Monstrosity

2 years and counting...im with ya i wont stop looking for the root cause

Keep us posted on your sons progress.

Bowser cooling off trying to hide He's waiving at squirt. This means he's being territorial

The picture thing is tricky, I wish I could show you how to do it. Just ask your family/friends if they have any issues with you posting some pictures on here.I dont have any kids at this point. Wouldnt mind but until I get a better hand on my dysfunction I've put some things on hold..Its my cousins kid. He wants to be a fighter and is always trying to beat me up, lol.

This one had all kinds of issues but I'd still rather deal with its headaches than the one I get from POTS

Heres some more bike pictures, if I wasnt buying a house I'd go buy another... Just not sure what... CBR954 Graffitie RR

A bird flew over Bowsers head.

Bowser was mad that day, lol

Either extreme bugs me. Winter is the worst though. I think on top of the temp, the short days and long nights play a huge role.

If you think you are having Shortness of Breath because of your Propanalol, there are Cardioselective Beta Blockers, and because I am asthmatic, I insisted on one that wouldn't affect my breathing. Channel blockers can also be tried by those with breathing problems, according to my sleep apnea doctor, Dr. Adams. At first I was on atenolol, but it was too short acting for me, and slowed my heart rate too much too quickly. I am now on Bystolic 5mg., which is working so much better for me now. I'm not as short of breath on this one. I stopped taking the Propanalol a while back but the fatigue that came in is still lingering. My Neuro wants me to try Nanadolol (however you spell it) and my family doc had said Bystolic a while back... Once again decisions decisions...

As stated do whatever suits you best. BUT, I try to fight back as hard as I can to regain/sustain normality in my life. I think you should try to go. I do stuff sometimes and regret it and other times I'm glad I tried. Are your friends aware of your medical situation? Can you get a ride back home if need be (always have a plan B in line)? If you let this condition control you it will...

My doctor wants to put me on a low dose of nadolol. I havent done well with anything yet... I'm going to pick it up tomorrow but am nervous about the side effects... Anyone have anything to chime in?

hmm... did you copy the link and put it in the "image" icon? The code from Photobucket or whatever you use will look something like this http://i44.photobucket.com/albums/f8/Monstrosity80/DSC00397.jpgand when you put it in the window it comes out like this:

Today my Chiro adjusted my whole spine. He said be prepared to be "Geeked Out". Yup the rest of the day I felt uncoordinated, brain was foggy, blood pressure was up and down... He said Sensory Overload probably will happen.

Never heard of this but a woman at a Natural store claimed Hawthorne did the same thing. (Never looked into if this was true or not)

I feel your pain.. No one should have to suffer though the daily struggles we encounter. Hopefully one of these doctors will have a major break through and figure out how to fix our issues. Stay strong!

huh... I will do that. I'm seeing two others from the Clinic and lets just say I'm not satisfied... Thank you!

Seeing this thread makes me want to show it to my Neuro who specializes in Autonomic Dysfunction. According to him my breathing issues arent related to POTS... Its Anxiety.... Um yea... This is exactly why I'm debating on going to NY to see the Russian woman or perhaps the Mayo Clinic. I didnt have bad Fatigue or breathing issues till I was on Steroids and then Propanalol right afterwards. I've gotten better and use Singulair but I'm still not where I was a year ago...

To post the pics you need to use a hosting site. I use Photobucket. Then once you copy the pic using your tool bar starting with the "B" (for bold) count over 11 spaces. You will see a box with something in it (to small to tell). Click that and it will give you a window to put the picture link in. Motorcycles are a blast but very dangerous... I've scene some bad stuff happen on the street and am thankful I was never injured badly... Moto Guzzi makes some cool sport touring bikes. Do you ride on it with your hubby? Dirt bikes are a blast I'm just afraid to hit the jumps! I try to stay as active as possible. The past 4 months have been the hardest I've endured yet but I plan on trying to do all the things I did last year. Standing still is harder than being in motion... Here's another great memory. My aunt and uncle took us on vacation to Kiowa SC. It was the best vacation I've ever been on. I found this goofy bat at a local store and these weird half balls and had to buy them. The funny thing was I felt so good while on vacation... Every day I would get up eat, head to the health club and work out, come back eat some protein, take a bike ride, and then swim in the pool. Were supposed to go back next year with them and I'm already looking forward to it. Just not the drive from Ohio...

Sorry to say but I'm glad I'm not the only one! I noticed wearing slippers helps and even more so I have some flip flops with an air sole in them that I prefer to wear around the house.

I also shave my head and have abnormal pupil sizes after a bad episode. Occurs in autoimmune autonomic gangliopathy. I've never heard of that. What is it and how are you tested for it?

Thats great news, relief is relief... Weather it be for an hour or a day any improvement is nice! I had mine tested last year and it was low. I took a supplement but late last fall had stopped. Over the winter my fatigue was horrid and I'm slowly recovering. I'm going to have my doc recheck my levels.

I love swimming and going to the lake. My dad has a jet ski that I get to ride and tube behind. This without a doubt helped me get through last summer!

Out riding the day before elbow surgery

Weddings are great! Family, friends, etc! My avi pic is from my cousins wedding last June. I was in the wedding and struggled standing still during the ceremony. Afterwards while sitting at the table I felt uncomfortable and just focused on my food and ate it quickly. After that all went well.