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Evie

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Everything posted by Evie

  1. Oh im sorry i just realised i misread one of your concerns. I didnt realise you were having a bad spell atm. Maybe you should wait until you are a bit stronger? Or do you think that doing things may improve your mental/physical situation? (i realise you would not be stressing if you had a answer to that question) is it possible to try for a few weeks then get a refund if you cant cope? Its a pain having to drop out and still pay then to have to come back and repeat it all over again.
  2. Gosh i really feel for you. I had to drop out of high school and it took me 4 years to get a one year diploma after that. There was alot of stopping and starting along the way and it was so tough emotionally and physically. Personally i think its important to feel like you are still part of society and 'moving on' in your life. Just be ready for stops and starts (sounds like you have already experienced stops and starts so im sure you are ready for that) Are you able to go to a college closer to home to help not have to travel so far? I use to travel as well. Once i fainted while getting onto a train and it was so scary. When i moved closer to class i found it alot easier and i could always jump in a cab if i got too bad. (so you may feel safer) If you are best at nights that sounds like a good idea! go whenever you think you may be the strongest (well thats obvious isnt it hehe) Is your school understanding about your situation? will the supply you with extentions when you may need them etc? I dont know how severe your situation is so i dont want to suggest anything that will push you too much. If you dr doesnt think its a good idea then keep that in mind. I hope you manage to find the right balance. Its so frustrating but you can do it eventually (i hope it takes you less than 4 years heh) good luck
  3. hi I have experienced convulsions when i faint and i find myself going into a featal position when that happens. Its quite scary. I got the impression from my specialist that it fitted into the POTS symptoms. However i would not want to make the claim that i expereince seizures as i am not sure that if it effects my brain or not. I am able to still hear whats going on around me when i have the convulsions while i am told that people who suffer seirous seizures like epileptics are not concious. Sorry if i am not much help. However here is another thread about seizures which implies that there are others with POTS that suffer seizures http://dinet.ipbhost.com/index.php?showtop...101&hl=seizures
  4. To tell you the truth i am not exactly sure. here is a link if it may help http://www.ncbi.nlm.nih.gov/entrez/query.f...0&dopt=Abstract from what i have been told from my friend (you would want to check with a dr of course) they are a type of antifungal that work throughout your body instead of just on one area. Personally i find that antibiotics really mess with my body and the systematic antifungal is meant to be safe in that regards that it wont heighten bacterial (i am not sure if thats the right word) imbalances that cause things like yeast infection. Again i want to stress i dont have medical training. I am just going on what a friend has experienced and from my wittnessing her improvement on these medications. I may be able to get some more detailed information from her in a few weeks. Just thought if any of you were going to a dr it may be a idea to at least look at the option.
  5. Hi guys, I was wondering if any of you suffer from a gagging feeling in your throat? I use to have it constantly (for aprox 2 years) and it always felt like i was just about to throw up yet it was very rare that i did. You are mentioning trouble swallowing so i was wondering if it felt anything like what i described? I have never been able to explain the feeling very well as i am able to eat and although my glands use to be swollen most of the time even when they went down i still occasionally got this feeling. It seems like POTS may explain alot of my really random symptoms so was just wondering if it explained this one too I hope your swallowing problems have subsided blackwolf!
  6. Hi I just wanted to add that i have heard of cases of Candida infections spreading in the body and creating the person to feel quite sick (quite similar symptoms to POTS of CFS) and i know of someone who has pretty much recoverd from using a systematic antifungal. Im not a dr, but i thought it may be something to look into if you have not already tried it
  7. No you are not a mean person! In my opinion as long as you recognize that its not 'nice' behaviour then i would not consider you a mean person (if i really have a right to judge you without knowing you in the first place). 'Mean people' tend not to notice that thier thoughts are mean. I think most humans go through these emotions at some stage or another. You may be broken hearted and your friend gets married, you know you should be happy for them but your own pain hurts so much that it tends to overpower the happy feelings. I know i use to get really upset when people got into university. As thats all i really wanted for years and years and years but my illness was making it difficult. The strange thing is when i finally got over being so upset i actually got into uni You are going through a grieving process made all the more complicated by the uncertain nature of your future. If someone dies you know that they are dead, however with health its so hard to know how to feel as you could be better in a year or you could be worse and that uncertainty is a real struggle to deal with. I remember when i was really bad people would think that telling me stories of people they knew who got better would make me feel better. Yet it didnt, it just made me feel like they really didnt understand. Just because somebody else got better does that mean i will? what about all the people who dont? it use to make me so mad. I personally found that knowing i could handle the WORST CASE SENARIO helped me the most. If i could deal with that then anything extra is a bonus. Everyone is different so im not sure what the best method of dealing with your emotions are. I hope zoloft helps you. Best wishes! You are not alone in these feelings. Most people just never admit to them
  8. Does management of POTS tend to minamise CFS symptoms? Hi! sorry if my question is naive. I was only diagnosed a few days ago with a form of Orthostatic Intolerence. The neurologist seemed to mostly give me info on POTS and said that even though i dont get Tachycardia i can still have it. My other specialist called it 'autonomic syncope'. From doing my own reading i think it may be more NCS as i dont get palpatations of the heart (or at least i dont feel them) yet i cant get out of bed before around 10-11 most days or i just faint after two minutes and them am quite bad throughout the day. I have had CFS for about 6 years and the specialist said that she thinks that POTS is the cause. So we are hoping if i treat the POTS then i will 'be better' so to speak. From reading on here it seems people tend to suffer from both and i was just wondering if treatment of one tended to help the other or not? I realise everyones body tends to be different but was just wondering about other peoples experiences. Thanks
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