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Vertigo


Guest brianala
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Guest brianala

I've had constant vertigo for the past couple of days. I went to my doctor this morning and she said there's not much to be done right now but wait and see if it goes away. I got a prescription for antivert but she said that dramamine is better because at least it makes you drowsy enough to get some rest.

Has anyone else had to deal with this before? I feel like I'm trapped on a boat in rough seas, and anytime I move my head it's like falling off a cliff.

I'm so frustrated and depressed. I started doing roller derby about a month and a half ago, and they just moved me from the new girl group to skating with the regular team. I missed practice yesterday and it looks like I will miss it again on Thursday. I am absolutely in love with derby and I hate my body for sabotaging me like this.

I hope this goes away in a few days. It's driving me absolutely crazy.

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Brainala,

I am so sorry you are going through that! It's very frustrating when you want to live your life but your body has a plan of it's own! I did not like the feeling that the Antivert gave me...sorta made me feel worse but definitely give it a try! Congrats on the roller derby team....that's pretty dang cool!

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I have this problem usually once or twice a year, when the seasons change, primarily. My doctor (went to an ENT, had testing done) has told me that since I injured my inner ear in a motorcycle accident many moons ago that I can get a virus that settles in that damaged area and causes a lot of severe vertigo. You can also certainly have the viral issue without an injury - a virus can settle anywhere in the body. It's so bad I can't drive, sit up for long, or turn my head without the room rocking, loss of balance, nausea, etc. Usually my episodes last about 2 weeks, and then they gradually go away. I agree with your doctor - the best thing for it is Dramamine or Meclizine (rx - Dramamine works just as well). Let us know if this helps you!

Cheers,

Jana

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hi..

I comepletly understand how you are feeling. I feel that way alot. My dr. gave me Meclizine and it helps a bit. However, sometimes its hard to distinguish if its true vertigo or if I am feeling whoozy from blood pressure drops and raises...

Sometimes, when my allergies are bad, the vertigo really kicks in so you might want to try a decongestant that you can tolerate. Mucinex works for me because I cant take anything else.

Feel Better...

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Guest brianala

Thanks, everyone! I thought about a decongestant but I don't think I'm supposed to take that since I'm on Midodrine. I took some dramamine yesterday and it completely knocked me out. I took the anitvert today and I'm doing a bit better. I can get up and move around at least! Hoping the worst of it is over and I can get back to some semblance of normal life now.

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Vertigo was my first symptom and nausea the second and many more followed. The doctors thought it was an inner ear problem, but it was a very costly missed diagnosis. I am so sorry you are missing out on you sport. My love outside of my family was teaching exercise to a dance beat!! It was so much fun!! I still dream of getting back to exercise. I hope and pray that you get back very soon. I wish that nobody would ever have to go through this dys. I hope the dramamine gets rid of the vertigo. Take care, Mary

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Vertigo is absolutely the worst thing. Antivert/Mclezine, Dramamine etc didn't work for me. The side effects were horrible for me but they might work for you. Smallest dose Ativan works best for me & for a lot of people that have Meniere's disease. If you don't get better soon maybe you could ask your dr about it. Hope vertigo leaves & never returns.

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Guest brianala

Well, I thought I was over the worst of it but I was wrong. I was pretty much useless and knocked out on dramamine from Sunday through Tuesday of last week, and a little better on Wednesday. By Thursday I felt great, and Friday and Saturday I was back to normal.

Then Sunday morning I woke up and almost fell over trying to get up to go to the bathroom. It came back just out of nowhere, although it's not as bad as it was last week. Yesterday I was miserable again. This morning I thought I was doing better so I was determined to come in to work, but I'm still not 100%.

I've got a call in to my doctor to get a referral to a balance specialist.

This is absolutely ridiculous. I am miserable and I'm missing more work than I can really afford to. :lol:

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I recently learned that my vertigo is caused by cranial-cervical instability, secondary to eds. If I catch it at the start, wearing a neck brace settles it down. Basically, because my head is too loose on on my spine, I'm bumping some of the neurological structures when I move my head, including those key for balance. Otherwise, something like ativan or valium can lessen it.

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So sorry for your problems with the vertigo.

I also have this problem and unlike others here, I do best with the Antivert. My Dr. prescribed Valium but it just leaves me with vertigo and groggy.

I have found no rhyme or reason for the vertigo; it just happens with no notice. I agree; when the entire room is spinning every time I open my eyes, I am completely bed-ridden. This has caused immense problems on weekdays when my husband was at work (NOT a complaint, as I wish he still had a job and had not been laid off!).

If anybody has been given a reason for the vertigo, other than another autonomic damaged part of the body, I'd love to hear it. I have suspected that maybe there was too little fluid in the inner ear from low blood volume/pooling.

Best wishes,

Elegia

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Guest brianala

I'm still having issues, mostly when I get up out of bed and when I lay down, or move my head to the left. I called and left a message for my doctor on Tuesday and she just called back. She's ordering a CT scan and a consult with a neurologist.

Now I just have to go find acrylic retainers for all my piercings. Whee.

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Guest brianala

Today marks two weeks I've been dealing with this. My derby coach doesn't want me skating again until I get the OK from my doctor. I have a CT scan scheduled for Tuesday. No word yet on the neurologist appointment.

I am not going to make it to practice tonight and it's killing me. I'm really depressed and scared that I'll never really get back to skate like I want to. Just when I finally found something I thought I could do, my stupid body has to go screw everything up.

And the more my dysautonomia interferes with my life, the more alone I feel. People around me mean well, and they ask how I'm doing but when I give an honest answer (usually, "meh" or "not so hot") they really don't know how to act. I mean, I don't really blame them, it's hard not knowing what to say to someone and I'm not going to lie and pretend I'm feeling great when I'm not.

It's nice to know that at least somewhere there are people who understand. I guess this is really the first time it's interfered in a way that has kept me from being able to do something I really love, and it hurts.

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I know that most of us here on the Forum can relate! I went back to college to get my master's degree in anthropology/archaeology, and then landed a job I really loved working as an archaeologist with a Native American tribe up in Northern Arizona by the Grand Canyon. I then moved down to Tucson to live with my fiance, and got the dream job of my life with the county, also doing arch work. I was there 9 months when I got hit with dysautonomia. I struggled through another 2 months, then had to leave. I was heart-broken, and had to grieve for quite some time for the life I had to put behind me. This doesn't mean your life is over, of course, but you have to learn new ways to cope and get your quality of life in other ways.

I really hope that you can make it back to skating - I sure loved it at one time. But if you can't, we're all here to support you and cheer you on.

Hugs,

Jana

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