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About cbhowell

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  1. Did you ever find someone in South Carolina? I’ve been looking for someone for my daughter.

  2. Any suggestions for abdomen compression? I have a terrible time after eating and looking for some relief. I've never tried any abdomen compression options, but have seen them mentioned. Are they effective? Thanks!
  3. Ughhh...thank you for the info! Do you know what the doctor who is leaving name is?
  4. Does anyone know of any physicians who are familiar in treating POTS in or around the South Carolina area?
  5. Just for curiosity's sake, I was wondering if the pooling of blood caused by POTS can lead to blood clots? Are people with POTS more suceptible to blood clots?
  6. Is it possible for someone to have a partial/slight case of POTS their entire life and not know it? I know that most on this forum have full blown POTS, but could someone have a small case of it? Just curious....Thanks!
  7. I ask this because a year or two ago, I was found to have elevated liver enzymes in normal blood tests. I was tested again and the results were the same. Well, now that I've been diagnosed with POTS, I was wondering if there was a connection. They did CT scans, extensive blood work, etc....but could not find anything wrong with my liver. Could this be POTS related? If so, could this have a long term damaging effect on my liver?
  8. I've read all the sites about Pure Autonomic Failure and POTS, but it seems that the symptoms are all the same. Is there a difference in the two? If so, what are they?
  9. Well, I was put on o.1mg once a day about a month ago. I haven't had any headaches associated with the florinef, and I'm able to do a lot more than I was before I started taking it (able to stand longer, walk around more, etc.) I've had a lot of success so far, and I'm hoping that continues. I haven't checked my bp since I started, so I guess I should do that. So far, so good!
  10. I have heard some bad things about Florinef. I was wondering if anyone has had success with it. I read on this site that it raises intracranial pressure? Should I be concerned about that? Thanks in advance for the replies.
  11. It seems that a lot of those on here have lots of back pain or joint pain. Why does POTS cause this? Sorry for all the questions....Just a little new and curious... Thanks Casey
  12. Thanks for the help. One more question....It says do not use compression hose without doctor's supervision. Is that b/c of the rising of blood pressure?
  13. I have a few questions about compression hose... 1. What do they do to help POTS? 2. Do they help significantly? 3. How high do they have to be? waist? knees? 4. How often do you wear them? all the time? just when you are going out? 5. Where is the best place to get them? Any answers would be great. I'm new to POTS and just looking for something to help me with school, church, going out to wal-mart, etc.
  14. Well, b/c I am new to the board, let me quickly tell my story. First of all, I am a 23 year old male. On Dec. 26, 2003, I noticed my heart racing while I was relaxing at home. After trips to the ER, family doctor, cardiologist, endocrinologist, neurologist, infectious disease specialist, and hospitalization, I found this site. I noticed that the symptoms seemed to describe how I felt. So I looked at the physicians list and found one in Charleston, SC, 2 hours from home. I visited Dr. Bergmann on June 23, and was quickly diagnosed with POTS. He reassured me that I WOULD NOT DIE, which re
  15. I am diagnosed with POTS, but just wondering how one would know the difference with Pure Autonomic Failure?
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