently was tested for Autoimmune but all the levels were good except one. My Neuro said he's not worried about it. I'll check my records and post what it was. Here it is: MPA IgM, Serum 39 53 - 334 mg/dL L Last week my Allergist ran a test for Mast Cell. Its a small local practice and he said it takes a few weeks to get the results back. So I'm patiently waiting...

I dont know how I want to answer the Poll. I was told by UH that my case was in an advanced state. At the clinic they wont give me a ratting or any real thoughts on it. I think its bad but its due to I deal with it day after day.

Bowser on the prowl for a mate... He's always acting goofy during matting season.

Memorial day 2010. The one flipping is Ray I'm off to the left. Ray and I were always up to no good when put together...

How do they determine you have EDS? I only ask so I can rule this out. My family DR said I dont have a connective tissue disorder. However he was the same one that said theirs nothing wrong with me when my issues first flared up...

I've done both Massage Therapy and Accupuncture. Both have helped from time to time. After my first Accupuncture session I thought I was fixed, and then it slowly came back after a few days. As far as massage goes, yes it helps but its not huge for me. I usually wait for real rough spells and then get a massage to minimize my symptoms.

When I'm in sensory overload I notice my right pupil is bigger than my left (granted both are big). Does anyone else get this?

I hope everyone has fun today!

I watched that video, ruff is all I can say...

Never saw Grubb. If your going to the Cleveland Clinic I currently see Dr. Jaeger and Polston. I've heard really good things about Shields and Fouad. http://my.clevelandclinic.org/staff_directory/specialty_search.aspx

I still havent taken it... I'll fully admit I'm scared of the tremors and worry that they will flare up. I'm probably making a bigger deal than I should I just hate doing this trial and error stuff...

I get these from time to time. They were horrible when I took Effexor. I also had them from Cymbalta. The tremors/spasms were one of the symptoms I noticed.

If your having an extra rough day here's the pic you need to look at! This one always brings a smile to my face. This is my buddies step daughter. We took her last year to get ice cream for the first time (I think she was 3.5 at the time). Anyways it was too funny watching her eat it...

Here's Malia and Squirt

I'm glad you two chimed in, thank you! I'm most worried about the TREMORS... I didnt get the tremors on Propanalol but I did get extreme fatigue and could not sleep. Fatigue is the other main concern of mine. The doc wants me on half pill for the first two weeks and then I'm to call him.

Well thank you very much! That was my goal when I started posting them.

I'd chime in but everyone else has said it already. I'm in the same boat.

its a sony we bought at Best Buy years ago. I'll check the model when I get a chance.