bamagirl Posted February 22, 2006 Report Share Posted February 22, 2006 Hello,Back from Mayo and I saw Dr. Low. He was very nice. I had all the usual tests. Autonomic reflex test, sweat test, blood tests for antiganglionic antibiodies. My tests revealed that I have severe dysautonomia with small fiber neuropathy in both of my feet. My reflex test was normal except my foot didn't sweat, my TTT was normal except for a 20 point increase in HR while standing-my bp did fine. My sweat test was normal except for thr tops of my feet, hence the small fiber neuropathy. My antiganglionic antibody test was normal, my lying and standing catecholamines and norepinephrine was normal too. He basically said I didn't have just "POTS", that my autonomic nervous system was behaving badly and wanted me to take clonidine. I told him that my biggest problem is these horrible autonomic storms that leave me bedridden for days and weeks at a time. I go back next year as a research patient. I was disappointed that we couldn't find a reason for the cause. Although we did discover that it isn't autoimmune, isn't my hormones or catecholamines and norepinephrine, and I don't have autonomic failure or neuropathy. I also know it isn't genetic and I was not born with it. Has anyone found the cause of your POTS? Does anyone else have small fiber neuropathy or "burning feet"? Take carebamagirl Quote Link to comment Share on other sites More sharing options...
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