jangle Posted June 18, 2012 Report Share Posted June 18, 2012 When my doctor told me that there wasn't an ICD-9 code for POTS in the EMR, that's when reality finally hit me.We're on POTS island. Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted June 18, 2012 Report Share Posted June 18, 2012 Ba ha ha ha ha ha!!!!! Quote Link to comment Share on other sites More sharing options...
hholmes13 Posted June 18, 2012 Report Share Posted June 18, 2012 Haha no kidding. Oh well at least we're on this awful island together! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 18, 2012 Report Share Posted June 18, 2012 Uh, we're definitely in no man's land. It's still so weird to me living with this illness everyday, having read so much about it, talking to people everyday who have it and then going out into the world and finding no one's ever even heard of it - including Doctors. I think for all we go through we deserve our own darn code! Quote Link to comment Share on other sites More sharing options...
firewatcher Posted June 18, 2012 Report Share Posted June 18, 2012 My doctor tossed me in this bucket: 2012 ICD-9-CM Diagnosis Code 337.9 Unspecified disorder of autonomic nervous systemcondition in which there is a deviation from or interruption of the normal structure or function of the parasympathetic or sympathetic divisions of the autonomic nervous system; autonomic dysfunction may be associated with hypothalamic diseases, brain stem disorders, spinal cord diseases, and peripheral nervous system diseases; manifestations include impairments of vegetative functions including the maintenance of blood pressure, heart rate, pupil function, sweating, reproductive and urinary physiology, and digestion.Short description: Autonomic nerve dis NEC.ICD-9-CM 337.9 is a billable medical code that can be used to specify a diagnosis on a reimbursement claim. Quote Link to comment Share on other sites More sharing options...
jangle Posted June 18, 2012 Author Report Share Posted June 18, 2012 My doctor tossed me in this bucket: 2012 ICD-9-CM Diagnosis Code 337.9 Unspecified disorder of autonomic nervous systemcondition in which there is a deviation from or interruption of the normal structure or function of the parasympathetic or sympathetic divisions of the autonomic nervous system; autonomic dysfunction may be associated with hypothalamic diseases, brain stem disorders, spinal cord diseases, and peripheral nervous system diseases; manifestations include impairments of vegetative functions including the maintenance of blood pressure, heart rate, pupil function, sweating, reproductive and urinary physiology, and digestion.Short description: Autonomic nerve dis NEC.ICD-9-CM 337.9 is a billable medical code that can be used to specify a diagnosis on a reimbursement claim.My cardiologist just says I have postural hypotension.But my BP goes up when I stand?? Quote Link to comment Share on other sites More sharing options...
AllAboutPeace Posted June 18, 2012 Report Share Posted June 18, 2012 Jangle, You definitely need some new doctors... Oh, and can we have unlimited chocolate on Pots Island Quote Link to comment Share on other sites More sharing options...
jangle Posted June 18, 2012 Author Report Share Posted June 18, 2012 Jangle,You definitely need some new doctors...Oh, and can we have unlimited chocolate on Pots Island Yes. and Yes. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 19, 2012 Report Share Posted June 19, 2012 My cardiologist just says I have postural hypotension.But my BP goes up when I stand??Ok now that's just funny! LOL. I guess no need to bother with pesky details, huh? Quote Link to comment Share on other sites More sharing options...
CharmedLinz Posted June 19, 2012 Report Share Posted June 19, 2012 I use 337.9 for everything.There is also no specific code for Small Fiber Neuopathy, Mast Cell Disorder, Chiari 1 Malformation, or a lot of specific Connective Tissue Disorders.hhhmmmm everything I have doesn't seem to exist in medical land.... LOLCan I join the Island???You should see the list of dx codes my docs put on my work-ups they cover everything since specifically nothing has a code, there is usually around a dozen codes listed. Quote Link to comment Share on other sites More sharing options...
Relax86 Posted June 19, 2012 Report Share Posted June 19, 2012 POTS island is such a perfect description...so unbelievably clever and amusing. And only POTS people get it. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted June 19, 2012 Report Share Posted June 19, 2012 It's not Fantasy Island, that's for sure!! "No man is an island" by John Donne 1572-1631....I wonder whether he had POTS?! Can I join the group, too, lol Quote Link to comment Share on other sites More sharing options...
jangle Posted June 19, 2012 Author Report Share Posted June 19, 2012 POTS island is such a perfect description...so unbelievably clever and amusing. And only POTS people get it.It's like not even one of those tropical paradise islands either, it's like a crappy sand only island with nothing to look at. Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted June 19, 2012 Report Share Posted June 19, 2012 Lol. Can we use this code for disability? Quote Link to comment Share on other sites More sharing options...
