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chipper

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About chipper

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    Advanced Member
  • Birthday 03/22/1948

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    Female

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  1. Most of 10 years, but after seeing Dr.Coglan, my life was back to almost normal. There has been backslides.but I work hard and start to feel better again.
  2. Welcome and my prayers go out to you and your beautiful family!
  3. My autonomic condition has been very severe, beginning about 30 years ago, and it has been a battle of variable intensity since. However, basic health is very good. My recent blood work was good. I noticed that only 2 people over 60 has taken the poll. As far as living a very long life goes, I hope that my age (63) will encourage you. Meniere's is another illness that I have that is caused by dysautonomia. EDS III is the cause. My grandmother lived to be 93 and she had EDS. Just like many, I look younger.
  4. It makes my heart beat hard a fast all night. Sorry you are having this passing out. HUGS
  5. We do cry more than we should have to, but I hope and pray that you meet that doctor who will make you feel good, and understand this illness. HUGS and more HUGS!
  6. "True friendship is like sound health; the value of it is seldom known until it be lost." Charles Caleb Colton~

  7. Is Dr. Grubb your doctor. He is mine and my daughter's. If you don't mind, I would like to know the name of your great doctor. Hope you are having a good day.

    Mary

  8. Thank you Mary,

    I feel like I know you even thought we have never met. You have been a constant, yet silent support. I love you too! I hope one day our paths will cross. Are you on Face book? Angel Blessings and xxx's. Bellamia ~

  9. Cruel is sooo true!!! I have thought this many times. Someday we will get the respect that this illness deserves !!! I care, Mary
  10. Hi! Hope you are having one of those better days.

    Mary

  11. I feel that the inner ear dysfunction is caused by dysautonomia. The lack of blood flow to the inner ear. If I am on my feet too much,I will wake in the night with severe vertigo and can lay in only one position for many,many hours and total exhaustion follows for about two or three days. The sensitivity to lights and sounds got better as the POTS improved. This illness has been with me for 30 years with many ups and downs. Blessings to all! Mary
  12. Soooo Happy for You!!! Enjoy!!! Blessings, Mary
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