yuliya

yeah I'm pretty much done with him. No need to waste time on that.

I had headaches from it and increased thirst, so I stopped taking it. everyone reacts differently to it.

you might want to check this: http://www.drkrider.com/Topics/Symptoms/skin,%20darkened.htm

Are you sure its not your liver acting up as far as the color goes? and I'm pretty sure the coldness is from the blood pulling I get that too. Im sure a lot of us on here have it. I know a few have an actual disorder that cause cold hands, but I can't think of the name

My heart rate went from 88 to 154 during the tilt test. My bp is unprdictable lately it has a narrow pulse pressure, during the test it went up a bit. Usually when I do a poor mans test at home (when I'm bored mostly, or make sure its still wacky) I get 77 laying down and 117-160 when standing.

1. Tachycardia 2. dizziness 3. fatigue 4. headaches/nausea 5. leg pain

I get it at night sometimes, but mostly in the day. I have more palpitations at night while lying down even with a low heart rate.

Well, apparently I don't have POTS, even if my tilt test result say I have it because my blood pressure does not fall (even if my pulse pressure is 20 on standing from 60). This is according to a neurologist I saw today that said him self that he doesn't know much about dysautonomia. I don't understand how doctors can make these outrageous claims when then know nothing on the subject. If you don't know send me to someone that does, don't tell me there is nothing wrong when you know nothing about a condition. sorry about the rant. I am so tired of doctors and there treatment of people.

I think for me I feel like sometimes I get so wrapped up in pots its all I think about, sometimes I feel like I have to go off for a month to get myself to think other things besides my health. Maybe thats what happened to some. I have gotten so much support here and answers but reading everyday about others not doing well is sad and get to you after a while. I don't know how some of you guys stay on here and continue to be so helpful.

I thinks I understand. basically it confirms my diagnosis is what Im getting from this. thanks so much for explaining it.

So I got bored as I tend to do easily and decided to give myself a poor man tilt test at home just to see what I would get in numbers. Laying down I got a blood pressure of 129/68 with a pulse of 75, on standing one minute I got a pulse of 95 and the same blood pressure and then I realized that I was squeezing my legs and butt super hard, as soon as I let go my blood pressure went to 110/90 and a pulse of 112. So my question is what does it mean when your top number in blood pressure falls and the bottom number goes up? seams weird to me. thanks for any help

I have noticed that every time I have done more around the house or pushed myself through the day I have really bad muscle pain in my calves/legs, its almost muscle spasms feeling. Does anyone one else have the same thing?

it ok, confusing question, I just wanted to know how people were effected with normal bp. thanks anyway.

how was your daughters pressure before the midodrine? was it low/normal/high? thanks

I live with my parents and they help me with my two kids aged 8 and 6, and my husband drives me every where and does a lot of things when I can't. I guess I'm really lucky to have so much help and am very thankful for it.

why don't you search ms and pots you will come up with a few studies. I think if you search even these forms for ms you will find a few conversations. I know for a fact that a lot of ms sufferers also have dysautonomia, but I really don't know if blood pressure can cause the lesion by itself. sorry I can't be of more help, good luck.

I just want you to know I feel the exact same way that you do. I prepare all this stuff to say, all the symptoms, all the test I want and then I think the doctor is going to think I'm nuts (most of the time they do), but you know what I would have never gotten my POTS dx without the pushing forward with symptoms, tests and research. Go with all of it, that the only way us potsy people ever get any treatment, just remember 15 years ago they would say we all had anxiety.

good to know it makes me feel a lot better that your pressure has stayed normal. thanks. I'm going to have to give it a shot.

They need to do a lot more testing then MRI with one lesion to call it MS. I was just reading about that a few days ago. I would try for a second opinion if you feel they are wrong. But you can also have both MS and Dysautonomia together and its not uncommon.

I have had pots all my life it seems, and I don't really think it effect my pregnancy since each pregnancy was different. sorry I left that out.

Has anyone here with a POTS diagnosis been put on Midodrine while there pressure is fine. POTS effects my pulse and my pressure stay fairly normal. After my doctor talked to Dr.Grubb he is now putting me on meds that he suggested down the list one at a time. I have tried Flourinef but it gave me headaches and made me very thirsty, now I need to try midodrine, but I'm scared because my blood pressure is normal already. Any one with tried this let me know and any side effects. Thanks

I say if you feel like its getting to the point of going to the ER then maybe its a good idea just to go for the sake of having an answer. Better safe then sorry, and why worry when you don't have to.

I have had the memory lapses you had and weird little episodes like I blank out for a minute. It seems like time just stops, but after that I am fine. I don't know if mine was caused by low pressure but its possible. I really don't know what to suggest to make it better. My symptoms seem to cycle all through the month. some weeks are horrible then I will get a week or a few days where I can function somewhat better.

LOL Todd. You are to funny. I thought exactly the same thing everyone on here said. I tried to exercise, what happens when you just can't get past the symptoms? really wish he would study that part. I have also had POTS all my life even if it was misdiagnosed, exercise never seem to help my symptoms.

sound like a migraine to me. Migraine symptoms can change and sound like yours did. I would say if you are very worried go to the ER. Better safe then sorry. I get the same thing followed by really bad pain. the eye thing can last from 1 hour to 6 hours.