morgan617 Posted September 6, 2005 Report Share Posted September 6, 2005 Well I tried the cortef. I was supposed to take 40 mgs in am and 20 in pm. That made me a little nervous, so I took 20 mg. OMG I did not like it. It didn't help that I had to get a tooth extracted I suppose, from fainting and cracking my head and my tooth.I do not believe it causes me to have my episodes, but it certainly seems to exacerbate them. I took 10 the next day and 5 yesterday. I felt crummy all three days, so I guess that rules out adrenal insufficiency, even though my doctor did say none of the tests were normal. Man I was so sure I was on a right path finally. I could try it again, but it is soooo hard to take something that makes you feel worse when you already believe you can't feel any any worse!!I couldn't even sit up without my heart taking off on a wild goose chase and not letting up. And I couldn't lie still. I had the heebie bejeebers all day long. Dan , my doctor said, if it didn't help he was going to put me in the hospital, and have me checked out by everyone. But since I couldn't even take one full dose, I feel really really stupid. But then tonight, my hubs took me for a 15 minute drive and we had to come home so I could lie down. So this is no life either. ARGHI know the hospital will be fruitless, but there is absolutely no quality to my life at this point now. We both know, no one in this area knows POTS, and it's just so frustrating. I am so tired. What would you guys do, knowing hospital will probably be useless, but not even being able to sit up, let alone stand or walk anymore? Thanks, tootiredtobealivemorgan Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.