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Anyone used Clonazepam? Did it help? I am trying to work my way into getting off Benzos generally, even though that has been the only medication that worked for me in the last 7-8 years. My doctor prescribed a long lasting one to replace Lorazepam and advised me to try it out first during the weekend. Yesterday was my first time and I did not get a single hour of sleep all night.

Thanks @Pistol. I will try it.

Hi Everyone. Please, is anyone familiar with Clonidine? Was it helpful for you or not? Do the positives outweigh the side effects? This is the second time I have been prescribed the medication. First was the tablet and now, the patch. I never took the tablet because I was too afraid of the side effect. I have just experienced a lot of bad side effects in the last 8 years that I now treat every medication like a death door knock. My blood pressure has been extremely high the last few months and I can't keep going like that. Thanks.

So sorry @MaineDoug. Same experience for me too but not as long as you have. I don't even know where to begin anymore but just keep living one day at a time. I am finding it very difficult to encourage others because I am barely holding it together myself. It's like I'm watching life drain out of me. I pray it gets better for you.

@Sarah Tee I made vegetable soup. 😃

You all are amazing. You made me feel so much better today. I usually take it pretty hard when I can't do much of anything but just lay in bed all day. I was able to stand in kitchen cooking for like 2 hours, two days ago. Thank you for teaching me that these smaller achievements are marks of progress.

Thank you so much @Sea otter

Thank you so much @MomtoGiuliana

Thanks so much @Pistol. It's been a long time.

Thank you.

Is this just anxiety or am I really losing my mind? I get the torture of the countless numbers of symptoms that come with POTS. I get the extremely high blood pressures. I am used to it. I get the digestive issues. I get the fatigue that feels like life is leaving my body. I understand the constant bodily pain. I haven't had a break in the last 5 or more years. The one I can't and won't accept is the thought of losing my mind. I was sitting in front of another doctor today (thanks to my Primary Care doctor who advised me to seek the help of a naturopathic doctor) and even though all I was saying makes sense, my brain felt so scrambled. My vision was so bad, it felt like I was seeing triple. It just felt like I died and left my body. It seemed like I am in another plain. The one thing I enjoy, programming, has become so difficult to do. I just sit there and look at my laptop for hours without lifting a hand. I have accepted that this might be my life but not even a day's break? I am trying to get off of Lorazepam but it's the only thing that works for me and that maybe pushing it. I can't use beta blocker (Metoprolol) anymore because I get very sick every time I take it. What do you all do when you've reached your limit? Thanks.

@Misty4280This happens to me all the time. I still haven't learnt my lesson yet. I just got through two weeks of very stressful work situation and now the last six to seven days, I haven't been able to do anything. I can't even think straight at the height of it when my body get so stimulated due to the stress. Mg whole body just shuts down. If you are able to setup a schedule and pattern that your body can familiarize with, it might be helpful hoping you are not in a situation where work requests change randomly. I tried doing that but due to the nature of my work, things change constantly for me.

@Pistol, @Sushi, @MikeO@DysautonmiaMatt, Thank you all so much. Honestly, I just wanted to try something else to see if it will help. I feel sorry sometimes for the pain my body goes through daily and the share amount of symptoms that I deal with even though I know all of us go through it. It's just that when I get overwhelmed (as this year has being for the most part), I am blinded to everything else going on around me. It's amazing what we all deal with. I am grateful though for this place. This forum has been my little safe place things get overhead. I am scared of starting a new medication. My body over-reacts to everything. I am even scared to take Tylenol and regular vitamins. I tried duloxetine few months back and although it helped a little for few weeks with body pain, everything else got worse so I had to stop. I was prescribed 0.1mg of Clonidine. Still not sure if I will take it but we'll see.

It's being a while since I have been here mainly because this year has been the worst since I got diagnosed with POTS. I haven't had a day I call normal this year and things just keeps getting worse. After another round of tests, which by the way, all came back normal, I was prescribed Clonidine. I have heard from many POTS patients that it helped them with the adrenaline dumps which I battle with daily. I just want to know if anyone here have tried it and what was/is your experience? I am scared to start another medication as I am trying to get off Lorazepam. It has been the only thing that has helped me be able to work as little as I can over the last six years. Thanks.

@MikeOI haven't been able to go see my doctor and honestly, I am too frustrated to even pursue anything anymore. Just have been struggling so much lately. I haven't had a single symptom free day this year and everything just seemed to be getting worse. I can barely work anymore. The one thing that has kept me going through this nightmare, has gotten too difficult to do. I tried an SNRI again and had to stop after just a week. Not sure how many medications I have to try before I get a semblance of normalcy again. I'm interested in what others are doing to snap out of this insane, never-ending circle of misery.