lieze

Oh yeah smart thinking! Have you had your levels checked? lieze

I'll look up the mackenzie exercises online. I really want to go for the massage I have only ever had one in my life. It was a chair massage that they gave us as a gift at work. She felt my knots right away and worked on them. This was prepots. I felt like a totally different person post massage-I was so much more relaxed. I carry most of my tension in my upper back shoulders. I guess I'm waiting til I get all kids in school in Sept so I have more freedom to set up a massage appt. lieze

Well that is a good question for your doctor. I always freak out on test results. Then the doctor looks at it and says this looks pretty normal. I get all worked up for nothing usually. lieze

Yes I did have this fear but I have never passed out. I just had the presyncope but I would get so nervous. And I would worry especially when I was any where but home that I would get this way. I guess the fear has passed some. I would say it is very similar to a social anxiety type thing. In your case it really happens but you just don't know when it will happen. I'm sorry that you're living with this. It's horrible. I don't even faint and I can hardly stand the swimmy and crushy sensations I get in my head when I go places. It just makes me want to crumple and give up. Hang in there we're here whenever you want to talk about it. lieze

{{{Rene}}} I hope that you get the help you need right now.

I get it too!

Wow I had to look up adies pupil because I have had this occur twice or three times now where my pupil dilates. The first time was at work. I left work scared. Went to ER and then an opthamologist. He couldn't find anything wrong at all with my eye and told me not to worry about it. It has only happened one time since. I went to bed that night and when I got up it was normal again. We do have a lot in common! lieze

I just wanted to say welcome to the group. lieze

Thanks yogini, I haven't had any injury to the neck. Right after chicken pox my neck got stiff and hurt and I thought oh my lord I have encephalitis. Everything seemed to go down hill after that point. Maybe I can find an alternative to my neck problems. I would really like to try massage and see if I can get these knots worked out. lieze

Wow Bellamia! What a story-what is it about the water-it helps me too!

thanks nj

I don't have any advice but your post makes me not want to go to the doctor. Why put myself through a bunch of tests? I seem okay too, I'm getting by somehow. I feel bad once in a while, I lay down and I recover. ???Not sure there is anything else I can do but wait for this to either get worse better or stay the same. lieze

I do.

I believe the ablation of the uterus might do this for you. The only thing they warned me is that then you cannot have children. Also there have been women that have this done and their periods return. It was an option for me because of heavy bleeding and also irregular periods. I think this last interval was only 2 weeks. The one prior to this was very light but this one is the opposite. lieze

Well I can relate to this. My neck is always sore but mostly on the right side. Also I've been noticing numbness sometimes in my right hand. I thought maybe some kind of massage would help. I read the posts on the cervical instability and it seems like I definitley have something going on. I get the dizziness. I sometimes feel like I can't walk on my own without holding onto something. I tried turning my head from side to side and it just gave me a horrible heart response. So now I'm wondering if these sensations I'm getting out of the blue are related to my neck and movement or just being upright for a long period. I've always had a problem with posture and upper body strength. And everything just feels tight through my shoulders upper back into my neck. I do get knots also. I don't even know where to start to try to work on this? I wonder if driving is exacerbating this? Since the symptoms I got yesterday were in the car. Right after turning the corner? I would have been cranking my neck back and forth maybe? I'm sorry I'm babbling on like this. I will try to be more conscious of my movement and what triggers symptoms. lieze

Maxine, Just letting you know that I did read your post and I wish to offer support. You just have so much more knowledge related to all of this I didn't think I had anything to offer. But I do care. lieze

Well I just had another mini one. Weird. Same time as yesterday. 10 am used to be my target time but maybe the time is shifting since I'm getting up later. I have been trying to eat today. But I've been doing things sitting down doing more sitting down. This rest break daughter came (5 years old and demanded I make her something to eat) So I picked chicken off the bone and heated up chicken noodle soup. I was munching on chicken as I did it. I felt okay actually until I had served the food and then a total wave went through me again. Now I have a partial headache. I was able to rest so I think it minimized the symptoms. But I guess I'm not over this stuff yet. I felt so good this morning I don't understand where this comes up out of the blue.

I'm going to try it can't hurt-thanks future hope!

Okay now I"m second guessing myself. The thing is I hadn't really eaten yesterday morning that I can remember. I felt good but what if my blood sugar dropped? I'm wondering if that's what sent me into panic mode? I was desperately wanting something to drink and I had promised I would never go anywhere without a drink but I quickly forget. The first thing I did when I got home was eat and I did okay the rest of the day. So I'm wondering if a drop in blood sugar set off my panic symptoms. I guess I can try to do a better job eating-won't hurt a thing. lieze

This might be where I am too not sure. I was noticing it after meals and showers too. For a while there I was getting a lot of weird stimulation of my vagus nerve. I also was always tachy always. Resting pulse was 99 if I did anything it was in the 110-120 range and then I'd have spikes. I was very shaky a nervous wreck-it was almost like if I didn't have some type of deep relaxation or verge of sedation I was just setting myself up for some type of tachy run. I'm not sure I would qualify for an official POTS diagnosis right now where I'm at but I think if they looked at everything I experienced over the last 13 months it did look like POTS. lieze

I couldn't think of that term. Disassociation. That is what I was experiencing-where everything gets dreamy. I need to start carrying my Xanax I didn't have any with me. lieze

This definitely felt like a panic attack. It left me feeling very numb all over. Very uncomfortable I just couldn't get home fast enough. I'm just a bundle of nerves and it doesn't take much at all to set one off. Just had to go out again and I did fine. I am determined to not let this keep me grounded. So weird feel totally out of POTS today but like a panic attack is only one stressful event away. It's like I've shifted directly out of POTS sensations into panic. Both are equally scary. lieze

Ugh haven't quite had that since last summer! Anybody else start experiencing panic attacks along with their POTS? It's so difficult to sort it all out. I always get triggered at this one place in town, just as I pull around the corner there is a train track. If I get delayed there I automatically go into a panic attack. It was horrible. I felt surreal. I felt like my whole body was numb. I made it home but it seemed like a dream. I am worried now about this summer if I can get over the POTS am I going to go back into the panic? What is happening here. I had never experienced an anxiety attack pre pOTS. lieze

Well I try to stay hopeful when they don't find things wrong. It does still make a person wonder though when we're feeling so off. I think I have the perimenopause thing going on too and my mom said all my dad's sister's went nuts when they turned 40. I wonder if they just developed dysautonomia? lieze

No reason to be embarrassed. There is no way to know if there is a problem or not unless you get checked out. You are feeling something-I believe you. It's just whether it is what we think it is. You did the right thing to go and have this investigated. lieze