Monstrosity

Yeah a Steam Mop is great as well! My mom bought me one for xmas this past year and its helped a ton!

I get this as well. Very frustrating but I figure its just part of what we have...

I'm curious to see what others do that doctors dont tell patients. This can be anything that helps with your daily crusade! Here are a few of mine: 1. A natural cleaner. I've always been a clean person and hate my house to be dirty. When my symptoms started I had the worst time tolerating household cleaners. I was using a painting resperator mask but gave that up after my fiance found a natural cleaner. I cant stress enough if you have issues with smells or sensory overload I'd try these. Target sells them for a dollar less than the site and if you use a Target card you get 5% off: http://methodhome.com/shop/antibacterial-kitchen-cleaner/ 2. My upper chest and throat get tight. The slightest touch and I choke or gage, not sure why and the Neuro thinks its just anxiety. I found wearing a V Neck shirt helps a ton! I've never liked the look of V Necks on guys until I found these (ladies they have them for you as well): http://www.target.com/c/men/-/N-5xu2r/Ntk-All/Ntt-mossimo%20v%20neck/Ntx-matchallany 3. White noise maker, helps a ton with my ears for sleeping! 4. A swissball and some small weights. I put this in my living room. When I'm feeling like crap and need to push myself I will do some exercises while watching tv. 5. Compression Stalkings, yes most of you have tried them due to Dr's orders but I found I dont like the normal ones the medical supply stores stock (thin dress looking sock style). My circulation gets cut off real easy especially when I'm on a 13 hr work day. These helped more than the standard dress style: http://www.amazon.com/Jobst-ActiveWear-Athletic-30-40mmHg-CoolWhite/dp/B001O1QMN8/ref=sr_1_fkmr1_3?s=hpc&ie=UTF8&qid=1333289192&sr=1-3-fkmr1 These are a lot more comfy and also I'd encourage you to shop around for your stalkings. My local medical supply store isint what I consider local and their prices are almost double what you can find them online for... 6. Bearded Dragon pet! I've been searching for a Pet thread (might start one if I cant find one). But my Bearded Dragons are great for helping me occupy my mind when I'm extremely symptomatic. I'm not a snake fan nor do I care for most reptiles but the Dragon is great with kids and loves to be with people! They are easy to care for (just expensive) so unlike a dog that needs walked or a cat that can stir up allergies they arent hard on anything except your pocket book. What do you do/use?

Last year when I was first diagnosed they said to raise the head of the bed. I did it a hillbilly way but it was no more than 3 inches. When I got my second opinion I was told to raise it 5 or 6 inches. I did the 5 inches for two weeks. The headaches were so intense in the morning I didnt want to get up. Not to mention I felt like I was constantly falling off the bed. So last week I put the bed back to flat. It seems to have helped but I think a little rise would be beneficial. Just seeing what everyones thoughts were?

Boy this is a tuffy... Since your part time I'm guessing your not protected under FMLA. I recently told my boss the extent of everything and Human resources called us in for a meeting. Needless to say I was worried at first (even though I knew I was protected under FMLA). HR just gave me my rights and said I'm protected under Americans with disabilities. Remember your boss is your boss... He's out to make the company as much $$$ as possible.

Thanks! Helpful indeed! I will send them an email.

When I eat at my parents it can be very challenging. Since I finally gave in and told them about my issues I feel like they are constantly watching me while we eat. Not to mention my mom likes to cook huge meals and Ive told her time and time again not to do that (she just dosent get it). My fiance's parents are even worse. They are always fighting and most of the time the table is so quiet all you can hear is silverware clanging. I usually have to force myself to eat with them and it makes my symptoms worse.

I've had slight tremors all over my body since my Pots/Dysautonomia started. So far Buspar, Effexor and Cymbalta have made the tremors a lot worse... I'm worried at what my doc is going to throw my way next will cause them to flare back up... If you get tremors what hasnt effected them, or has been a minimal effect for your condition med wise? I'll admit this is one of my scariest symptoms. I've been freaked out that I'm getting Parkinsons but my docs dont think so. When I first saw Michael J. Fox step forward with Parkinsons I think it left an ever fear of that disease. I remember thinking wow, thats a child hood hero of mine and now look at him... I admit he's an even bigger hero now battling Parkinsons and all he's done with it.

Glad I'm not the only one. I went to dinner with my better half the other night and it was a busy Friday night. I thought I was going to either pass out (never have an hope I never do) or leave. I started to calm down a bit but it was still a struggle.

How many of your get sensory overload from your POTS/Dysautonomia? I get this a lot when I'm out to dinner, in a busy place, etc.

I'm exactly the same way.

Thanks Chaos and Jen! Today I had a balance test done (had one done 2 years ago, but my Neuro wanted to rule out inner ear). In case anyone has to have one I'll just state I'm glad its over... After that I went to my Chiro and he made some adjustments. I then decided to hit the gym. I had stopped working out after almost passing out in late December while squating with some decent weight. I've been doing a little here and their around my house for the past 2 weeks. So I went to the gym and did 20 minutes on an exercise bike, very low intensity. I then did a very light weight high rep low intensity upper body workout. I used all machines and no free weights. Everything was 2 sets of 20 with 20lbs and no more than 30 seconds of rest. Lat pull downs, bench, shoulder press, tricep extension, and bicep curl. I was having all kinds of issues while their but I pushed through. I noticed that I was ok while working out it was resting or walking to my next objective that I had the issues. Hopefully I wont regret it tomorrow...

I'm not sure where to start but here goes. I'm a male 32 years old and appear to be in good health. 2 years ago I started to notice weird issues I was having. After seeing a ton of doctors and almost a year had gone by Dr. Jaeger from the Cleveland Clinic diagnosed me with Dysautonomia. I wasnt accepting of the diagnosis till January of this year. I went to UH for a second opinion and they said I have POTS. This has been a very challenging road. I struggle on a daily basis but I push through to remain as normal as possible. I almost feel as this is some kind of test thats been brought upon me. I've got a beautiful Fiance that pushes me and does her best to help. When people ask what my worst symptoms are I usually tell them if varies day to day but my top 3 worst are: Fatigue, Ear issues (especially the ringing and hissing), and last but not least the Tremors (especially when they are full body or in my head). I've been on several meds and none have worked out. Neurontin is ok for short periods but makes me aggressive. I tried Effexor last week and it caused my tremors to go into overload... Cymbalta did the same thing but it wasnt till after I was on it for a few months. Hopefully my Neuro will figure something out that I can tolerate. Thanks for reading!