Vision Problems?

[lalalisa]

Hello!

Over the past couple of weeks I've been noticing that my eyes are acting "funny." Not only am I having trouble focusing at times (things are just a bit blurry) my eyes are not adjusting to light.

Do others have problems with light sensitivity? What about general blurriness?

One change for me lately is that I had 3 migraines last week (I do get the visual aura for about an hour where I can't see well / wavy lines / etc.)

I can't really put it into words -- except that something seems to have changed.

Thanks for any input,

Lisa

[Dizzy Dame]

"Get thee to a doctor..."

A problem with adjusting to light is no joke. I'm not trying to scare you because it may not be anything serious but you should really try to go see your doctor

I've only had vision problems a few times but they figured out it was some wierd POTS/migrane thingy.

Good luck and keep us posted,

Lauren

[momofpreciousboy]

I have a lot of problems with my eyes. Is the something that seems not right anything like this: If you close one eye, it seems normal, and it is the two working together that seems to be not right? It seems this way to me as far as my vision goes. No idea as to what it is. I have all the symptoms you list and floaters, swelling due to increased fluid. I have noticed when I am exercising that my vision clears up and if I get startled that it clears. Maybe due to an increase in bp?? I am waiting on a opto whatever neurologist for over 2 months now. It has been the neuro did not send the referral, and the neuro says they did and just not hearing back from them. Fixing to find another one. I also have a blurry spot that is more consistent. Good luck. JenniferTX

[hopeful-girl]

WOW second great post today I relate to also LOL I do get the exact smae thing. And it is so strange to say what it feels like. But it is very bothersome for me. I have ahard time also between the transision from daylight to night time. Do you experience that at all too?

Cheers

Corina (hopeful-girl)

[Deb M.]

Hi,

I have extreme light sensitivity a lot! Although my only diagnosis is IST... the neuro-opthamologist thought I could possibly have something that is in the same family as migraines without the headache. I also have extreme sensitivity to sound. Both sensitivities make me feel as if I'm going to pass out or that my brain is shutting down.

And I was having a very hard time being outside when the sun was setting. For some reason my eyes and my brain felt confused that it was getting dark outside. It's getting better, but still not great!

Sadly enough, I'm excited to hear that I'm not the only one who has these problems!

I also have nystagmus, where my eye moves involuntarily. It's very subtle. No one can see it without a opthamologist's tool. It makes my world look like it's vibrating...VERY annoying.

Deb M.

[persephone]

I've been horrific for this lately- esp since trying flourinef.

Today was the worst- all day long I saw sparkles, which were hideous.

I could cry today I am so frustrated and down about everything.

[Evie]

I go through many days feeling "stoned" as my eyesight is all blurry and the light can hurt my eyes too .. then other days im fine .. then the next day i may find it really hard to judge distance so i run into things alot.

I have found its all OI related ... but its always best to check with a dr as these sorts of things can by symptoms of so many ailments.

Good luck

[taylortotmom]

I never leave the house without wearing sunglasses for that very reason. I have a strong history of opthmalogic (Sp?) migraines. However, since this is a new presentation for you definintely have it investigated fully. At one point, it was difficult to tell my migraines from TIA's (actually have had both confirmed by neuro) and a TIA is just astep away from a full-blown stroke so don't procrastinate. Especially with your POTS hx- don't play around with this and don't let a doctor minimize it without further testing.

Carmen

[Traci]

I have alot of vision problems.

At times my eyes feel unfocused also.

I also get light sensitivity, but not as bad recently as in the past. And the odd time I will get eye pain.

When I get the light sensitivity, I'm always squinting. It's not exactly a comfortable feeling

Traci

[Deb M.]

Carmen,

What exactly are opthmalogic migraines?? What happens when you get them??

Deb M.

[taylortotmom]

Opthmalogic migraines and complicated migraines are terms sometimes terms used interchangeably depending on which specialist is doing the diagnosing. The migraines I am speaking of have strong visual auras such as not only spots, or flashing lights as is common in classic migraine but wavy lines (This is really weird) and losing a portion of your field of vision. For example, it was like I could only see half of things as though the right side of things were completely gone. It was one of the scariest things I've ever expereinced. The term opthmalogic migraine was given to me by an opthmalogist who examined me for MS.

Carmen

[morgan617]

I just got my eyes checked again for the blurriness. He thinks I had an infarct in my right eye from when I was last in the hospital. I have vascular changes consistant with hypertension. It is important to get your eyes checked on a regular basis, especially with bp problems. There can be any number of things wrong and too many to try and guess what it is. morgan

[Deb M.]

Hmmm...

Sometimes with my dizziness I see very faint diagonal lines that cross to form a grid...I wonder if my neuro-opth doc was onto something. Maybe that's why he said what I have may fall in the same family as migraines w/o headaches...

Can migraines cause tachycardia?? I wonder...

Deb M.

[lalalisa]

Thanks for all of your posts,

I am glad that this seems to be a "POTSY" symptom but will contact my dr. and try to see an opthamologist.

....just to clairify, The Migraines with visual aura are not new but the sensitivities and blurry vision are new symptoms.

