faithinspires Posted September 19, 2005 Report Share Posted September 19, 2005 I have neurocardiogenic syncope, postural orthostatic tachycardia syndrome, asthma, chronic bronchitis/sinusitis, esophagitis, severe gastritis, hiatal hernia, diverticulosis, irritable bowel syndrome, PTSD, anxiety/depression.I had a positive tilt table test. I am on SSI.(my daughter has ncs & pots too)My current medications (these change frequently, as I have had chemical sensitivities to more than a dozen now): Nadolol, Midodrine, Advair, Albuterol, Nasonex, Protonix, Tetracycline, Lexapro, Clonazepam.As I read your posts, I can soo relate to all of you!I was sick like most for a long time before a diagnosis was made. I continue to be a guinea pig for treatment, still to find the right combination of meds to improve my level of functioning and quality of life.I look forward to being a part of this group! Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted September 19, 2005 Report Share Posted September 19, 2005 Hi Faith,Welcome to the forum! It is great to have you here. I hope you'll find the same insightful advice and emotional support (as well as laughter) that i have found here. How old is your daughter? What part of the country/world are you from? I'm a graduate student from Ohio.Kristen Quote Link to comment Share on other sites More sharing options...
faithinspires Posted September 19, 2005 Author Report Share Posted September 19, 2005 Hi Faith,Welcome to the forum! It is great to have you here. I hope you'll find the same insightful advice and emotional support (as well as laughter) that i have found here. How old is your daughter? What part of the country/world are you from? I'm a graduate student from Ohio.Kristen<{POST_SNAPBACK}>Hi Kristen, Thank you for your response. I am glad to be here with others who understand what it is like to live with this condition. I look forward to the insight and support. My daughter with this condition is 18. I am 35. I also have a 12 year daughter and a nine year old son. We are from Wisconsin. (As I read your response I noticed I forgot to list Nasonex...lol...too many meds and conditions to remember). Quote Link to comment Share on other sites More sharing options...
pamela Posted September 19, 2005 Report Share Posted September 19, 2005 Greet to meet you. I am a sorta new member. This site is a great place to learn about your disorder and all that goes with it. Take care!pam in NC Quote Link to comment Share on other sites More sharing options...
faithinspires Posted September 20, 2005 Author Report Share Posted September 20, 2005 Greet to meet you. I am a sorta new member. This site is a great place to learn about your disorder and all that goes with it. Take care!pam in NC<{POST_SNAPBACK}>Hi Pam, Its good to meet you! I just read your reply regarding exercises. Those are good suggestions. My daughter with this condition dances for exercise. Take Care! Quote Link to comment Share on other sites More sharing options...
morgan617 Posted September 20, 2005 Report Share Posted September 20, 2005 Welcome to our little corner of the world! We are always glad to have new people on board. Hope you will find it helpful and funny and an overall good place to be...morgan Quote Link to comment Share on other sites More sharing options...
Sunfish Posted September 20, 2005 Report Share Posted September 20, 2005 hi faith-welcome! i'm sorry that you have a reason to be here in the first place but am glad you found the forum. there's a lot of good info here & some pretty great people to go along with it (if i may say so ). we're glad to have you aboard.my "vital stats" of sorts are in my signature below. a member recently suggested that we all add our info below when we have a chance as it can helpful in keeping track of things in the midst of all the posts day to day....looking forward to "seeing" you around! melissa Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 20, 2005 Report Share Posted September 20, 2005 Hi,Welcome to our world.You seem to qualify to be part of our group!You will find many understanding friends here. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted September 20, 2005 Report Share Posted September 20, 2005 Welome to the forum. I hope you find a great deal of help here Quote Link to comment Share on other sites More sharing options...
PattiL Posted September 20, 2005 Report Share Posted September 20, 2005 Hi,My daughter is 19 yrs. old and has POTS. You will find soooo much useful information on this site. I don't know what I would've done without it. Welcome,Patti Quote Link to comment Share on other sites More sharing options...
Poohbear Posted September 20, 2005 Report Share Posted September 20, 2005 Welcome to the site. Sometimes I think we feel we are on our own little planet but it's nice to be understood by so many people!! Come to think of it-- it would actually be nice if we really WERE on our OWN planet because then we could rule it and we wouldn't allow the nonsense that goes on with insurance, goverment and Dr's to be like it is. I hope you'll find this site to be informative and supportive!! Quote Link to comment Share on other sites More sharing options...
corina Posted September 20, 2005 Report Share Posted September 20, 2005 welcome faithinspires,you found yourself a bunch of great new friends!Corina Quote Link to comment Share on other sites More sharing options...
faithinspires Posted September 20, 2005 Author Report Share Posted September 20, 2005 Morgan, Melissa, Ernie, MightyMouse, Patti, PoohbearThank you all for your replies! I have already found this site to be very informative and uplifting! It is so great to converse with others who know the battles of this condition! Quote Link to comment Share on other sites More sharing options...
mom4cem Posted September 21, 2005 Report Share Posted September 21, 2005 Welcome Faith. I am sure you will find comfort and support here whenever you need it! Quote Link to comment Share on other sites More sharing options...
faithinspires Posted September 21, 2005 Author Report Share Posted September 21, 2005 Welcome Faith. I am sure you will find comfort and support here whenever you need it! <{POST_SNAPBACK}>thank you mom4cem! i already comfort and support here and a better acceptance of my condition and circumstances! Take Care! Quote Link to comment Share on other sites More sharing options...
DancingLight Posted September 22, 2005 Report Share Posted September 22, 2005 Welcome, welcome, welcome!You will find this place to be a comfort and a refuge and source of information...Emily Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted September 22, 2005 Report Share Posted September 22, 2005 HI faith,You responded to my question about BB's and Hypotension yesterday and I really appreciated it. You sound like you've had a pretty rough time, but you have a wonderful, supportive family and that means alot. I look forward to talking with you. - Lauren Quote Link to comment Share on other sites More sharing options...
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