Ling Posted November 23, 2004 Report Share Posted November 23, 2004 I have read that some of you comment on different "stages" of pots. As if there are different levels. That we can go from sick to sicker and then very sick. I have also understood that we might even be coming "better" at some stage. Not healed but better. The reason I wont to know is if I am at a bad level and might improve then I can wait a year or two and see what my health does. It is summer and I feel terrible. Just hoping that I might change levels in a year or two????? Is there any literature on different levels of pots? Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted December 9, 2004 Report Share Posted December 9, 2004 you do improve but its slow going - ive been sick for over a year and im much better now, but certain things - like missing my salty breakfast or taking a antiinflammotory drug can knock me for six Quote Link to comment Share on other sites More sharing options...
Eillyre Posted December 9, 2004 Report Share Posted December 9, 2004 Hi Ling! I'd love to find more literature about POTS myself; I've been going downhill healthwise for a number of months now and would like to find out more about what to expect. So far, my most useful source of POTS info has been this forum. I read just about all the posts, trying to learn as much as I can about the condition, both for my own use and so I can understand what other people are going through/finding helpful/patterns they are noticing. If I can dig up any useful info elsewhere, I'll let you know.Hope you start to improve soon!Angela Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted December 9, 2004 Report Share Posted December 9, 2004 Has anyone found this yet? I'm interested in this but couldn't find a printed statement on "stages of pots". I think someone mentioned this before but I was unable to find it after searching. Sounds like we'll have to ask briarrose to take a crack at it! tearose Quote Link to comment Share on other sites More sharing options...
Eillyre Posted December 9, 2004 Report Share Posted December 9, 2004 Still looking. Yeah, where's Briar when we need her?! Quote Link to comment Share on other sites More sharing options...
briarrose Posted December 9, 2004 Report Share Posted December 9, 2004 You guys are really funny!I actually looked for this before and asked for some clarification on where Ling thinks she saw it or is it just people talking about it seeming like it's in stages. I can think of the stages that I've been through with this illness I will continue to look for this though. I have an appointment with cardiology this morning about some blood pressure/sob issues I've been having. I will try to look later today.I can give you other articles to read if you like.http://jnnp.bmjjournals.com/cgi/content/fu...4/suppl_3/iii31http://jnnp.bmjjournals.com/cgi/reprint/65/3/285http://www.emedicine.com/ped/topic2860.htmI did find this at dynakidsThere are different names, different conditions, different systems impacted, different terms, and different stages, etc.http://www.dynakids.org/what5.jsp Quote Link to comment Share on other sites More sharing options...
yogini Posted December 9, 2004 Report Share Posted December 9, 2004 Briar,I am interested in this article too. Here is the link to the old post describing the article:http://dinet.ipbhost.com/index.php?showtopic=1410&hl=stagesI did a search for it on google, and didn't find anything. But I don't have your sleuthing skills! Thanks again for being our resident news reporter. -Rita Quote Link to comment Share on other sites More sharing options...
briarrose Posted December 9, 2004 Report Share Posted December 9, 2004 RitaI'm sure you do Are you talking about one of thesehttp://www.cmaj.ca/cgi/content/full/164/3/372http://collection.nlc-bnc.ca/100/201/300/c...ntolerance' Quote Link to comment Share on other sites More sharing options...
yogini Posted December 10, 2004 Report Share Posted December 10, 2004 Briar,I think it's called Grading Scale of Orthostatic Intolerance. Pamyla said she had access to it in the prior post, so I will email her if you can't find it.-Rita Quote Link to comment Share on other sites More sharing options...
briarrose Posted December 10, 2004 Report Share Posted December 10, 2004 RitaYou might want to check out some of the things I posted earlier because they did include a grading scale for orthostatic intolerance. Let me know if any of those are it.http://collection.nlc-bnc.ca/100/201/300/c...ntolerance'Syncope, fainting, dizziness, weakness and palpitations occurring in the upright position are not uncommon complaints and are associated with a variety of disorders (Table 1). New tools and concepts have been developed, resulting in the emergence of new diagnoses, such as postural orthostatic tachycardia syndrome (POTS)1 and neurocardiogenic syncope,2 and new scales, such as the composite autonomic scoring scale3 and orthostatic intolerance grading by symptoms.4 Modern technology has allowed us to improve sensitivity in detecting dysautonomiahttp://www.cmaj.ca/cgi/content/full/164/3/372BTW, I found this very interesting; it's about a gal with Chiari I malformationhttp://members.aol.com/swberger/myhomepage/newsletter.htmlSteph Quote Link to comment Share on other sites More sharing options...
briarrose Posted December 10, 2004 Report Share Posted December 10, 2004 Quality of Life in POTS Patientshttp://www.mayo.edu/proceedings/2002/jun/7...achycardia' Quote Link to comment Share on other sites More sharing options...
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