Jeanee H

Do you have nerve problems from b12 deficiency? I am normal b12 in last test but I know I was low a few years ago. I developed feeling of deep pin pricks randomly on the skin of my arms and legs mostly. Maybe just a dozen spots at a time and it goes away when touched. I’m not diabetic. I also took Prozac occasionally to get through things like divorce but it affected my sense of taste and I love to cook. I need high b Vits to deal with stress and I have to take digestive enzymes when I eat. I take five grams of L glutamine in water when I first get up five days a week. It totally heals intestinal tract lining! I also use high grade bentonite liquid in water for any upset., instead of colorful medication. It’s mechanical. Not absorbed. It carries out bad bacteria that you can replace with good probiotics. IBS- D AND C. Can be healed and controlled. Fodmap diet worked too!. I’m still using a cane for balance but i was able to dip water my garden from rain barrels today. Planning on planting a fragrant lavender tea rose in memory of Para our kitty named for the Holy Spirit in Greek. ✌️🍀

Thanks for your input. The dizzy debilitated days came on suddenly. I think the tooth thing pushed my stress over the edge. It’s been three days and finally I can stand on my own. I have a salty diet that I do when getting dizzy and I recently got control of severe ibs D with a two month Fodmap low sugars, all sugars, diet. That’s been a great relief. I’ve had a weird positional rapid heart beat for twenty years. It happens when I bend down then straighten up, but only lasts a few minutes. All serious heart stress tests show my heart strong and normal except a slight MVP that has not worsened over the years. I was treated for Hashimotos 30 years ago with Naturethroid. When I took it for a few days my body seemed to start recognizing my own hormones. Once in awhile I’d get the chills again and Naturethroid would work. When I retired and moved to the country I lost contact with the doctors that had been treating me. I also lost my own medical record hard copies from roof damage in a hurricane. I truly learned the hard way that having doctors older than myself retire and not putting my records in water proof storage containers was a big mistake. I’m now going through testing again and subjected to what I call being experimented on. I’m extremely chemically sensitive but haven’t found a new doctor who gets this. This makes any doctor visit tremendously stressful. I have a prescription epi pen from anaphylactic shock episodes I was hospitalized for so those records are helping me. I’m not against vaccines but I’m un COVID19 vaccinated because I’m afraid. This is the next big thing I have to figure out. Thanks again,Jeanee

I suddenly had the worst flare ever. I could hardly move or walk. I had to be seen to schedule a tooth removal and the nurse had to hold on to me because I was so dizzy and pre syncope I couldn’t walk alone. When I got home I started going through the forums trying to figure out why my reaction to pre dental visit was so bad. Then I came across this. I know I had broken heart syndrome because I had said my heart was broken when my 15 years cat suddenly died. With in two weeks I could hardly walk to shop and was experiencing beginning migraine head pressure, moments of seconds loss of consciousness, just catching my head going down in time to recover. I’ve never had this bad of a flare and I’m scared.

I have almost all symptoms. My regular doctor agreed to possible dysautonomia ten years ago but it wasn’t his area. does anyone have sporadic pins and needles feeling over skin anywhere at anytime suddenly? I’ve had a new symptom for 8 months. Upon the slightest hint of sweating, walking from house to car, washing a few dishes in hot water, I get pins and needles in patches across my arms and legs and back. I have not maintained my body temp feeling. For ten years I can go from feeling very cold to over heated in minutes. I’ve learned to cope but this feeling of a rash of needle pricks across an arm one time, over my back another, down my neck… even a few solid pin pricks on my face or stomach is new and scary. When the skin is rubbed it instantly goes away. I have slow thyroid. I’m up on all b vita and esp b12. I have no symptoms of MS. I have MPV and very mild dyistolic heart condition.

One of the things on my original list of issues was migraines. I went to a neurologist who set me up for allergy testing. ‘In the elimination diet for migraine was avocado. I ate them all the time. When I eliminated then put back, migraines stopped then returned. So no more avocado. I’m not as sensitive to it but dark chocolate will trigger migraines for me too. When I get a migraine I get tachycardia and adrenaline flares. I had a complete food allergy test done too. The elimination diet proved I have no tolerance for citrus except limes, really allergic to corn except blue corn chips and allergic to beef. I feel like I have the flu if I eat any of them. I’m sure knowing what my body rejected as food helped me very much.

