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About halmad85

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  • Birthday 10/16/1979

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  1. I have been doing very well the last week or so. I think my Sectral has finally taken its coarse. I've gotten past the bradycardia. Lately, my pulse doesn't go above 125, and my symptoms are still around, but minimal. I was almost to the point of disability, but now, I'm doing much better. I'm continuing to work as a nurse and being on my feet for a couple hours at a time. I really hope this continues for me. I also hope you find the right treatment for you!
  2. I mentioned before about my trip to the ER last week...higher BP than usual, massive heart palps and pressure. Well, ever since then, I've still been running a higher BP. My usual is 100 systolic or lower. I've never run over 130 before, and that was high. Now, all of a sudden, my BP is like 140/80 to 160/100. What could be causing this change? My EKG and heart monitor were fine. I just don't understand what it could be. The only thing I've done differently is I started Mobic last week for my joint pain. Any ideas? Has anyone else experienced this from POTS alone?
  3. Hey guys! How's everyone? Well, I had a rough weekend. My pulse stayed in the 40's throughout the days and continuing through Mon. I had such terrible pressure in my chest and head. The head pressure is caused from taking Sectral (anyone else have that?). Then with my chest, everytime I would sit or lat down I had one massive palpitation after another. I always have palpitations, but never like that. My bp went as high as 156/91 149/98. I know that's nothing too bad...but I usually run a systolic under 100. So, I was a little nervous about these bps. I called my doc on Monday and
  4. I've been on Sectral for about 3 weeks or so. I started at 200mg once a day. It would put my pulse low in the morning/afternoon and then by the evening while I'm at work it was back up. So, my doctor decided to increase it to keep it from getting high in the evening...now 200mg twice a day. I figured I would find my pulse being lower in the morning for sure. But, now my pulse keeps getting high all the time again. I'll just walk into the kitchen, feel sick..and my pulse will be like 108 or so. While at work it's hanging around 100-130. I know that's not too bad, but I get very sick if
  5. Oh wow...that's way too much to hold in your poor bladder. I have IC, and my bladder capacity is only 200. So, I freak if I'm retaining 250cc. I hope you get this figured out. Sorry you're having more to deal with.
  6. Oh Willows. That is so terrible. I'm so sorry you have to go through that. It's scary. I agree that you should try to get that alarm if possible. Again, I'm sorry for your worries and so glad you're okay.
  7. Prayers to you and your family
  8. Well everyone....I went to my rheumotologist to discuss my pain and had an absolutely horrible experience. He was a terrible man with a cold heart. Told me he doesn't know what's wrong and "what do you want me to do about it" . He made it clear that he wouldn't be giving me ANY medication because I take too many meds for someone my age. (Talking about meds for POTS and IC). He said I don't need to be on any medication and was certainly too young for pain meds. (I didn't ask him for medication by the way). I asked him to help me find out what's wrong and to treat me. When I asked him w
  9. I've got the same problem. I am always so tired. I nap during the day and wake up tired. Sometimes I'm just walking around like a zombie. Hopefully someone can shed some light on this for all of us.
  10. I can also relate. I've been getting very sad about this what this illness has taken from me. I'm just about to apply for disability after going to school to be an LPN, and I've only worked as one for a year and a half. I can't even keep up with my housework anymore. Just remember that we are all here for you, and understand what your're going through.
  11. The side effect I had with the Verapamil was a low BP. Went down to 76/64 (my lowest). It didn't improve my symptoms though. I also tried Cardizem, and that didn't touch the symptoms either (except I did have less of those really harsh/painful palpitations). I know for many it causes constipation. Which was a bonus for me because I have the other end of the GI problems. I hope it works for you!
  12. I have IBS and have been dealing with chronic diarrhea for about 2 1/2 years. I tried fiber tabs, and they did help for a little while, but then they gave up on me. Since then I've been taking Immodium 1 or 2 per day. I wish I could be more help, but I still suffer with this issue.
  13. You guys have given me so many things to consider. Thanks alot. I am on a beta blocker at this time. But, my pain has been there for much longer than when I started the beta blocker. Although I can say that my pain is at an all time high now. I pretty much can't get through a single minute without some sort of pain. I guess the only thing for me to do is just call my primary and tell him main pain is becoming worse, and I want to know why I have this. He'll probably refer me to a different rheum. Which would be a good start. Thanks everyone for all the ideas.
  14. I'm sorry to hear that you were denied this time. I really think the system is horrible. I can't believe that people like us who sometimes can barely make it out of the bed, can be denied and told we should be going to work. I'm planning to apply also. I've been trying to stick it out and go to work...but things aren't looking good with my treatments and I can't go on like this anymore. I'm very nervous to take this step, but I'm come to realize it has to be this way now. I haven't decided about the laywer situation yet. I have heard from many people that they were still stuck doing a
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