puppylove

I have a little stomach bug so I have barely been drinking. I am miserable because now I am dizzy and potsy along with the bug. I think it's just a 24 hour bug but I am very dehydrated. Should I get an IV? Any other ideas?

Thanks for all the good ideas. I have finished my ulcer meds so I don't think it's that. Also, I am about to start Zoloft- does any body know if this will mess my tummy up even more?

Ugh I am CONSTANTLY nauseous. All day and all night. It is getting unbearable. I take zofran but it doesn't help at all. I did have a stomach ulcer and I have GERD but I'm on meds for both of those. I never actually throw up though. My gastro doesn't really know what else to do. I have a third endoscope coming up to make sure my ulcer is gone. Any other ideas?

I'm not sure why but the only time I have sweat like that was during my TTT. But it was excessive just like you describe. Have you checked your heart rate and blood pressure when it happens? My blood pressure and heart rate were sky high then so I guess that could be why...

I have tried benadryl and it does make me sleepy, but not enough to mask my tummy problems.

Good ideas, thanks.

In a month I am probably up all night over seven nights. The reasons vary- GERD, nausea, insomnia, stomach pain, anxiety etc. Needless to say I am a wreck the next day. I take three mg of melatonin a day but I have not noticed any difference. Any ideas/ suggestions for sleeping?

Watching my Mom go through cancer was the hardest thing. But this is definitely second!

No, I get a similar feeling- I know what you mean. The tingling feeling when you hit your funny bone is a good way to describe it...

For the past three days I have just felt so weird. Just so out of it kind of like I'm dreaming. I'm just wondering if this a side effect of zofran, prevacid, or propanol because that's all I'm taking. Or is this just a new POTS symptom?

I have heard of this too and I have always chewed gum when I am nauseous. I have found that peppermint really helps. There is a chemical in sugar free gum that can worsen GERD though so I only chew gum with sugar. I was nauseous for the past year so I chewed A LOT of sugary gum... Now I have 9 cavaties! Not my best idea...

I can normally taste everything but I am never thirsty. It's been a struggle for me too because I forget to drink and drinking a lot upsets my stomach too.

Ask for nausea medication before you go under if you already have stomach issues- it really helped me with that part of it!

Yay! I'm so excited to see him now. It will be so nice to go to a doctor who actually knows what POTS is all about.

That's the thing- my old cardiologist would not sign the papers. I'm not really even sure why... My mom spoke directly to the social worker and my cardio nurse so I don't think there was a mistake. It's ok though now that I'm going to Dr.A.

Okay, so here is where we are now. The doctors nurse called us back and she said that my cardiologist had spoken to my phsyciatrist and they had agreed that I was a very aniouxs individual and the school would deal with my phsyciatrist instead of my (old) cardiologist. Well, I have only been to this phsyciatrist once and I told her everything about me and she was not familiar with POTS at all and told me I have anixety. So then the cardio called my school and told them that info. and that's where we are currently. My parents are setting up meetings with the principal and they might go in to all the legal issues, disability stuff, etc. if they need too. Thanks for all the advice- we are going to work with Dynakids and check for cancellations too.

My parents have called three times today and got the answering machine. They never called back.

Thanks for replying. My Mom got me an appointment with Dr. Abdallah. I hope he's a good one.

My cardio treats a lot of POTS patients but I don't think he is a specialist. We are definitely not going back to him...

Yeah I have it all in writing- the diagnosis, TTT results etc. which I gave to my social worker. I guess I'm going to have to find a specialist...

My pediatric cardiologist diagnosed me with POTS about five months ago. Well my school social worker called him to talk to him about my syndrome and to get more information on me for homebound schooling reasons. I go to a therapist also because I have some anxiety too. He told the social worker that I had anxiety and mental health issues so he is not the one she should be talking too. He said talk to the therapist. Well, I am no longer eligible for homebound schooling because I have no physical health issues only mental ones. He diagnosed me with POTS!!!!!!! I have all the symptoms!!!!! I did a tilt table test and my heart rate increased 80 beats!!!! I don't know what to do because I can't get off the couch let alone go to school.

Oh no! I hope you are doing better. I think you should go to the ER if this hasn't happened to you before or if it happens again. If your friends think you really had a seizure then I think it sounds like you need to go in.

My childrens cardiologist literally said to me during an appointment suddenly all these POTS symptoms have become cardiologists problems- it's like he doesn't even want to help me! I have noticed that most doctors we go to don't really seem to care or they think it's just anxiety. It's incredibly aggravating when you can't live a normal life and they just send you on your way.

Awww thanks- you guys are so nice! We have been trying the suggestions with the school and IEP stuff but I live in Virginia and apparently the school district is very strict in this type of thing. I even got my cardio involved with the school and my parents have set up multiple meetings. We only have one social worker for my school and she is "very busy". I just have trouble taking things one day at time and I get overwhelmed so easily now. You guys make me feel a lot better though!

I don't know what I am going to do. I have not been to school except for a day here and there since last year. I am failing everything. I am still trying to get homebound/ online set up but the process is taking a very long time and my school social worker is not the best like I have said in pervious posts. I was supposed to be keeping up with my work by checking on my schools website and printing out the work. I have not been doing that so I know it's my fault things are like this. I just can't teach my self algebra when I'm doubled over with stomach pain, and this is my second time taking chinese 1 because I can't learn it when my brain fog is acting up. I used to get straight A's, it's like i'm not even the same person any more. I usually feel better in the summer but I might have to spend it in doors on the computer doing classes. I also might have to repeat 10th grade which means I would never see any of my friends who I barely see now. I wouldn't even graduate with them. I was supposed to graduate with honors and I had my whole highschool career planned out. And i'm on all kinds of medicines and I have a treatment plan but I keep feeling worse. Things are just looking so bad right now and no one in my family understands what i'm going through- I barely understand it. I'm sorry I just threw my self a pity party i just had to vent.