Hi folks, I'm another lurking Brit on this great site. I have a "POTS variant" , still don't know exactly what that means, but as far as I can see I'm treated as standard POTS. I had TT testing in Bristol 9 years ago by a Dr who was pulled out of retirement, and got a diagnosis of POTS but no-one had ideas of treatment, eventually got referred to Prof Mathias on NHS (after visiting NDRF conference in USA for info etc!! but also got to meet Prof there!) about 4 years ago. I was re-tested there this year and am due to go again next week. I have found it to be helpful to back up all the work that I do myself to try and sort out these complex problems, I use all the resources here on these sites to give me the edge when I see him (or usually a Dr they've pulled off the wards to cover the clinic!) in terms of suggestions for tretament. I am currently on B-blocker (bisoprolol furmarate, tried loads of others but turned into a slug on them) and Midodrine, both of which help to a certain extent. I cannot function without the B-blocker, get terribly breathless and tachy, Midodrine seems to help, especially in am when symptoms are worse. I don't know whether you've seen Prof on the NHS or privately, I had to wait for AGES but now feel it has been worth it. I can't understand why some people seem to be offered drugs and not others. I still follow the high fluid salt and exercise when possible etc. but since my last visit I have had to drop work to part-time due to fatigue. Lifestyle adjustment just reinforce the problems don't they? I had to battle for years to get to see someone, then had to battle to get treatment, and now have to battle to get drugs (have to travel from Midlands to London just to collect prescription!!!!!!!!!) - it is an uphill struggle, it does seem unfair, especially when we are never really feeling well enough to fight the system. All I can suggest is to use the info we gain to keep fighting, but it does get utterly depressing and wearying sometimes (I dread visits to Prof as I always come home unhappy.) Anyway, regards to all in the UK, we need to stick together buddies! Here's to better health and treatment. x