Machair Posted January 26, 2011 Report Share Posted January 26, 2011 I was wondering how many of you have dizzy spells as a result of the illness and when these occur and how they feel. I have two sorts- one is vertigo where the room spins violently, but this is less frequent than the other kind I get which occurs when I change position from lying to standing, or even from standing to lying. The second kind is more like head pressure at the back of the head and is often accompanied by sweating or palpitations.Do any of these sound familiar? Quote Link to comment Share on other sites More sharing options...
Lovebug Posted January 27, 2011 Report Share Posted January 27, 2011 I get different kinds of dizzy spells like the two you describe. But I never sweat with any of my symptoms (never have & hope that doesn't start). I do get "hot flashes" but I'm usually cold with freezing hands. The dizziness (to me) has no rhyme or reason to it but I do notice it's worse when I get my "dot". I can't wait for menopause...I think! lol! Quote Link to comment Share on other sites More sharing options...
Nikki Posted January 27, 2011 Report Share Posted January 27, 2011 I've probably experienced any kind there is to experience lol. Dizziness has always been my main and worst symptom. Sometimes I'm just a little lightheaded off and on (those are my good days)..The bad days (like the past..oh, month now) have been mixes of lightheadedness, a boaty feeling, the slight vertigo feeling and just being off balance. Some days all of them are combined. Haven't really found anything that helps it though..and I don't think the doctors know what to do with me anymore. :-/ Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted January 27, 2011 Report Share Posted January 27, 2011 Dizziness is my worst symptom too. It's not a spinning dizzy -- it's an off balance, floaty feeling in my head, hard to focus my eyes, sorta drunk, spacey feeling. It's horrible and constant. Some days are worse than others, but it is always there. I also get the second type of dizziness you mentioned when going from bending to standing or laying to standing -- but it IS different -- that one is more a lightheaded feeling and usally passes. Have you been evaluated by a neuro-otologist? Vertigo could be a symptom of Meniere's or another inner ear disorder. Quote Link to comment Share on other sites More sharing options...
targs66 Posted January 27, 2011 Report Share Posted January 27, 2011 I am in the same boat - I could cope with my chronic fatigue until this **** dizziness/vertigo started. I was exhausted, utterly exhausted all the time, but could always push myself to do things (which is probably why I'm so wrecked now). The dizziness for me is like the ground suddenly shifts out from under me, even if I'm sitting down. I suspect it's a sudden BP or heartrate fluctuation, because my head also goes blank. I've never fallen down, but I find myself reaching out to touch something stable when it's happening. It's always accompanied by a sort of gasping feeling, like a sudden jolt of panic, which is why I think it's BP or heart related. I don't think it's my inner ear because I can be sitting perfectly still and have it happen.Midodrine has helped somewhat, but if I am having a bad day, nothing works! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted January 27, 2011 Report Share Posted January 27, 2011 When I am sitting or standing, I don't really have dizziness, but more of a lightheadedness. Now, if I've been walking for a few minutes, what my eyes see kind of doesn't move in a synchronous fashion with my vision--I'm assuming that is a vestibular problem. When I lie down on my side, it's kind of like my eyes are dizzy for a few moments, then everything seems to settle. Quote Link to comment Share on other sites More sharing options...
heathmcev Posted February 22, 2011 Report Share Posted February 22, 2011 Hi all,I'm bringing this post back from last month because i found something interesting. I deal with most of the symptoms above and am in the middle of a bad vertigo episode now (day 5... *sigh*). Since I can't move well or turn my head a lot, doing research on the net is my entertainment! Anyway, I found this article from Dr Takeda in Japan... It's fascinating in that it's the first meaningful thing I've found that makes a real connection between ANS dysfunction & vertigo...http://www.med.or.jp/english/pdf/2006_04/153_157.pdfI'm currently being treated as if my vertigo is migraine-related, but so far none of the treatments have helped & 3 of my other specialists aren't sold on that dx (but don't necessarily have anything new to add beyond saying "maybe it's just the pots..."). I emailed Dr Takeda - we'll see if I hear back from him!!Heather Quote Link to comment Share on other sites More sharing options...
