TheLivingDead Posted October 27, 2011 Report Share Posted October 27, 2011 so im going on three years of having issues 2 years dx with pots. i decided to smoke marijauana for most of the last year because, with me, it help alot of my problems to the point of not having any signs of illness for 5-6 months. i decided to stop smoking and i was good for a month or more. then one day a week ago i got a small case of vertigo with some hot flashes........it was gone in about an hour. no big deal i thought. 4 days later a few hours after i wake up i have severe vertigo for hours and it would not go away. vertigo is a symptom i had never had prior. so i go to the hospital and they gave me this medication for the vertigo and nausea. i told them since pots i have a very strong sensitivity to many medications........they said you should be fine.........5 mins into im on the verge of a *seizure.severe hot flashes nerves wanting to jump outta my skin, loosing conciousness.that was about a week ago. ever since the vertigo day it seems all of my old symptoms have returned. dizzy spells, heat intollerance, pins and needles, balance issues, numb arms, all over body pains that seem to move randomly around, palipatations, hot flashes, ect......im wondering if pots has a way of going away long term and returning or if it was just playing a trick on me just to come back and ruin my life again. my days have crappy parts and then parts of the day i feel perfectly fine.i just started getting to the point of being able to look down the road at my future instead of just looking for the end of the day. im not sure what the trigger my have been but here i am again....or should i say still. Quote Link to comment Share on other sites More sharing options...
lieze Posted October 27, 2011 Report Share Posted October 27, 2011 It sounds like the marijuana alleviated your symptoms...have you tried it again?I know what you mean about the bad reactions.I just went to the hospital last month because my body balance was so off I was bouncing off of walls and yeah the ER physician said he would give me something for the dizziness but with everything I was describing he was afraid to give it to me...finally someone who listened and took my word for the fact that I have weird reactions and didn't just blame it on anxiety. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted October 28, 2011 Report Share Posted October 28, 2011 My POTS is episodic. It is pretty much neglible for most of the time, but then comes back usually after a long haul airflight in my case. its a pain to go from zero to 100 just when you've started to relax and get on with life... Quote Link to comment Share on other sites More sharing options...
sandymbme Posted October 28, 2011 Report Share Posted October 28, 2011 It can be really hard to cope with the ups and downs of this syndrome. I would not hesitate to try marijuana again if it gave you such relief from your symptoms. It horrifically aggravated mine, but I have known others who have had good results. Keep in mind, when it comes to YOUR body, YOU are the "expert". Good luck!Sandy Quote Link to comment Share on other sites More sharing options...
TheLivingDead Posted October 28, 2011 Author Report Share Posted October 28, 2011 it helped with the pots symptoms but it was giving me the typical pot smoker symptoms. lack of ambition, laziness, coughing, ect.....i didnt want to go to work and come home and have my day dissapear till the next day of work. i was tired of that i wanted to feel life again. now i really feel it. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted October 28, 2011 Report Share Posted October 28, 2011 Marijuana increases NO and is a vasodilator, I've found very small amounts keeps my orthostatic hypertension from slyrocketing. Try using less and less until you find the least that still helps your symptoms. Quote Link to comment Share on other sites More sharing options...
Beckles Posted October 30, 2011 Report Share Posted October 30, 2011 Sorry to hear that! I guess you've got more to go on now knowing that marijuana relieved your symptoms but didn't permanently remove them. Maybe take this info to your doc and see if they can work out more based on this. Best of luck! Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted October 30, 2011 Report Share Posted October 30, 2011 I've been working with my doctor to try and get Marinol approved with my insurance company. Neither of us is sure will work the same way, but it would be nice to try it. To date insurance won't approve it for POTS, **** my insurance won't cover Co-Q-10 for treat of my mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
chipper Posted October 30, 2011 Report Share Posted October 30, 2011 Going backward is so hard to take with vertigo and nausea, which are the worst. Sooo sorry for your misery, can you go back to the smokes? My body does not like anything, the doctor tricked it with the smallest does ever. HUGS and more HUGS! Quote Link to comment Share on other sites More sharing options...
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