lalalisa Posted July 22, 2006 Report Share Posted July 22, 2006 Steph,Are you now able to get the Epogen? If so I will be rejoicing with you over the good news!!Take care and thanks for keeping us updated on your situation,Lisa Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted July 22, 2006 Report Share Posted July 22, 2006 WOW! Just saw this thread. GOOD FOR YOU for threatening to go to the MEDIA.Amazing how that can get folks attention but SORRY for the stress it put you through.Squeaky wheel gets the grease. Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted July 23, 2006 Report Share Posted July 23, 2006 Hey Steph-- That's great news! I'm so happy to read that you can get your injections again.Kristen Quote Link to comment Share on other sites More sharing options...
Roselover Posted July 23, 2006 Report Share Posted July 23, 2006 HUGE SIGH OF RELIEF!!! I felt so helpless and am so glad to hear this news!!!! Quote Link to comment Share on other sites More sharing options...
MNsue Posted July 23, 2006 Report Share Posted July 23, 2006 Yeah!! Good for you. Sometimes a little media attention is scarier than an attorney. I hope you start to feel better.Rhonda Quote Link to comment Share on other sites More sharing options...
yogini Posted July 23, 2006 Report Share Posted July 23, 2006 Steph,It is so frustrating when insurance gets in the way of what we need. Glad it worked out!'-Rita Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted July 24, 2006 Report Share Posted July 24, 2006 Steph----so glad you said you were going to the media! It's a shame it took all this stress to get your epogen shots back. I didn't realize how bad this stuff can get.I'm a little lost lately with some of this. I have never had the proper ANS testing done---I feel someones missing the mark somewhere here. I have no idea where my blood volume/hemocrit ect. is. All I know is that I can barely venture out much lately, and if I do I feel like I'm in heart failure. however, today was one of the better days----counting my blessings...........Again----it's great to bring up the media---then all of a sudden things somehow work out---amazing isn't it........Julie :0) Quote Link to comment Share on other sites More sharing options...
briarrose Posted July 24, 2006 Author Report Share Posted July 24, 2006 Thank you everyone for your support, I appreciate all of your nice comments I hate to be heavy-handed but I was terrified about losing my health completely again. I don't think I have the fight in me anymore to make a come back like a did before so I'm just glad it has worked out, hopefully for good. I've started getting my injections again, what a big difference. Julia I hope you start to feel better again soon. I haven't had that much testing done but it was obvious looking at me and watch my vitals swing 3 years ago how bad I was then. I feel like a different person today thx to all of my medications and a few of my doctor's, especially wonderful Dr. Grubb for hanging in there with me!thxSteph Quote Link to comment Share on other sites More sharing options...
goldicedance Posted July 24, 2006 Report Share Posted July 24, 2006 Steph, MAZEL TOV!!! Hope you are back on the bend! Lois Quote Link to comment Share on other sites More sharing options...
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