rapid_reader Posted February 23, 2011 Report Share Posted February 23, 2011 When this happens to me I feel like I'm in a fun house at the part where you have to climb up the stairs that are constantly swaying...maybe more like tilting? It has been a while since I last did this. Still this is the best description I can provide of what the sensation is like for me. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted February 23, 2011 Report Share Posted February 23, 2011 WOW! This article addresses exactly what I have been wondering and searching for. WHERE did you find it!? I keep wondering if POTS and my unclassified "inner ear condition" are related. Have also wondered about blood flow to the brain while standing because I feel less spacey/dizzy laying down. The study brought ALL these components together. I printed it out and am going to over it line by line, but the part that stands out most is "In addition to the above mentioned autonomic dysfunction in patients with vertigo, their vertebral blood flow was significicantly lower in response to passive tilt up." I don't have (spinning)vertigo, but I'll bet this could also apply to other types of dizziness. Thanks for sharing this. Quote Link to comment Share on other sites More sharing options...
jbenz1772 Posted February 23, 2011 Report Share Posted February 23, 2011 Mine is a "foggy" walking in a tunnell that is closing in on me that makes me feel faint. Quote Link to comment Share on other sites More sharing options...
heathmcev Posted February 23, 2011 Report Share Posted February 23, 2011 WOW! This article addresses exactly what I have been wondering and searching for. WHERE did you find it!? I keep wondering if POTS and my unclassified "inner ear condition" are related. Have also wondered about blood flow to the brain while standing because I feel less spacey/dizzy laying down. The study brought ALL these components together. I printed it out and am going to over it line by line, but the part that stands out most is "In addition to the above mentioned autonomic dysfunction in patients with vertigo, their vertebral blood flow was significicantly lower in response to passive tilt up." I don't have (spinning)vertigo, but I'll bet this could also apply to other types of dizziness. Thanks for sharing this.Yay! I'm so glad it struck a chord with you too. Doesnt it just make sense?? I found it by googling Autonomic Dysfunction + Vertigo. I did email the author... Will definitely post if I hear from him/her!heather Quote Link to comment Share on other sites More sharing options...
louloutinks Posted February 24, 2011 Report Share Posted February 24, 2011 Well tonight I started to get a new type of dizziness - obviously vertigo. I was sitting down watching TV and everything started to wobble when I moved my head. Started making me feel real nauseous. It's like being spun around, stopping then things start wobbling. I still have it hours later. If I move my head it feels like I have to wait for my eyes to catch up and it doesn't feel too good.I hope I don't keep getting this vertigo and nausea on top of the usual dizziness.The usual dizziness upon standing for me is kind of like a white out - like my vision is engulfed by white pixels from the outside inwards until all I see is white then I have to hold onto something or sit down.I have stopped taking salt after 15 days as my hands were swelling up, so not sure if this is the cause of the vertigo Quote Link to comment Share on other sites More sharing options...
sandymbme Posted February 24, 2011 Report Share Posted February 24, 2011 I have dizzy spells frequently, but no vertigo. I feel as though the blood is draining from my head, and see stars whooshing past me, and down I go! I used to only have near-syncope episodes, where I would get dizzy and bobble, but could typically sit down (very quickly) and avoid losing consciousness. Not so much anymore. My symptoms are getting much worse, where I am actually passing out cold. (And collecting the bruises to prove it!) Worse, today I had a dizzy spell lying down! I took my BP and it was 100/83, with my HR at 145. It seems like my pressure tends to have a really narrow margin when I feel my absolute worst. I mean I feel pretty awful when it's low, but all my symptoms skyrocket when the margin gets narrow.Sandy Quote Link to comment Share on other sites More sharing options...
lissy Posted February 24, 2011 Report Share Posted February 24, 2011 My dizziness is a floating rocking sensation its pretty constant and I have periods of when its worse , even when laying down.If I woke up to early or have been to active and I have to go out I tend to have to hold onto counters/walls ect. and feel very faint.An example yesterday I went to my cardio appointment and they had me standing about 10 minutes at the front desk and it was also very cold outside before entering maybe (20 degrees) when I finally got back to the exam room swaying down the hall it felt like, the nurse took B/P and the 1st time she said thats weird you don't have a B/P and she tried again it was 90/50.So I figured when I have the most dizziness it must be when my B/P is too low....also during menses. Quote Link to comment Share on other sites More sharing options...
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