Monstrosity

Kent Ohio here

its too bad because otherwise the drug was helpful.

I dont go into denial but I have an issue with acceptance....

I'm sure its tough being a woman and being told its all in your head. At the same time try being a man and being told that. Your looked at to be strong physically, mentally, etc and your not sure whats going on with your body. Everyone is looking at you saying "but you look fine"... grrrrrrrrrrr......... Now if I even think someone I know (family or friend) is questioning it I'm quick to tell them to **** off.

some were fast like that. This sometimes bothers me and sometimes dosent. I was ok all in all during the film.

I wish I had a dollar for every time someone said "its all in your head"...

I did use Neurontin for a bit but after a few weeks it made me mean as ****. I also use the Alpha Lipoic Acid.

I saw the movie last Friday and enjoyed it! I read a lot of comic books when I was younger and when this movie came out I was very excited. Needless to say I remember when one of the Hulk movies came out a few years back. It was prior to POTS and a girl I was talking to compared me to the Hulk. She said I was normally friendly, calm, etc. However if something set me off I was like the Hulk, lol. Anyways the Hulk was my favorite character, growls, screams, breaks everything he can! The movie had action, humor, drama, etc! In the end it was good vs evil. I think thats why I like superhero movies, they represent good vs evil and good always wins.

Jobst athletic ones are what I use

male 6'1 190ish currently, always had a fairly thin build.

I'm not a huge reader but when I was first diagnosed my better half was in a book club. At the time she was reading "The Art of Racing In the Rain". I couldnt put it down and finished it within a day or so. The book is written through the perspective of a dog. It had everything you could want in a book. I highly recommend it! http://www.garthstein.com/arr/

Arizona Girl your last sentence states it best "Not all neuro's are equal, there are many different subspecialties in neuro field of study." This is so true and I hate to say it my Neuro who specializes in "Autonomic Dysfunction" has yet to impress me...

try this: http://en.wikipedia.org/wiki/Ehlers%E2%80%93Danlos_syndrome

Since this all got bad I noticed I can tell when a floor is the slightest bit off. I've been house shopping over the last few months and everything I've liked has had issues where the floor/foundation has been off. I've had my agent and Fiance argue with me. One house we looked at and then went back for a second showing. I pulled out a marble and brought a level. I was dead on that the floor was off. I can tell my agent is growing irritated with this, lol I dont care its the only real plus to living with an autonomic dysfunction. Just seeing if anyone else has this?

Myoclonus (however you spell it) jerks usually are first for me. I'm always tired and it varies if I have a headache or not. Oh and I need to pee in the worst way!

Lipoic Acid is supposed to help with neuropathy. I'm guessing you've been tested for being a diabetic?

ah... gotcha thanks!

Christy who do you see that used to work with him?

I've heard nothing but good things about him. I wanted to see him when he was in Cleveland but he moved before I could.

A month or so I had to drink barium and have x rays done. I wish I would have had someone to drive me home. Some test, dr's apt, etc its best to have someone with you "just in case".

I met someone that had all the POTS like symptoms, turns out she had Chiari. Has anyone rulled this out or have this? http://en.wikipedia.org/wiki/Arnold%E2%80%93Chiari_malformation http://www.wichiaricenter.org/oth/Page.asp?PageID=OTH000005

anyone can join my facebook from here, Montie Hardman. Just send me a message your from dinet

The vet that I take my Bearded Dragons to has a deer that lives in her house! I know Melanie and her husband Steve both great people. You can check out the deers website and you can see a live webcam as well! Website: http://www.dilliedeer.com/ Live Webcam: http://www.ww.com/dilliecam

It was about $30.00 out the door for 2 bracelets. Not telling what I put on them... you will have to wait for the pic!

I used that option and I used the recycled option.