Thanks again,

Lisa

[ariella]

Lisa,

another couple of possibilities:

I have very dry eyes, either related to dysautonomia or to some as yet unidentified autoimmune disease. Dysautonomia can alter tear production, which can cause some serious vision problem. My opthomologist is on my case big time about using artificial tears.

Also, don't know if it was related to dysautonomia or not, but I had elevated pressure in my eyes for a nice chunk of time. Unusual for someone only 35 years old.

Please see a doctor.

Ariella

[Dawg Tired]

My vision problems are from dry eyes and that is an autonomic problem. I use eye gel at night then artificial tears in the day time.

[lalalisa]

Ariella and Dawg tired.

Thanks for your input. I've also experienced eye pressure at times -- it's like the sensation that your eyes are too full, really weird!

I don't believe in my case that my eyes are dry -- would I know it if they were? I do wear contacts sometimes and they feel fine.

Thanks again,

Lisa

[ramakentesh]

According to my dcotor POTS causes constriction of the arteries in the brain and the eyes - causing bizarre vision changes similar to those one would expect before a migraine.

I used to have blurred vision, as well as sort of weird peripheral vision. it all began when i got pots and its how i can tell im coming down again.

[hockeykid]

I get weird blurrness that I can't describe a lot, it isn't exactly blurriness, it is more just not being able to see well. Sometimes in the evening they get really dry. Also I am extremely sensitive to light, I can't go outside even on a cloudy day without my sunglasses.

[Mrs. Glass]

Good Morning,

Yes, my eyes seem to be getting worse too. I can not stand to be in a room with flourescent lighting, or outside with out my dark shades on. I try to read and my eyes will not stay focused, and the worse is when they gray out, it will either be totally or just the peripheral vision. It is very frustrating! My Neurologist told me that it was all part of it. When I was diagnosed with Glaucoma my eye Doctor said that he could not get my eyes corrected to 20/20, so he sent me to a specialist. That guy was a big joke, all he did was take pictures and told me to come back in 2 years. I have not found anything that seems to help with the blurring, the only thing that I can do is to wear dark brown shades in the sun and flourescent lighting. Hope you find an answer. Vanessa

Hello!

Over the past couple of weeks I've been noticing that my eyes are acting "funny."  Not only am I having trouble focusing at times (things are just a bit blurry) my eyes are not adjusting to light. 

Do others have problems with light sensitivity?  What about general blurriness? 

One change for me lately is that I had 3 migraines last week (I do get the visual aura for about an hour where I can't see well / wavy lines / etc.)

I can't really put it into words -- except that something seems to have changed.

Thanks for any input,

Lisa

<{POST_SNAPBACK}>

[ramakentesh]

I get this sort of inability to focus - weird depth perception

[lalalisa]

Thanks for all of the posts, it sounds like I'm not the only one with this weird symptom.

One of you mentioned extra pressure on your eyes -- I do get this at times. It feels like my eyes are under pressure and almost like they're too big to be my eyes.

Weird!

Thanks again,

Lisa

[Sunfish]

i don't seem to have all the vision problems that some of you mention but have experienced several things...

i am definitely super sensitive to light, i.e. can totally relate to others who say they wear sunglasses when it isn't sunny. i've done the same for years & often get teased about it...

when i'm feeling my worst i have trouble focusing my eyes. i think this may be more of a cognitive issue than an eye-specific issue.

i have issues with dryness at times, and it often corresponds with when i'm particularly dry elsewhere, i.e. mouth/saliva. this i've been told is part of the autonomic picture.

probably b/c of the dryness, i have more vessels than i should have in my eyes. it's something that often happens in long-time contact wearers & while i do wear contacts my vessels look as if i've been wearing them a lot longer than i have. this doesn't effect my vision; i just have to be careful b/c in a super severe stage it can & i plan on having many years of seeing left ahead of me.

my pupils are a bit goofy and one is generally a bit larger than the other. all the autonomic docs i've seen over the years love it:-)

i actually just had a test done called a pupillometry reading. dr. shields wanted to do it after my QSART last week & it wasn't invasive at all so i said sure. i don't think it tells much in and of itself but is more for comparison over time.

i don't think it has anything to do with anything (other than genetics) but i've worn glasses (or contacts) since i was in first grade & am pretty severely nearsighted...

so that's all my eye fun to add to the mix...

melissa

[briarrose]

I've posted this topic a few times as I've had a number of varying problems.

At times I have twitching in my face or eye, more annoying than anything.

I've had visual disturbances that turned out to be painless migraines, mainly just aura. I also have normal migraines with pain

I've been having blurring of my vision of recent again and my primary sent me to be examined by the ophtamologist and the eye doc told me that my eyes look good and tossed me back to the doc.

I do have periods of low blood pressure and I'm sure that has a huge effect on my vision. But I wish someone would figure out what's really going on instead of guessing. I would rather be told that they don't know instead of taking stabs in the dark.

[gelann]

My daughter also has been having blurriness or her eyes. We went to the opthmologist and she checked her eyes out and said they looked fine. Her PUPILS do act strangely on many occasions. They are huge when they should be small. Her eyes are very sensitive to light also.