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Please Excuse My Whining


Mrs. Burschman

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Sometimes, you just feel like grousing ...

My autonomic issues are really bad right now. Not sure why. I feel like crud. Heart keeps pounding, hot flushes, exhausted, "blacking out" easier than normal. I feel like I did when I tried to go off Paxil, but I'm still taking it! VERY ANNOYING.

This seems to have all corresponded with a worsening of my digestive system issues. Chicken or egg? I don't know if my digestive system is messed up because of autonomic issues, or if a messed-up digestive system (been diagnosed with ulcerative colitis, but it's not a typical case) could make my whole body "freak out."

Either way, ugh.

It doesn't help that I have no autonomic doc at the moment. Or any doc, for that matter. I sortof have a PCP, but I'm not happy with her. I'm sure she's a fine doctor, but she has a very strong accent, and I have a heck of a time understanding what she's saying.

Sorry for the whining. I'll quit now. :)

Amy

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Whine all you want! We are here to read and support. Sometimes, this is the only place we can gripe and people REALLY understand what we're going through. I actually had a decent day yesterday. Maybe happens 3-4 times a year. I cooked supper! That doesn't happen very often. So, I spent all evening thinking, "what did I eat the day before to feel better?". Of course, didn't eat anything new or unusual. Just would like to know what happens to get a good day! With you mentioning digestive issues, I started a thread on it. It seems like alot of us have digestive issues.

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We are all here for you Amy!

Right now my GI tract is creating an autonomic nightmare... like you, I don't know which is driving which!

Let's both just scream on the count of three, ok?

1....

2....

3!

Hugs and Support, Broken_Shell :)

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Thanks for the responses, everyone! Like you said, it's so nice to know we can come here and people understand our frustrations. Other people try to understand, but I know all of you do!

I appreciate all of you. Thanks for listening!

I felt a little better this afternoon, so that's good.

Amy

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Hope you're feeling better today. We all seem to have digestives issues of some kind. My ANS has gone beserk the last few weeks so I know how you feel. It's usually me complaining about something so I'm glad to listen to someone else. I haven't been able to find a neuro in my area & my PCP doesn't have a clue what to do with me. Good luck in finding a doc to help you.

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Hi Amy

Are you drinking enough - getting enough salt too? Look carefully at your routine and see if anything changed. Sleep, stress, diet, look at it all. Sometimes we just go through bad phases. I have been experiencing that as well. Even if we take care of ourselves things can get out of whack. Treat this as a "flare" and maybe take a couple of days to rest and regain some stability. When we are tired and worn down our nervous system is even more vulnerable. I am basing this on what my drs say and what I have experienced. HOWEVER, having said all that, I still search for answers during my flares. It is hard to balance acceptance with advocating for ourselves. Hang in there!

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[::][::][::]

[::][::][::]

[::][::][steals]

[nibbles]

... <---[crumbs]

[burp]

I spent last night in bed after a lovely day at work moving computers here and there and then back over here and then there again! So I got a migraine! YAY. Even the hydrocodone didn't work. Then I got to go to bed and I woke up from a nosebleed that was gushing into my throat and I nearly choked on it.

But hey. Whatev. I'm here. XD [hugs]

Just keep truckin'. [backfire] O_O

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