E246 Posted July 13, 2011 Report Share Posted July 13, 2011 1. Chest pain and pressure almost all the time - worse after standing.2. Irregular heart rate which once it starts sets me off feeling ill.3. Neck Pain.4. Randon onset of feeling so ill i can't even speak and need to lie down.5. Bloated stomach and digestive problems. Quote Link to comment Share on other sites More sharing options...
Birdlady Posted July 14, 2011 Report Share Posted July 14, 2011 Looking through this post, it just sounds like most of us have CFS in addition to POTS. I guess I'm a lucky one and don't have CFS with my POTS... Quote Link to comment Share on other sites More sharing options...
cindeebee Posted January 9, 2012 Report Share Posted January 9, 2012 1. dizzyness - can't get up quickly, can't squat or bend over, can't stand for too long...or will pass out. Flat-lined in 7 min on TTT2. fatigue/lack of energy - usually feel best in morning, towards end of day I have to lie down on floor to get blood back in my head3. tachycardia - from standing up quickly, also exercise-induced (HR around 200 with exercise, can't do any type of inclines or stairs)4. blood pressure - going from hyper to hypo all day long. Diagnosed with hypertension, but have always had trouble keeping it level5. chest/joint/stomach pain - from heart attack (left arm pain/weakness) symptoms and carotid tightness in my neck, to low back pain and gastro issuesIt's been really hard to do the top 5...would like to list at least 10, if not 20. Quote Link to comment Share on other sites More sharing options...
Sif Posted January 9, 2012 Report Share Posted January 9, 2012 1. Tachycardia and chest pain2. Shortness of breath3. Burning pain and altered sensation in hands and feet4. Headaches5. InsomniaIt really depends on the day though. Quote Link to comment Share on other sites More sharing options...
IDreamInColor Posted January 9, 2012 Report Share Posted January 9, 2012 I experience 37 separate symptoms, but the two worst ones are the dizzyness, and the nausea. Quote Link to comment Share on other sites More sharing options...
Alyssa Posted January 9, 2012 Report Share Posted January 9, 2012 1. Syncope and near syncope - if I'm standing longer than 5-10 minutes, I'm going down.2. Myoclonus - jerks in jaw, eyes, and arms mostly3. as of recently, HR fluctuations - skyrocketing, then plummeting...kinda like ping pong4. tied between headache and nausea. They seem to always accompany each other and never really go away5. fatigue coupled with brain fog, they seem to go hand in hand.Next week it will probably be different Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 9, 2012 Report Share Posted January 9, 2012 1. dizziness/lightheadedness/syncope2. weakness and trembling3. mental confusion4. poor sleep5. fatigue.....but there are many notable followers... Quote Link to comment Share on other sites More sharing options...
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