Libby Posted September 8, 2012 Report Share Posted September 8, 2012 It happened while I was emptying the dishwasher, which I totally called months ago, but more importantly it happened in front of my mother. She's never really understood, or tried to understand, what POTS is like. How it's limiting. I can't tell you how many times she's screamed at me over the dishwasher, me not emptying it immediately. I've told her that standing in one place for that long can be difficult, she didn't care. Now at least there's some 'proof' behind what I've been telling her. I haven't been this happy to nearly pass out since my TTT Quote Link to comment Share on other sites More sharing options...
Batik Posted September 8, 2012 Report Share Posted September 8, 2012 I'm sorry to hear that your mother's abusive. It's sadly common in people with disabilities/chronic illness. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 8, 2012 Report Share Posted September 8, 2012 Sorry you (almost) passed out, but I know what you mean! I have a hard time getting people to understand how ill I feel too. Quote Link to comment Share on other sites More sharing options...
brethor9 Posted September 9, 2012 Report Share Posted September 9, 2012 Libby....big hug! I am so sorry you had a bad episode.....my mom was exactly the same until I almost fainted in a store one day.....and she got to see my very purple and mottled legs....its sad that we wear our illness on the inside and that people don't take it seriously Quote Link to comment Share on other sites More sharing options...
puppylove Posted September 9, 2012 Report Share Posted September 9, 2012 I'm sorry that happened and I so know how you feel. My family is like that too a lot of the time. It's so frustrating. Quote Link to comment Share on other sites More sharing options...
E Soskis Posted September 9, 2012 Report Share Posted September 9, 2012 It is so hard for people to wrap their head around "dysautonomia" - I get so many blank stares when I try to explain what it is - What is even worse is when family members don't really try to "get it" - It is truly sad when you have to pass out in front of your family before they take you seriously. Quote Link to comment Share on other sites More sharing options...
spinner Posted September 16, 2012 Report Share Posted September 16, 2012 The sad fact is unless you have some known disabling disease few people believe or care that youre sick.Its pretty depressing but thats life.But thats why wer'e all here. We all know what its like. We need others who know. Quote Link to comment Share on other sites More sharing options...
issie Posted September 16, 2012 Report Share Posted September 16, 2012 The sad fact is unless you have some known disabling disease few people believe or care that youre sick.Its pretty depressing but thats life.But thats why wer'e all here. We all know what its like. We need others who know.Amen to that.Issie Quote Link to comment Share on other sites More sharing options...
Libby Posted September 17, 2012 Author Report Share Posted September 17, 2012 ^ word. It's frustrating that certain diseases/illnesses get such great PR, while others get an article, usually uninformed, in a random newspaper twice a year. Not that I don't think that diseases like breast cancer deserve to be recognized/researched, but it'd be nice if we could find a way to share that wealth.And thanks, everyone, for your understanding comments. My mom has been noticeably more aware of my POTS since the incident. I think something finally 'clicked'. Totally worth almost passing out, lol. Quote Link to comment Share on other sites More sharing options...
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