Derek1987 Posted January 14, 2019 Report Share Posted January 14, 2019 Today I went to the doctors office. It was an appointment for my wife. My anxiety was up. My palms were sweating the whole time. My hands were red and veins were popping out of my hands more than usual. I've noticed my whole arms from the elbows to the hands turn red with my veins popping out when I do a couple basic chores around the house. I was also nauseated and had a weird feeling in my gut. Not anything new. Anyways we sat there for about 2 hours in the lobby then finally get called back. I was talking to my wife and in mid sentence it felt like I was going out. I got hot, my breathing was heavy and my heart rate jumped up pounding out of my chest. I layed back in the chair for about 10 minutes trying to calm myself down. The doctor finally came in and we left. For the record I have blacked out completely once. And multiple times where I felt like I was about to pass out. I've had near fainting spells where my body is actively trying to faint without a break but I stay awake. Then I have these episodes where it feels like I'm about to go out and I somehow fight it off with trying to relax and lay back or lay down. My wife says I need to start going to the emergency room when this happens to leave a paper trail. But they never help me and I'm already stressed and don't want to hassle with it. I think next time I'll have to go ahead and go. What do you guys make of what I experience? Quote Link to comment Share on other sites More sharing options...
Scout Posted January 15, 2019 Report Share Posted January 15, 2019 Hi Derek, I really relate to that — I have these sudden spells, too, and have fainted a few times because of them. Recently, one occurred out of nowhere and I was surprised I didn't lose consciousness. I felt very hot, and my whole body was pulsing. My brain seemed to sort of "freeze" and not work, and it felt like the floor was falling from under me. The symptoms you are describing do very much so sound like Dysautonomia / ANS dysfunction (of course, I'm not a doctor, though). Do you have a specialist you've seen? Quote Link to comment Share on other sites More sharing options...
corina Posted January 15, 2019 Report Share Posted January 15, 2019 Personally I never go to the ER, when I go out I always bring a bottle of salted water, a salty bite, an apple or whatever I think I might need once I get in trouble. When I feel I might get in trouble before I leave the door, I decide to stay inside. It may need some time to figure out what you need to stay safe but for me this works really well! Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted January 17, 2019 Author Report Share Posted January 17, 2019 On 1/14/2019 at 11:38 PM, Scout said: Hi Derek, I really relate to that — I have these sudden spells, too, and have fainted a few times because of them. Recently, one occurred out of nowhere and I was surprised I didn't lose consciousness. I felt very hot, and my whole body was pulsing. My brain seemed to sort of "freeze" and not work, and it felt like the floor was falling from under me. The symptoms you are describing do very much so sound like Dysautonomia / ANS dysfunction (of course, I'm not a doctor, though). Do you have a specialist you've seen? Yes. I've only seen her once though. Waiting to see her again. She has me on mestinon to slow my heart rate down. She claimed it would heal my nervous system. So far, I'm still the same. I did a few tests that day I saw her. So far, Rocky mountain was detected in my blood work. She claimed it damaged my nervous system. I did a tilt table test. Laying down 81 standing up 126 BPM. My blood pressure was high in all positions but my heart rate changed. I did a 24 urine test but I don't know the results. The brain MRI came back pretty much normal. She showed me a graph of a person upright and how blood fails to reach the brain over time. Then she also said she doesn't think I need compression stockings. She just thinks my adrenaline is in overdrive. So that confused me. I've fainted and had several near fainting episodes. I know my adrenaline is in overdrive though. Quote Link to comment Share on other sites More sharing options...
Help4Me Posted January 17, 2019 Report Share Posted January 17, 2019 Derek the same thing happened to me the other day ...I went to Ear Nose and throat doctors.....had to wait quite awhile...and when the doctor was talking to me I felt like OMG I am going to pass out right now....I didn't say anything to anyone...I just prayed inside myself that I would not pass out...but I knew at least I was with doctors if I did it comes on just as you said....my face gets hot...my chest gets hot.....I just start to feel like I am leaving my body...it is very scary.....I also won't go back to the ER...I have been over 40 times in the past 6 months....and they always say the same thing...your heart is fine, you blood tests are normal...go home and see family doctor.....so what is the point of going to the ER Quote Link to comment Share on other sites More sharing options...
Help4Me Posted January 17, 2019 Report Share Posted January 17, 2019 Did your doctor say how to fix the adrenaline in overdrive issue...... Quote Link to comment Share on other sites More sharing options...
toomanyproblems Posted January 17, 2019 Report Share Posted January 17, 2019 I pass out or nearly pass out all the time. Have for years. I just lie down flat and after a few minutes test the water on getting back up. Then I usually take it easy for a bit. nAfter I usually check my bp If possible, which can be all over the place, and make sure I'm hydrated. I don't bother going to the er. They might give you a bag of fluids and that might help for a while. But not long term. It's probably important to know the results of your 24 hour urine catecholamines before your dr can proceed. Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted January 17, 2019 Author Report Share Posted January 17, 2019 1 hour ago, Help4Me said: Did your doctor say how to fix the adrenaline in overdrive issue...... She said that's what the mestinon is for. It slows my heart to a degree but I'm still in fight or flight mode most of the time. She claimed the mestinon would heal my nervous system. She was talking about how western medicine only treats symptoms. She said the word heal and of course I'm highly skeptical. And more so now since I see other people take it on here and still have issues. I also take Xanax. Not prescribed by her. It helps but not 100 percent. Monday I had a CT scan on my adrenal glands to see if I have any tumors on them. I don't think I'll have any. Anxiety has been a problem for me since childhood. It went into overdrive after I blacked out for the first time in Oct 2017. PTSD for sure. My wife would tell me nothing is wrong and sometimes people just faint. Everyday I would be like am I gonna faint am I gonna faint? I would see stars and feel pins and needles in my hands. Fast FWD to September 2018 and I had 2 near fainting spells within the same week including one at work which both resulted in ambulance rides. After the one at work, it was like I was broken. I haven't regained my strength. I was always exhausted everyday but now I experience so many other symptoms. And I've had a few more near fainting spells since including that one this week. Quote Link to comment Share on other sites More sharing options...
Help4Me Posted January 18, 2019 Report Share Posted January 18, 2019 Derek I can totally relate to you.....I am struggling with the same issues......it is VERY scary....and at times I wish I had a drug to just knock me out so I don't have to FEEL anything.... I keep hoping there is a cure or that some morning I will WAKE UP totally HEALED.....but it has been 7 months now and I am losing hope.....i Had the 24 hour urine for catecholamines and it was normal.....so I don't know what is wrong but I suspect ADRENALS are involved somehow some way..... Quote Link to comment Share on other sites More sharing options...
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