JimL

The POTS started months later. I have a post with my history in the forum.

I had an H Pylori infection last year that probably wasn't treated well. Things have gotten worse from there.

If it works great. Just wondered about that as a drop in BP could exacerbate it. I wish there were more studies into supplements, but that industry is poorly regulated.

" but children can get it through skin to skin contact with someone who has hand warts and (more uncommonly) through fomites. " The article doesn't say that and the HPV that causes warts isn't the same variant that causes cancer. A lot of people get it because... My only point originally is to weigh the risks and make an informed decision, part if which is how it's transmitted. The vast majority of people don't get reactions from vaccines, but if you do, it sucks. I mean for all I know I got POTS from the flu vaccine I got last fall or even the DPT the year before. Who knows. I do know the two year I didn't get a flu vaccine in the last 5 I got the flu bad. I am sure the parent in this case will make the right decision for her kids.

One part of the article might make it not a good idea for some of us: Carnosine lowers blood pressure through vasodilation (opening blood vessels). One mechanism by which it achieves this is by increasing nitric oxide production

You said it's easy to get. Based on the article, there are limited ways to get it that involve specific human behavior. I am not judging at all, just pointing out the difference. HPV isn't airborne nor can it be spread through coughing or sneezing as far as I can tell. It's basically a sexually transmitted disease.

https://www.cdc.gov/std/hpv/stdfact-hpv.htm

Some boys can be affected by it with throat and rectal cancer and yes they can transmit it. Hep A and whooping cough are different stories. Much easier to get.

In reading the articles, I had never heard of ASIA. In looking it up, there seems to be some controversy over it. It seems to me that if a doctor can't figure it out, it's in our heads. That said, the incidence of getting POTS from a vaccine is relatively low, but considering behavior affects infection with HPV, it's sort of optional in the sense that HPV requires specific contact as opposed to a contagious disease. I have 5 kids and none of them got the vaccine as of yet. Time will tell. I might be inclined not to get the HPV vaccines, but inform them of the risks and when they become of age they can decide.

I In reading those articles, it's interesting that they try to rule out psychogenic factors with regards to POTS/Autoimmune disorders. Is that from a bias based on the inability to diagnose it or that some people really have psychogenic caused POTS or Autoimmune disorders? It seems to me that it might predispose a doctor to presume it's psychosomatic.

I had an EGD in July and had gastritis and H Pylori. My stomach has gotten worse even though I've done a couple courses of treatment for H Pylori. I'll probably have to have one again. Thing is, before last june, I never had stomach issues. I could drink gasoline and piss ice cubes. No more. I'm on Lansoprazole 2x a day now.

It's a risk question. With highly communicable diseases, vaccines makes sense. In a perfect world, if your son always practices safe sex or doesn't participate, he has nothing to worry about. Things like polio, measles, chicken pox etc are different. They are indescriminant. That said, people claim lots of things, but is it true? I wouldn't soley rely on anecdotal evidence. They can get the shot when they become of age, so you can leave it up to them if you like.

One thing that doesn't are some chips to some extent. Meat/Protein seem to be a hassel. Salads too. God, I used to love greek salads and eat them often. Now I can't without getting nauseous. I love bacon, but that doesn't work well. It's like my body rejected 16 months of keto and I don't know why.

Did my thyroid panel: TSH, High Sensitivity 1.46 range 0.45-4.50 mU/L T4 Free NonDialysis 1.7 range 0.8-1.7 ng/dL T3 Free NonDialysis 2.4 range 2.0-4.8 pg/mL Microsomal TPO Antibody <10 ≤34 IU/mL

High grade dysplasia is precancerous. If they removed the polyps, it's ok as far as that goes. I hope things aren't as bad as they appear. Keep us informed.

had DVTs in my right leg over 25 years ago and I have worn knee high compression stockings since, or at least up until the POTS fiasco. I used Mediven with silicone band, 30-40mm. Mediven makes sturdy compression stockings. I wear knee high now. I forget the brand as I got them through walgreens, but they aren't the same. I will look at getting measured for thigh high open toe soon. The ones I have now are closed toe, which I hate.

