halmad85 Posted March 1, 2006 Report Share Posted March 1, 2006 Well, I had the TTT done by the doctor who I thought didn't know anything about POTS. But, he actually came through for me. During the TTT, my starting rate at rest was I think 66. Then they raised the table and within a minute it shot up to 144, and I felt soooo sick. The part I was a little unsure about was that it didn't stay high throughout the test. It went back down to the 80's, then fluctuated between 80-110. Then they put in the IV med, and when I went back up...same thing...pulse 150-160 and all the symptoms. Then it stayed around 130-140 for something like 10 minutes, and went back down. I kinda thought it was supposed to stay up. I don't know? My BP didn't show any significant changes.So, I asked him what he thought from the test, and he said I have an obvious orthostatic intolerance. I said, well, is it the "POTS" that I thought it was? He said he never hears it referred to as POTS, but I definitely do have postural orthostatic tachycardia. I said, well, "that's POTS". So, I got my dx without having to see a non participating provider with my insurance. He's starting me on Inderal 10mg (I think) BID - TID. He gave me the prn for Xanax, and wants me to continue the Florinef. I'll see him again in about a week to discuss how the meds are working. He said if I don't see improvement he'll refer me to the EP specialist in the hospital to take over my care. Well, it's been a long day so far but I'm so glad that this doctor got to see that I really do have a problem and I'm not just anxious. Thanks for all the support along the way. Hope everyone is doing well today. Thanks,Jen Quote Link to comment Share on other sites More sharing options...
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