calypso Posted December 6, 2004 Report Share Posted December 6, 2004 My body has changed so much over the last year that I feel like I'm living in someone else's skin.Since developing POTS after having my daughter in November a year ago here are the changes:I used to have low normal BP that was only rarely symptomatic, and I was ALWAYS freezing cold. Now I am hot all the time and my BP is at the top range of normal or in the borderline range.I have chronic nausea that started in late August that I can't figure out. I haven't pursued much in terms of testing because it's such a vague symptom, and I am so tired of doctors.I have lost 13 pounds beyond my normal weight, but what scares me more than this is that my body composition has totally changed -- it's like I can't form muscle, and all the muscle I had has turned to fat -- not from inactivity, but from my body being in a chronic high metabolic state.I eat and eat and eat, and I can't gain a pound. I used to always feel hypoglycemic, but now I feel hyperglycemic (feel like I just ate a giant piece of cake). I feel like my coordination is off when I use my hands -- like I go to pick things up that would normally not be a problem (i.e., a dinner plate), and I either am too weak to do it or just feel like it takes a huge effort. (But this started just days after the POTS started, so it doesn't seem to be related to the muscle loss.)When I first developed POTS I was dizzy and could barely stand up. Now I can walk around fine but just feel chronically fatigued and nauseated.The only things that have remained constant are that my heart rate goes up 50 bpm when I stand (unless I take a beta blocker, in which case it's more like 20 or 30 bpm) -- and since day 1 I have been short of breath, and this has not changed or gotten better. I am trying to figure out my next move. I feel like I should maybe see an endocrinologist because all of my symptoms seem to be related to my metabolism being super-high (like high body temp, higher BP, nausea, etc.). An endocrinologist is the only doctor I have not yet seen.I have never seen a pulmonologist, even though shortness of breath is my primary complaint. I did have a basic pulmonary function test done and it came back mildly abnormal.Another option is to do nothing, even though my course of illness has been progressive and I believe it may be starting to affect other organs (I recently began having gallbladder/liver pain and had a couple blood tests in these areas come back abnormal, but again, these would be problems caused by the high metabolism).And yet another option is to maybe try a naturopathic doctor. What would you guys do? It's like I have hyperthyroidism but my thyroid is fine. I have symptoms in every area of my body. I do actually feel crazy , because even people with cancer and heart disease don't have this many symptoms. Is it possible for dysautonomia symptoms to totally change or progress over just a year?Amy Quote Link to comment Share on other sites More sharing options...
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