Wendy C. Posted June 19, 2012 Report Share Posted June 19, 2012 Yes, but it'd have to be a somewhat cold sandy island, otherwise we'd all be too hot... Quote Link to comment Share on other sites More sharing options...
DoozlyGirl Posted June 19, 2012 Report Share Posted June 19, 2012 I use 337.9 for everything.There is also no specific code for Small Fiber Neuopathy, Mast Cell Disorder, Chiari 1 Malformation, or a lot of specific Connective Tissue Disorders.hhhmmmm everything I have doesn't seem to exist in medical land.... LOLCan I join the Island???You should see the list of dx codes my docs put on my work-ups they cover everything since specifically nothing has a code, there is usually around a dozen codes listed.Charmed, Last week, my GP and I found a code for "systemic mast cell disorder" which is the closest we could find for MCAS. Lyn Quote Link to comment Share on other sites More sharing options...
issie Posted June 19, 2012 Report Share Posted June 19, 2012 Ha!Ha! I guess we are all in this sinking boat together hoping for a decent island to land on. At least we do understand each other.But, believe it or not. I got a new med and the directions on the bottle said to be taken occasionally when needed for POTS. So, at least some of our doctors are acknowledging our conditions. I wonder what the druggist thought when he typed that direction label out.Issie Quote Link to comment Share on other sites More sharing options...
Chaos Posted June 19, 2012 Report Share Posted June 19, 2012 I wonder what the druggist thought when he typed that direction label out.IssieHe probably thought you had a diagnosis you made up for yourself. Ha ha! Quote Link to comment Share on other sites More sharing options...
bellgirl Posted June 19, 2012 Report Share Posted June 19, 2012 My pharmacist was very familiar with dysautonomia. I have a lot of respect for pharmacists. She made sure that I wasn't taking my atenolol with the bystolic. That would have been double dosing. She was also very "sympathetic", sorry I couldn't resist the pun...lol Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 20, 2012 Report Share Posted June 20, 2012 I have been placed on Island 337.9, too! I hope it has air conditioning! Quote Link to comment Share on other sites More sharing options...
Chaos Posted June 20, 2012 Report Share Posted June 20, 2012 Good thing POTS Island is surrounded by salt water at least! And, we know the fellow inhabitants are intelligent and have a good sense of humor. Quote Link to comment Share on other sites More sharing options...
jrlehnardt Posted June 20, 2012 Report Share Posted June 20, 2012 question? does it have to be doctors or can patients submit for "who" or "icd" or whoever to get pots as a diagnostic code. could we have our state representatives help us with this orwhat. cause really if there was a code, it would make it better for our doctors, pharmacists, insurance, and for the court with disability and for ourselves. i definitely think that if this is something we could help happen, there are a lot of us that would be willing to do something to help get us a diagnostic code. Quote Link to comment Share on other sites More sharing options...
DoozlyGirl Posted June 20, 2012 Report Share Posted June 20, 2012 question? does it have to be doctors or can patients submit for "who" or "icd" or whoever to get pots as a diagnostic code. could we have our state representatives help us with this orwhat. cause really if there was a code, it would make it better for our doctors, pharmacists, insurance, and for the court with disability and for ourselves. i definitely think that if this is something we could help happen, there are a lot of us that would be willing to do something to help get us a diagnostic code.Great question. I am not familiar with setting up disease codes, but am familiar with establishing procedure codes. Procedure codes for a new medical procedure are designated by the AMA and approved/established by CMS (Centers for Medicare and Medicaid Services). I wonder how disease codes are established? Quote Link to comment Share on other sites More sharing options...
hholmes13 Posted June 20, 2012 Report Share Posted June 20, 2012 Not sure if this is the right thing, but I just did a quick google search and found this: http://www.cms.gov/M...visedcodes.htmlI think we'd have to have some kind of paper/research explaining why a diagnostic code would be needed. Maybe someone's doctor would be interested in doing this?Oops on further reading this looks more like procedure codes... Quote Link to comment Share on other sites More sharing options...
HyperPOTS8 Posted June 20, 2012 Report Share Posted June 20, 2012 I have Kaiser, we use the popular EMR called EPIC and "Postural tachycardia syndrome" is available as a dx...it is listed on my electronic problem list. I am not 100% sure, but I think if it is available to list as an electronic dx, it has to have an associated ICD code. Quote Link to comment Share on other sites More sharing options...
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