andybonse Posted July 18, 2015 Report Share Posted July 18, 2015 Hey all,I have tried Midodrine, florinef etc etcFlorinef helps a bit, but then daily im really light headed just sitting, even laying, I can get up go out normal heart rate and blood pressure only symptom the bad lightheadedness!The florinef helps the HR.But when I have 2 cans of budweiser 5%, I dont get drunk or imagine it...the lightheadedness GOES COMPLETELY? I dont feel tired anymore, I dont feel weak?I really dont get it, I dont want to have to drink everyday, but it really takes makes me normal?!?!?!?!IF I continue to drink and get tipsy, more drunk, my hr does goes fast, but I feel no symptoms?It really baffles me...lol..... Quote Link to comment Share on other sites More sharing options...
Katybug Posted July 18, 2015 Report Share Posted July 18, 2015 Do you have a hyperandrenergic component to your POTS? Could it be calming that down?It is also surprising since you have MCAS. Many of us with MCAS can not tolerate alcohol due th mast cell degranulation. Quote Link to comment Share on other sites More sharing options...
yogini Posted July 18, 2015 Report Share Posted July 18, 2015 My guess is that you're getting a buzz and forgetting about your symptoms. Alcohol generally lowers blood pressure, both by depressing the central nervous system and by causing water loss. Scientifically it doesn't seem it would be helpful to many people with dysautonomia -- unless you had high BP. If you take florinef I assume you don't have high BP.Your doctor can advise best, but drinking every day to help with POTS symptoms is an unusual course of action! If you are drinking alcohol make sure you drink enough water so as not to get dehydrated. Quote Link to comment Share on other sites More sharing options...
headhunter Posted July 19, 2015 Report Share Posted July 19, 2015 How do you know if you have MCAS? I haven't been to a POTS doc in some years?? Quote Link to comment Share on other sites More sharing options...
statesof Posted July 19, 2015 Report Share Posted July 19, 2015 Alcohol also raises your blood pressure, I at one point found if I drank very moderately at night I would make up feeling more refreshed from sleep than I typically do, but it didn't last for very long. I'm assuming it had something to do with increased bp, maybe also because it is a depressant, not sure though. Quote Link to comment Share on other sites More sharing options...
andybonse Posted July 22, 2015 Author Report Share Posted July 22, 2015 The thing is, the day after I felt so much better in my head too, so its wasn't the buzz or anything,No hyper pots eitherits some sort of effect lol :/ Quote Link to comment Share on other sites More sharing options...
Tuesday Posted July 23, 2015 Report Share Posted July 23, 2015 I've had a similar effect, and I really can't explain it. Just know that you're not alone!I generally don't get hangovers, and a night drinking generally makes me feel a little better. Could very well be the increase in blood pressure and increase in blood volume from just drinking something liquid. Quote Link to comment Share on other sites More sharing options...
andybonse Posted July 24, 2015 Author Report Share Posted July 24, 2015 I have thought maybe its the blood volume, I will test drinking like 2 pints of water lol...I do pee a lot and I have always had bad hangovers! But I dont mixmy drinks stick to a certain limit and im good lol. Quote Link to comment Share on other sites More sharing options...
headhunter Posted July 24, 2015 Report Share Posted July 24, 2015 I had a similar experience, but any more. I used to feel fine about 2 beers in. Even shakiness would go away. But I would wake up in middle of the night with a racing pulse. But 2 drinks wont kill you...enjoy Quote Link to comment Share on other sites More sharing options...
Nova Posted July 24, 2015 Report Share Posted July 24, 2015 i actually would like to know if you have the 'hyper-adrenergic' form or not... i have experienced similar things with alcohol, or major sedatives... it has actually stunned people that my nervous system could take "that much sedative" and i could be just sitting there talking calmly, and thinking "so this is what normal feels like... i forgot". the 'hyper-adrenergic' is a different breed. just be careful, it could end you up an alcoholic or over sedating and you don't want that. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 24, 2015 Report Share Posted July 24, 2015 I used to also get this. Cant really explain it. Volume loading? Mild sympathetic boost the next day? Funnily if i feel well it can bring on pots but if i feel bad it can help. Weird. Quote Link to comment Share on other sites More sharing options...
yogini Posted July 24, 2015 Report Share Posted July 24, 2015 Alcohol can put you to sleep and relax you. I don't think it raises blood pressure, but if you have POTS maybe it is slowing your heart rate? Quote Link to comment Share on other sites More sharing options...
issie Posted July 25, 2015 Report Share Posted July 25, 2015 Hops affects the central nervous system.Some other articles I read people think it may also affect GABA which is calming to the sympathetic system.Maybe, Try the herb by itself and see if it does the same thing.Some get benefit from valerian and Passion flower. My sis takes these two together and says it works great for her.Issie Quote Link to comment Share on other sites More sharing options...
lewis Posted August 2, 2015 Report Share Posted August 2, 2015 I have this same thing, I think it must stimulate the sympathetic nervous system. My mind and thinking is so much clear, I am really much happier and have tons of energy. However the hangover the next day or so isn't worth it. I think it also may deplete some nutrient I am lie on cause takes me a week to get back to feeling ok. Then I hunger for that evening of fun again. Vicious cycle. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted August 20, 2015 Report Share Posted August 20, 2015 I dont think its that easy to figure out. Because if it was GABA then xanax would do the same and it doesnt. GABA may play a role but alcohol has numerous effects including changes in endothelial function, aldosterone activity, and there is a sustained increase in BP the next day after even acute rare use according to several papers that is not explained by increased adrenergic or angiotensin ii mediated vasoconstriction. My take is its an immunosuppressive as well as it also knocks my ank spond on the head occasionally. Volume loading with cold drinks is also helpful at the time. But the danger of saying definitively why it helps is that an assumption can obscure an important clue. Quote Link to comment Share on other sites More sharing options...
Nymph Posted August 22, 2015 Report Share Posted August 22, 2015 I can drink a little (1/2 drink) if I am not having having POTS symptoms at the time. If I am symptomatic, it will make it much worse - palpitations in the night - worse the next day. If I am feeling well going into it I sleep better and thus feel better the next day. But I don't drink beer (gluten). I'm partial to a good single-malt, or an occasional glass of wine, although red wine can set off problems for me, and I don't like white as much. Quote Link to comment Share on other sites More sharing options...
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