Thanks in advance for replies and advice. I'll try to keep this as brief and to the point as possible.
late May 2018 I started having stomach issues out of the blue. Abdominal pain, especially an hour after I ate. Went to do, had CT scan, nothing wrong other than enlarged prostate, minor left inguinal hernia and a solitary lung nodule, 13mm very low in the lung, probable granuloma. Ok. Went back to the doc again still complaining and basically they told me all my labs were great, I'd lost over 130lbs at the time and I should be happy. I went to bariatric doc (I had a lapband put in 2009 in Iowa now live in AZ, but that's not how I lost weight, used Keto) in July and he took the fluid out of my band and then did a EGD. H Pylori and gastritis. 12 day treatment and after symptoms came back. breath test was negative. He ordered upper GI and had mild esophageal dismobility. Said lets take the Lapland out. That was early September. Around this time (August) I had come down with patulous eustachian tube on the left side and I started getting tingling in my feet beginning of September . By the third week of September I was scheduled for the Lapland removal. The tingling also moved up my leg and I started walking goofy. Went to new PCP as I ditched the guy that said I should be happy and he said I had foot drop and symptoms of lumbar problems. I also started getting double vision. Anyway, had the lapband out and some of the gastric problems got a little better. I had been belching all the time like a steam engine, then less. Still had stomach discomfort and felt off. Lumbar issues turned out to be stenosis, bad disks and bone spurs. Stenosis so bad that my spinal chord disappeared on the MRI at L4-5. Surgery scheduled for October 30. I also had a neck MRI as I had a cervical fusion 6 years before. Stomach issues continue after spine surgery which required 6 weeks home recovery. Went to ophthalmologist for the diplopia. More tests and yes I have diplopia but doesn't know why. Did one test for myasthenia gravis which was negative. Had MRI of brain and that was ok. Paid for my own ANA/CRP/ESR/TNF test which were normal. Went to gastro doc who just doubled my lansoprazole dose to 2x a day. Ophthalmologist refers me to the Mayo Clinic to a neuroophthamologist, who I am seeing this Thursday. Yes, it took this long. Went back to work 2nd week of Dec having exhausted all my vacation and sick time and around Christmas I had heart palpitations and shortness of breath. I went to the ER and I didn't have a HA and they sent me home. Two weeks later same think when I was driving. Had an accident. Went to hospital. Nothing wrong was found. They referred me to a cardiologist who did a calcium scoring, echo, nuclear stress test, coronary CT yesterday and tilt table test today. He seems more on the ball. The echo was ok, but the nuclear stress test was inconclusive as my heart rate went nuts pretty quickly on the treadmill and I couldn't do it long. Understand that not that long ago, only 5 months or so I was hiking 21 miles a week and was getting in great shape. I liked hiking and had planned to do one of those spartan runs. He mutters othostatic hypotension when I was on the treadmill. Still have gastro issues and in fact last week my PCP decided to treat me for h pylori again thinking that is causing my problems. Still have diplopia. My left eye is off a bit, the image off diagonally down. Still have the symptoms of rapid heart beat on standing and walking, headaches when up and not feeling right. If I lay down, my heart rate can be 58-65 resting. Standing up, 100 or more depending on how long. I did the tilt table which freaked me out. They gave me nitro after 25 minutes and 5 minutes later it was lights out. I've never experienced anything like that. I felt it coming though. That nitro made me feel flush in my torso. I don't know why this is happening to me. Looking at the DI website, it could be a dozen different things. Doctors have become a disappointment to me. When I lived in NY, I had a dynamite internist that did his residency at Bellvue and was sharp. The PCPs out here just want to prescribe and look at metabolic panels. Maybe I get 15 minutes with them. I am made to feel like a hypochondriac. The only thing that has improved a bit is my foot drop. Other than that, I have the same gastro issues and more, like it takes longer to get through me/constipation. Belching, short of breath at times if I am up, like my epiglottis is confused, headaches and neck shoulder pain/stiffness sometimes. I wonder if I have some autoimmune disease they are missing or that the h pylori caused something along those lines or that I have some sort of paraneoplastic syndrome. Because I have had a lot of doctor visits and I've taken some time off when I don't feel well, I have almost no time left at work. On top of this, they made me a supervisor a couple weeks before my spine surgery last fall and I am not digging it. No extra pay or title. Just feeling like there's little upside lately. Where do I go from here? Judging from today's table tilt test, I would think I have POTS. Why, I don't know. Any advice would be helpful. Informationally, I do wear thigh high and full height compression stockings now. It helps, but after the tilt table today, my heart rate didn't settle down so well. I actually thought I was doing a little better, do a few things around the house on the weekend and now I feel set back and exhausted. I am on low doses of metoprolol and lisinopril and 75mcg of Synthroid, but that's it other than vitamins. Thanks for your patience in reading this and letting me dump a bit.
