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ChicitaGatita

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  1. Thanks everyone. I'm going to have to find TTT protocols for POTS to take with me when I see my cardiologist. Does anyone wear a HR monitor to get a sense of what's going on? I'd really like to start doing that. I was wondering if here are ones that u can sync and print records?
  2. Hi I thought I might have POTS as I've always had trouble standing for long. I feel weak & tired quite a lot. I struggle to get things done that normal people find easy because I feel fatigued quickly. I've learnt to do 15 min of housework then break for 15 minutes. I had a TTT done today and I don't have POTS. I do have NCS or Vasovagal Syncope. Just around the 10 minute mark of the test I felt all shaky, was feeling strange spacey symptoms in my head & felt sick & all "fluttery" in my chest as well as feeling short of breath without puffing. The cardiologist layme back down because my BP was fluctuating wildly. My resting HR was around 66 & by the 10 minute mark it had reached mid 90s but my cardio says this isn't POTS. he said if I had POTS my heart rate would have skyrocketed in the first minute or two. Is this correct? Does anyone else have NCS? Does it effect your ability to function effectively? I'd really appreciate people's feedback and responses to my questions. Thank you
  3. Thanks for sharing Hope. I'm sorry to hear how disabled u are. I'm able to do about 3-4 hours of activity a day if it involves frequent sitting. For example. I can drive to town (an hour) and walk around for a couple of ours and drive back. But doing more that day is a struggle. If I spend a day at home I can generally get about 3 hours of housework done by breaking it up into 15 minute segments and resting in between. I generally only have one day at home though because I was working 2 days a week and i want my DD4 to have a life so most days I try to take her out and about: library, park, a friends house. I struggle by the time it hits 4-5pm. Getting dinner done is awful. I'm looking forward to not working as ill have time to step back and create strategies that will help me. For example doing all the prep work for dinner in the morning. Up until now because of working 2 days a week I haven't had the energy to allow me to sit back reflect & create proactive strategies. I've just been desperately putting one foot in front of the other.
  4. Thank you so much girls. I've been offline as I've had to stay at a friends house for a few days due to bathroom renos. Lethargic - thanks for all ur responses & the links to your blog. My husband really doesn't understand my illness. I'm only now getting a diagnosis of POTS confirmed. I think it'll be easier once its confirmed by a cardiologist. Then I'll have a name for what I have & I can explain it. But I'm somewhat anxious in case I don't officially have it (despite my own records of an increase of 50-80 beats increase per minute from resting to standing. I finally told my husband that I can't keep working (I'm only working 2 days a week). This discussion occurred yesterday & he's been very supportive. I think he finds it very confusing that I can go out & do "fun things" like take our daughter to the park, the library to friends houses, or have play dates with friends & be all cheery with them but then be exhausted & struggle after that's all over. It's hard for him to grasp that it's not an attitude issue. I'm so glad I'm not going to be working indefinitely because I'm really worn out. Lethargic - how soon after your symptoms did u get diagnosed? I think one of the reasons I struggle so much (& so does my husband) is that I've been symptomatic for 21 years but until just recently doctors have done what they call "comprehensive" blood work and when nothing shows up they say they can't find anything wrong with me.
  5. Thanks Chaos. I'm not sure what your living situation is. How do u deal with feeling like a burden? My husband works 2 weeks on/2weeks off on an oil rig working 12 hour shifts & doing physically hard work. When he comes home he continues working 6 days out of 7 & 10-12 hours. He also generally comes home to a home that is never tidy & a wife who struggles to make dinner let alone make interesting dinners. We have a 4 year old & I'm a loving, kind, mum but I wish I had more energy so I could do more with her.
  6. Hi All I'm new to this forum & I'm really grateful to have found it. I am 40 & was diagnosed with neurally mediated hypotension (or orthostatic intolerance when I was 19. At the time I was tired all the time and having near syncope or syncope when I stood up. I was told to take salt tablets. I've recently discovered I have POTS. My resting HR is 54-60. When I have a shower it goes to 120-134. Just cleaning the house my HR will be around 105-120 depending on what I'm doing. My normal BP is very low 80-90/60. The worst symptom I have is fatigue. I can't keep my house clean, some days I struggle to make dinner because I'm so exhausted at the end of the day. I work 2 days a week in a sedentary role but I couldn't work anymore than that. Can anyone who has very low blood pressure & POTS tell me what medication has been most effective for increasing energy, allowing you to keep being active throughout the day?
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