I’m not sure how to use reply. I am very aware of my salt intake! When I lived in south Japan there were salt dispensers by the water fountains in the Summer . I knew I felt better when I ate my regular diet with lots of salty peanuts and soy sauce with sushi! It’s like a treat to me to be able to eat as much salty foods as I want. I would say that it’s very important to take coQ10. It’s the major enzyme of energy transfer in the heart and liver. CoQ’s are in foods, your body is supposed to match up coQ4 AND coQ6 to make ten but some people don’t do it very well. It builds up on receptors so it’s one of those supplements that take a couple months to get to maximum help levels. coQ10 is the #1 prescription for heart conditions of any kind in Germany and Japan. They are medically ahead of USA. I learned about it when it was in a New Yorker article about “don’t mess with Texas”. FDA tried to take it off the health supplement shelves with other supplements. People taking it for heart conditions called their senators and FDA actually brought it back to stores! I got a book on it because my dad had atrial fibrillation and was being hospitalized a couple times a month. In three months of use he stopped having attacks, 100mg coQ10 a day. When I’m really good about taking it my tachycardia almost goes away. Hawthorn extract I discovered in a book in my doctors office. I was getting ready for surgery for endometriosis and paging through his book called TOTAL WELLNESS, I found out about patients with congestive heart failure who had recovered so much after the addition of Hawthorn extract that they were able to go off heart transplant list! Gaia brand makes a potent liquid capsule of complete extract. It works so well to keep my heart from racing when I exercise. Every time I slack off I feel weaker and make sure I go back on it. It too is prescribed in Germany.

Thanks for your reply. I was on Prozac for a few years because of stress caused by my son going deaf. The good news is I got him into neurofeedback training to help maintain his cognitive function and four years later his hearing came back! ‘I believe the Prozac helped me feel calmer when i was triggered but other wise I had some of the worst episodes of vertigo and heat intolerance during the time I was on it. Since my mvp was mild and my heart was healthy I was never treated for the weird tachycardia. I have allergic congestion but I stay away from pseudoephedrine and also caffeine that makes pots worse. I keep up with a cardiologist, I take coQ10 100 ml a day and hawthorn Gaia brand between meals. Also the regular heart healthy vitamins and oils. I’m 68 so I’m used to physical changes. I just didn’t know these symptoms could come and go. I want to share that my sons otolaryngologist speculated that his otic nerve growth had been interrupted by a sudden big growth spurt in 5th grade but the stimulation from the Tomatis method of hearing and cognitive work caused it to keep growing until it reconnected with his ear. I tell this because he had a hearing aid for all those years then over a few months broke it constantly trying to adjust because his hearing was coming back! There are many things that can help us heal that we don’t know about until we go searching for help. It seemed like a miracle ... it also was science!

My only diagnosis happened when I showed my doctor that a list of my symptoms or “issues” ( from past ten years of treatment at that practice) when googled together in a list caused several dysautonomia based sites , blogs and definitions to come up. I have mitral valve prolapse , low blood pressure, ptsd, presyncope , tachycardia unrelated to activity except bending over almost always sets it off, and an inability to maintain my temperature especially above 80 degrees, the reaction being turning into a human waterfall. The most frustrating thing on my list was adrenal activity for no reason. Just comfortably reading a silly book in the evening I’d suddenly get flushed and hyper with fight or flight like I was really in danger. It seemed by my investigation of dysautonomia sites that I actually was pretty mild except for the drenching sweat in the heat, because I would return to normal with in about 30 minutes. The reason I’m asking for input is that I just started getting pins and needles sporadically all over. I looked it up and the DINET site was listed. Oh my, dysautonomia again! I retired from a very stressful but fulfilling job teaching art in an inner city school a , sold my big empty nest and moved to an old country cottage a few years ago. My symptoms lessened and I thought it really had been stress. Now I’m symptomatic again so ... what? My new GP is clueless. Am I understanding this??? Dysautonomia can come and go?