Jacquie802 Posted August 23, 2006 Report Share Posted August 23, 2006 Hi guys,I haven't posted much lately because I have been soo exhausted. I found out that my test came back negative for the pheo..Thank you all for your support while I was waiting.The docs are still trying to figure out why my body is making so much histamine....I am going to see a new neuro to go over things, esp with my new sudden fatigue. The endo suggested narcolepsy, but I'm not thinking it's that. I think it's just the usual POTS stuff, but I'm not sure why it's just started to get so severe. I'm pretty sure that I am going to be going in for a sleep study soon, I am waiting to hear back from my cardio about what's going on next...Jacquie Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted August 23, 2006 Report Share Posted August 23, 2006 Glad to hear the test came back negative I'm sorry you've been feeling so tired lately...hopefully it's just a passing thing and isn't a sign of something new! You'll be in my thoughts Hugs,lauren Quote Link to comment Share on other sites More sharing options...
mom4cem Posted August 23, 2006 Report Share Posted August 23, 2006 Good to hear about your negative pheo results. Hope you get some answers soon. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted August 23, 2006 Report Share Posted August 23, 2006 Hope you get some answers and relief soon. Severe fatigue is not unusual with POTS. Hopefully it will resolve soon for you.Katherine Quote Link to comment Share on other sites More sharing options...
BEE Posted August 24, 2006 Report Share Posted August 24, 2006 Hey Jacquie Sorry to hear that your still weak and fatigued...it stinks but you know I go through phases of the fatigue and weakness(feels like my arms and legs are rubber and all over just weak.). I wish I had some advice to deal with this..just try and take it easy. I hope it goes away soon for you. Glad there is no tumor...Hugs..Bee Quote Link to comment Share on other sites More sharing options...
BEE Posted August 24, 2006 Report Share Posted August 24, 2006 Jacquie I wanted to add do you have allergies..I am a walking histamine...they are telling me it is due to the allergies(just found out I am allergic to lots). Also there is Mast cell disorder???? Quote Link to comment Share on other sites More sharing options...
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