gdomaracki Posted February 24, 2006 Report Share Posted February 24, 2006 I went to a pots specialist today, which I thought was going to be a great idea. Finally talking with someone who doesn't think i'm a nut, and understands what I'm going through. But, after speaking with him and hearing him tell me that it may be years until I get better if I do at all. And that I'm one of the worse cases he has seen. Its devastating! And the worst thing was, that my mom was there and she started bawling. I knew that this would be hard, but hearing it from a doctor hurt so much more. I can't stop crying.I also found out that I might have been suffering from this all along, and a mild virus I had in Oct. put me over the edge. He has decided to change my midodrine to 10mg 3x daily, .2mg of florinef (trying again), salt tablets, and exercise. He mentioned that I am pooling REALLY bad, within a matter of minutes my hands and legs swell. I just can't accept the fact that I'm sick, and things might not change. I hurt so bad. . .Thank you for listening,Nicole Quote Link to comment Share on other sites More sharing options...
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