The thing is, looking at the website, there are a plethora of maladies that can cause POTS and if the underlying disordr is treated, could it not improve the symptoms? I had a tilt table test this week. Not fun at all.

There's a lot of bad medicine out there. I am sorry to hear this. Have you challenged your doctor's timeline? I mean it's ridiculous.

They didn't do the full panel. You're lucky today if they do TSH, which really is a pituitary function. Because of the walmartization, they don't like to order tests that might not get paid for and then there is a tug of war who is responsible. You'd think that with the amount of time these tests have been around that things would have gotten cheaper. There has to be a better way. Most of my life I've been against single payer, but I don't know how long the current crap can keep going. They way they want to drive costs down decreases the quality of service. I see more and more doctors going concierge now. The other thing that pisses me off is that I should be able to log into websites to see my test results for things like MRI's and CT scans. Not here. If the results are sent to a doctor and he or she puts them in a portal, that's the way it happens. Since we're the customer, we should be able to have our data as it were. I have to ask for the records and some will put it on a disk for free, some charge. I save everything to cloud storage, even digital communications, everything I can. The best portal I've seen so far is Epic.

I was told women get MS and I am too old too. Right. This isn't done yet. I have more specialists than I almost can count. At one time, a good internist could figure most things out. I think the problem is how medicine is run now, which is an effort to see as many patients as possible in the day and use as few doctors as possible instead using PA's and NP's. It's the walmartizatin of medicine. We see it in pharmacies now. You might have one RPH in a pharmacy and the rest are pharmacy techs. It's happening in lots of things. As far as thyroid medicine, they say Armor Thyroid is the best. It's from an animal. Thing is, my thighs and forearms have been itchy and dry too.

I have an appointment with him March 7. It's a follow up for the back surgery and also a consult on my neck. I've had C4-6 fused and C2-4 should be done according to my neck guy. The lower back guy does necks too. I like both of them, but I want to be sure. The neck guy said I have pressure on my spinal cord. When it rains it floods.

Lately, everything. I went to a vascular doc and a neuroophthamologist today. The latter said my double vision is caused by 4th cranial nerve palsy that I've had for awhile and for whatever reason, I've decompensated and it's a problem now. She also said I have evidence of thyroid disease in the eyes and thinning of the nerve due to pressure, although the pressure was fine when tested. I am on synthroid, 75mcg and I've been taking the same dosage for 3-4 year and I've lost weight. I wonder if that's been the problem? Last August my T4 was 1.8, which is slightly elevated. It was 1.3 a year before when a lot heavier. The vascular guy said I didn't have a strong bounding pulse in my feet. Now he has a lot of tests for me. This is getting to be a lot and also not feeling well all the time.

They found it during surgery. The surgeon said it was from a bone spur. Could have been iatragenic. He said he stitched it and put fibrinogen or whatever they do. I still got the nasty headache the next day. It was the worst headache I've ever had. I would have done myself in if I had to live with that.

I was on Keto 11 months+ when I started having stomach issues. The only things that are out of place about last May are that I went to Florida and did some hiking and beach walking there and I remember eating a piece of cod that needed more cooking. The latter seems more plausible as I started having problems less than a week after that meal. I can't prove it, but who knows. For some reason when I do keto now, I just feel like I can't stomach it and my discipline is gone. I did it for 16 months straight though, like a single minded nut. 30g net carbs a day max.

Keto is hard for me now. I've gone back to a regular diet, just capping the calories at maintenance and I've been holding at 215. I am 6'5. I was 382 when I started in June of 2017. I've been on metoprolol for about 5-6 years, but I take less than I used to. I take 25mg now. I used to take 50mg. Lisinopril I am down to 10 from 40 originally. I probably could go off lisinopril . I have my appointment with the cardiologist next week, I think Tuesday. I went home today as I didn't feel well. I am pretty much out of paid time off and I work for the state too. Unfortunately we accrue sick at half the rate of vacation and it takes forever to accrue sick time.