yuliya

My first pregnancy was horrible (high blood pressure, diabetes and swelling, felt horrible) the second pregnancy was a complete opposite (supper low blood pressure, no swelling, no diabetes, felt great).

A few times a month I get random numbness in parts of my body, mostly on the right side. Yesterday the right side of my face was numb and today my right foot/toes are numb and tingly. I have also had it in my right fingers, but not this episode. It almost feels like my foot is not lifting up high enough when I walk, its not dragging but feels close to it. Any one else get this and what could it be? Thanks

I'm so glad I am not alone in this feeling. Today has been a horrible day and days like this make me want to give up on life all together as horrible as that sounds. Of course this in not an option, I have two wonderful kids to raise and take care of and have to push on. Thank you everyone that responded really made me feel better.

Have you ever felt like even after you had a positive tilt test and always feel bad that maybe its all in your head? When your doctor continues to doubt your sick even if the test say you are it makes you wonder. Sometimes I feel like giving up looking for an answer and think maybe it is in my head, but if it is why do I feel so bad. Some days are so hard.

1. your blood pressure does not need to rise or fall to diagnose POTS. My blood pressure stay relatively the same. 2. My pulse goes up a lot of times but not every time. I have good days and bad days. 3. I have not noticed any difference after eating again. again there are days that my pulse races all day and others when it somewhat normal. 4. Yes. I have days of dizziness and feel horrible but it doesn't show on measuring stats. 5. I have insomnia and take medicen for it. I attribute it to adrenaline surges and palpitation. 6. GI issues can be caused by a lot of different things, and some people with POTS have no issues with GI. 7. Tachycardia over 200 would probably be considered worrisome and on top of that it would matter on the kind of tachycardia. hope that helps, just going off my own symptoms not an expert at all.

there should be a way to find out on the states licencing board of physicians. Its public information.

Also I forgot to mention I have extreme thirst from it. I feel like I can never get enough to drink.

I just started Florinef one a day, and the only difference I see is lowered blood pressure and headaches. I am thinking about going off of it because of the headaches. It feels like my temples are going to burst yet my blood pressure is lower then before. Yuliya

Very good to know, I have always wondered. I was under the impression that all they do was supplements and natural healing. Totally opened a new line of thinking for me. Thank you.

also I wanted to mention that I am super sensitive to dilation drops. I stay dilated for 2 day and have sever tachycardia from it.

Actually my pupils have been weird lately. One stays much bigger then the other and people have noticed it. The doctor has no clue why and neither do I .

My report say "suspect atypical chord insertion on the ventricular surface of the anterior leaflet" "Trace tricuspid regurgitation noted" My doctor never mention this and said everything is normal. Any one have any clue. Thanks, Yuliya

Yes it seems that dr.grubb has helped my dr with a lot new medications to try but took away my hope of mito testing. Lol. My dr was all for it at first. I'm very disappointed but at least I have tons of new meds to try. I still feel very strongly about the mito and hopefully I can change his mind.

I would just like to know how many have been diagnosed with both Mito and POTS? I wanted to get tested for Mito but after my Dr. talked to Dr.Grubb he decided it was too rare to bother testing for it. Any one have any suggestion to get him to change his mind? I really think mine is connected since my POTS didn't start out with a virus or injury (had it since I was a kid), and since my symptoms are getting worse I hoped a diagnosis of mito might lead to better treatment. Thanks for any advise and suggestions. Yuliya

1000 calories is way to low for anyone, you need to be getting at least 2,000 to gain weight especially if you have a high metabolism.

Good luck! Wishing you the best let me know how it works out.

I have had POTS all my life. When I got the shot as a teenager I had pretty bad reaction to it. I had 30lb weight gain not related to food or exercise. Also had a period for a year straight. I don't know if it was POTS related or not, but since then I stay away from hormones as a rule.

Im on Metoprolol xl 25 mg. I started out on 12.5mg. So far its fine, I have noticed it decreased my palpitations by half, lowered my heart rate about 10 beats, and no side effects yet. I have been on it for about a month.

My symptoms get worse during my period. I am completely wiped out and sick.

I have had pots all my life as well, and my episodes didn't become bad until this year and one of the reasons I finally got diagnosed. My symptoms became just like you have explained, and I finally was able to get a diagnosis, but not a treatment plan that works yet. POTS can get worse, and better. Sorry I can't really help with advise, all I wanted to say is I have the same exact symptoms as you and know how you feel.

Thanks everyone for your suggestions.

Wow, 8 miles, thats amazing. I can't walk around for longer then 10 min. without getting dizzy. thats wonderful!

What is the specialty of the doctor that treats you for your chronic fatigue?

My doctor has suggested exercise to help with my symptoms but I am unable to do much because of the fatigue and dizziness. What are you able to do for exercise?

I have had POTS all my life (diagnosed January 2011), I didn't have any fertility issues, but it could very well be related to your POTS.