cbhowell Posted July 13, 2004 Report Share Posted July 13, 2004 It seems that a lot of those on here have lots of back pain or joint pain. Why does POTS cause this? Sorry for all the questions....Just a little new and curious...ThanksCasey Quote Link to comment Share on other sites More sharing options...
briarrose Posted July 13, 2004 Report Share Posted July 13, 2004 Well good question, I wish a doctor could answer this LOLSorry being a little sarcastic! I've been told as far as the joint pain, it is because of over active neurotransmitters and that's why medications like Neurontin tend to work on the pain. I have back pain because of muscle spasms, in fact I have muscle spasms in most areas of my body not just my back. I don't know the exact mechanism of this. I would imagine it's a combination of dehydration, low potassium and who knows what else. Quote Link to comment Share on other sites More sharing options...
purplefocus Posted July 13, 2004 Report Share Posted July 13, 2004 Hi Casey, I wished I knew why the pain was there. I have had the normal nerve test but it doens't show much. I have the pain in my knees, behind my knees and down the lower part of my legs. I take nuerotonin three times a day and it really helps. Paige Quote Link to comment Share on other sites More sharing options...
nantynannie Posted July 14, 2004 Report Share Posted July 14, 2004 Hi Everyone,I just read this post and learned something new! I was not aware that pain is associated with POTS. I have (among other things) a deep aching pain in my joints and muscles that has been attributed to Fibromyalgia. Is is possible that it is autonomic in nature???Ann Quote Link to comment Share on other sites More sharing options...
blackwolf Posted July 14, 2004 Report Share Posted July 14, 2004 I was Dx with fibro. about 7 years ago. BEFORE the POTS. It never interfered with my life the way it does now. I used to just be extra achy especially after work. Before all this happened (POTS) I was doing ok and kept very busy. So which way does it go? Good question.Blackwolf Quote Link to comment Share on other sites More sharing options...
opus88 Posted July 14, 2004 Report Share Posted July 14, 2004 Briarrose,My back spasms have almost completely disappeared (actually, they only show up on occasion now, and are short-lived). It started to improve after beginning hefty B vitamins and magnesium, and now I rarely have to think about it, much less deal with it. Quote Link to comment Share on other sites More sharing options...
briarrose Posted July 15, 2004 Report Share Posted July 15, 2004 OPUSthx, I have just started taking additional vitamins. I do feel more like my old self when I'm taking them. I tried Mg but it made me really sick. Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted July 15, 2004 Report Share Posted July 15, 2004 Some of the POTS patients with Ehlers-Danlos syndrome (EDS) suffer from joint pain, which is a common symptom associated with EDS. Have you been checked for EDS?Michelle Quote Link to comment Share on other sites More sharing options...
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